had a tumor removed from small intestion,3 months ago, having diarrhea and passing lot of gas with pain, this is every day. help
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Hi @harley4650, this must be uncomfortable. May I ask what type of cancer you had so I can connect you with others?
neuroendocrine tumor.carcinoid cancer. small intestion and liver
I have not had a tumor removed, but have had 5 stomach / upper abdominal surgeries. Any surgery of the digestive tract can cause your symptoms.
I have no medical training, but I do have a few suggestions.
Contact your surgeon. You may have a bacteria infection. It needs to be ruled out.
Things that might help are to eat an easily digestible diet. Type in “ easily digestible foods” into your browser search box and you will come up with lists of many foods that will digest easily. Stay away from high fiber foods.
Gas can be a sign you are not absorbing nutrients. It can take a while for the digestive system to heal .. get back to normal. So ease back into it like when you have had a stomach virus. Instead of 3 meals a day divide your meals into 4-5. Try eating probiotic foods like yogurt. You might want to try a probiotic supplement. They help to balance the stomach bacteria. I tried a lot of brands before I found the one that worked for me .. which is Align.
I also suggest you keep a journal of what you eat. It might help figure out if there are certain foods that trigger the diarrhea and gas.
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Harley, I added your discussion about post surgical pain, gas and other GI issues after surgery to the Neuroendocrine Tumors (NETs) support group here: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/
I did this so you can connect with NETs members like @hopeful33250 @sturns @amariewilkinson @laurell410 @cu2, who have had GI surgery and understand first hand about dealing with gas, diarrhea and pain. @fourof5zs also has some practical suggestions for you.
Welcome @ harley4650. I've had 2 lobectomies the "old fashion way" and was gassy both times. I'm sure that it added to the resulting pain, or maybe it was pain meds because they tend to bind a person up. There are wonderful meds to help with that either OTC or by an Rx from your doctor.
Many doctors use gas to increase the size of the area that they are working on to give them more room. If you had abdominal surgery then both of these reasons are probably true. I know that it's very uncomfortable. Make sure that you are in a private place so that you can relax better if needed. You might also try to have a heating pack on your tummy unless you are using ice.
Are you running a fever, or is there other pain?
@harley4650 the supportive medicine team at MSKCC are wonderful about controlling nausesa diarrhea and pain. I had a hernia the size of a tennis ball on my stomach (which they ended up removing) but I still have GI issues related to the disease but they are all controlled with medication.
NEC patient with rectal cancer found here. Had lots and lots of issues after my rectal resection surgery last year. Give your body plenty of time to heal and it was hit or miss with anything that actually helped with pain. At one point I had a surgeon stretch me out since I was so narrowed and that made a bigger difference. Otherwise, lots of warm baths, relaxing and seeing if your state has legal prescription THC/CBD creams and or oral tinctures or gummies helped my intestines to finally relax again.
Hello @harley4650. I would like to join @amariewilkinson @laurell410 @fourof5zs @merpreb and @colleenyoung in welcoming you to Connect. I agree with what everyone has posted so far. As I've had three surgeries of the duodenal bulb for carcinoid cancer I understand the adjustments that are needed to your eating habits.
If this is your first surgery on the digestive tract it may be a surprise to realize how long recovery takes. Three months is not a very long time to heal. Undoubtedly, your digestive tract is still recovering and finding its new normal. I agree with @fourof5zs that you need to eat small, frequent meals rather than three meals a day. Eating easily digestible foods is also important. Eating foods low in fat content (i.e., avoiding fried or other fatty foods) is also essential. Baking, and broiling fish, and poultry is easier to digest than eating red meat.
Has your doctor offered you any suggestions about the pain, gas, or eating habits? Have you tried changing your eating habits since your surgery?
I will try the 4 to 5 small meals a day, and eating more digestible foods. Thanks
I had a hemicolectomy because of a NET tumor of the small intestine and had many months of gas, bloating, daily pain, and eventually daily diarrhea issues. The pain was always in the same location and it worried me. Thankfully my gastroenterologist and PA helped me with diet to figure out what foods to limit and which foods trigger those symptoms. But most importantly, I also had bacteria buildup that I guess is common in this situation. It was a simple breathing test to determine this, and an antibiotic prescription to take care of it. That was a huge help for my symptoms. I’m still learning food choices to help limit repeat occurrences of this but am told this will probably be an ongoing issue from time to time. My doctor/PA also helped me with some over-the-counter suggestions to help keep things moving and that was a huge help with my pain, as well. It was trial and error but we came up with what works best for me. I hope this helps. Take care.
The condition is known as SIBO (Small Intestine Bacterial Overgrowth) which is why antibioticas can be helpful
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