Neuroendocrine Tumors (NETs) Support Group

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Thank god for our multi discipline team of NET specialists, surgeons, chemo specialists, etc. they have...

https://connect.mayoclinic.org/comment/985488/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

Hi @ahtaylor Good to hear that your liver panels have been normal, that seems to be...

https://connect.mayoclinic.org/comment/829501/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

@worriedlovingwife When they say stage 4 terminal, does that definitely mean there is no hope of...

https://connect.mayoclinic.org/comment/292371/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2020

I guess Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma, multiple liver mets. Is the official diagnosis....

https://connect.mayoclinic.org/comment/698009/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

MRI with contrast is the only way to go. I’m not sure the name of the...

https://connect.mayoclinic.org/comment/806725/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

@meandmysis I was diagnosed with pancreatic cancer NETs, three 8cm tumors, that also have spread to...

https://connect.mayoclinic.org/comment/880674/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

I also have NET’s in my liver, I am on monthly octreotide injections. I have not...

https://connect.mayoclinic.org/comment/883630/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

@pete1962 Thanks for responding. I don’t remember your first post, if your diagnosis includes NET in...

https://connect.mayoclinic.org/comment/837367/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Hello @riffieli Your concerns are understandable. I have had three surgeries for NETs in the upper...

https://connect.mayoclinic.org/comment/787667/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

I had robotic assisted liver debunking 9/6/22. Doctor said would help with the hormones being produced...

https://connect.mayoclinic.org/comment/789486/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2022

Thank you for your response and treatment info. It seems a good thing that you have...

https://connect.mayoclinic.org/comment/814505/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

PET Scan findings today: Confirms neuroendocrine on tail of Pancreas. No other neuroendocrines found. Ancillary chest...

https://connect.mayoclinic.org/comment/774829/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2022

I was diagnosed with a NET in my liver, the source of the tumor is in...

https://connect.mayoclinic.org/comment/749917/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

Wow hats off to you on your journey what an experience you learned from and handled...

https://connect.mayoclinic.org/comment/821372/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2023

Welcome @tufan, I'm sorry to hear that treatment thus far has not slowed the progression of...

https://connect.mayoclinic.org/comment/801569/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Yes. After my second embolization too. Just hang in there. Your liver is fighting all the...

https://connect.mayoclinic.org/comment/888145/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1, 2023

Good luck to you! I have Stage IV carcinoid originally in my ileum, and now in...

https://connect.mayoclinic.org/comment/1150045/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1 3:57am

I too have pNET grade 2, stage 4 due to liver metastases, but have not heard...

https://connect.mayoclinic.org/comment/1062830/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5 5:53pm

Not sure..since there are lesions in the liver they think it could be..the primary tumor is...

https://connect.mayoclinic.org/comment/967686/

Discussion: Anyone have stretching of the liver capsule?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

My hubs was diagnosed in 2019 with an intestinal blockage. Surgery revealed he had the NET...

https://connect.mayoclinic.org/comment/899657/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2023

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