Neuroendocrine Tumors (NETs): Discussions | Page 1

Please read my comments and experience on Histotripsy (of the liver). 2 articles above you.

https://connect.mayoclinic.org/comment/1199558/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

I have pancreatic neuroendocrine tumor with liver metastasis. It is grade 1. I am scheduled for...

https://connect.mayoclinic.org/comment/992109/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2024

Thanks for your reply. Have your doctors ever run any tests to determine if pancreas or...

https://connect.mayoclinic.org/comment/1207772/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 3:18pm

https://connect.mayoclinic.org/discussion/is-there-a-particular-diet-to-have-when-beginning-lanreotide-injection/Reading what others have said confirms that as NET patients we are all different. I was...

https://connect.mayoclinic.org/comment/1252413/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 9:30am

In my experience every time I read the latest scans summary, it's a day of new...

https://connect.mayoclinic.org/comment/1219632/

Discussion: Liver masses found on CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 10:23am

Caitrina, I am glad to see your comments after the liver debunking. It is helpful to...

https://connect.mayoclinic.org/comment/780435/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

If the tumors are confined to the liver only, has your doctor suggested a liver directed...

https://connect.mayoclinic.org/comment/1047345/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2024

I have my liver ablation this week. I’ll let you know how that goes.

https://connect.mayoclinic.org/comment/1171949/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

My Husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid that spread to liver, lymph...

https://connect.mayoclinic.org/comment/1048688/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

We have already had the primary removed in March 23, along with gall bladder, spleen, and...

https://connect.mayoclinic.org/comment/952558/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

I have pNET grade 2 stage 4 ( due to metastases in liver). I had distal...

https://connect.mayoclinic.org/comment/881155/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

@nana120, I love your new profile picture - your Halloween zebra costume is perfect. In addition...

https://connect.mayoclinic.org/comment/1179425/

Discussion: Radioembolization Is My Next Step

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

Can’t say enough about the CAP/TEM chemo option. For my wife it resulted in approximately a...

https://connect.mayoclinic.org/comment/1255694/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 3:24pm

Thank you I have an appointment today with my liver surgeon Hopefully I will know more

https://connect.mayoclinic.org/comment/934187/

Discussion: Bland Liver Embolization complication

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

As I said there have no treatments for the past 5 months. I did have Lanreotide...

https://connect.mayoclinic.org/comment/1209962/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 1:54pm

Hi Billyfeet, I was diagnosed in 2012 with a NET on the head of the pancreas...

https://connect.mayoclinic.org/comment/842404/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

Sorry I have been diagnosed with metastasized liver NETs don’t know where the primary is as...

https://connect.mayoclinic.org/comment/727433/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2022

Hi, breck from Iowa! I’m from Florida, have NETS in my liver and small intestine.. Welcome!

https://connect.mayoclinic.org/comment/1169290/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Thanks for sharing your story. My doctor told me good chance my next one would probably...

https://connect.mayoclinic.org/comment/1236677/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14 10:11am

Hello from Indiana. I was diagnosed in August with a NET in my intestine. Pet scan...

https://connect.mayoclinic.org/comment/763826/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2022

Neuroendocrine Tumors (NETs) Support Group