Neuroendocrine Tumors (NETs) Support Group

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Yes, breast cancer that has metastasized to the liver. But has those mutations.

https://connect.mayoclinic.org/comment/600679/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9, 2021

@donnapeck51, as @californiazebra mentioned there are merkel cell discussions you might like to join. Here is...

https://connect.mayoclinic.org/comment/1177083/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2024

@sophiarose, I'm sorry to read of your treatment complications. I'm tagging fellow NETs members @trivia @jhilbish...

https://connect.mayoclinic.org/comment/906085/

Discussion: Bland Liver Embolization complication

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2023

I’m very sorry to hear but glad the surgeon says are options. If You don’t mind...

https://connect.mayoclinic.org/comment/763130/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 19, 2022

I had encroachment in my portal vein and smv when originally diagnosed with my pnet in...

https://connect.mayoclinic.org/comment/1326437/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13 12:34pm

How did the proton go? I am having that for liver cancer

https://connect.mayoclinic.org/comment/232758/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 9, 2018

My husband was diagnosed with GITract small bowel Neuroendocrine tumor Stage 4 Grade 2 well-differentiated KY...

https://connect.mayoclinic.org/comment/1120029/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2024

I've been told MRI with contrast is best way to detect liver matastasis. With PET/CT there...

https://connect.mayoclinic.org/comment/805340/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2023

I have been stage 4 since the beginning primarily to the liver. It likes to play...

https://connect.mayoclinic.org/comment/1274239/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4 2:11pm

The treatment plan that was discussed with me in 2018 for my NETs was Whipple surgery,...

https://connect.mayoclinic.org/comment/898267/

Discussion: NET's and possible liver transplant discussion

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2023

Hi, I had a ct scan for something else and many tumors showed up in the...

https://connect.mayoclinic.org/comment/1371172/

Discussion: Surgery on Small Intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15 9:51am

You are so welcome and thank you for words of encouragement. Sounds like you have a...

https://connect.mayoclinic.org/comment/826704/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

@harley4650 My wife also only has NET in liver only as least that shows on all...

https://connect.mayoclinic.org/comment/1047348/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2024

Thanks for sharing. What was the size of your larger tumors? What type of ablation did...

https://connect.mayoclinic.org/comment/1380118/

Discussion: Questions for surgeon-considerations choosing PRRT or surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26 8:21pm

I had a liver embolization in June and no itches all of July. However, most of...

https://connect.mayoclinic.org/comment/1387996/

Discussion: Why do almost none of the sites online mention severe itching?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6 11:42am

When will you know if the treatment was successful ? I have pancreatic with mets to...

https://connect.mayoclinic.org/comment/1007994/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2024

Thank you for your response. I'd been told "flushing" might be a part of the liver...

https://connect.mayoclinic.org/comment/993700/

Discussion: Anyone have bouts of severe sweats accompanied by muscle weakness

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2024

Hi I was diagnosed in June of2021 with lung to liver net Ki67 1-5% with two...

https://connect.mayoclinic.org/comment/813436/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

I have pancreatic neuroendocrine tumor with liver metastasis. It is grade 1. I am scheduled for...

https://connect.mayoclinic.org/comment/992109/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2024

Fortunately, no fatigue. Hypoglycemia worsened but that could also be tumor growth in the pancreas. They...

https://connect.mayoclinic.org/comment/831407/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

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