Neuroendocrine Tumors (NETs) Support Group

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Comments (878)

Definitely ask for sedation for your biopsy. It's not pleasant. While still on the table while...

https://connect.mayoclinic.org/comment/1080156/

Discussion: Altitude change after lung biopsy/bronchoscopy

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2024

Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...

https://connect.mayoclinic.org/comment/1208685/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Hi I took glp1 ozempic almost 2yrs during this time nets tumor showed up in my...

https://connect.mayoclinic.org/comment/1468586/

Discussion: Are GLP meds associated with growth in PNETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2025

Lately, I have started coughing out of the blue for no reason. Has anyone else with...

https://connect.mayoclinic.org/comment/1066295/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2024

@californiazebra The lung tumor that grew and they did a needle biopsy on....I'm just wondering what...

https://connect.mayoclinic.org/comment/1432606/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

I am coughing up blood tinged phlegm every day. This is how it was found. At...

https://connect.mayoclinic.org/comment/1048206/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

I also have NET and DIPNECH. Both were found in August of 2024 when my tumor...

https://connect.mayoclinic.org/comment/1288119/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23, 2025

Hi @gmapam I have lung NETS and have had unrelated diverticulitis several times in the past...

https://connect.mayoclinic.org/comment/883798/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

@mhcohan Yes, I had a 26 mm lung NET destroyed with microwave ablation 4 years ago....

https://connect.mayoclinic.org/comment/1415806/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

@tomrennie I'm going to ring my lung specialist now and see what he says I will...

https://connect.mayoclinic.org/comment/1429730/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

@californiazebra I've mentioned it before they said I possible its over my partial callapse the end...

https://connect.mayoclinic.org/comment/1435708/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2025

I also have slow growing lung nets in both lungs one has grown very slightly over...

https://connect.mayoclinic.org/comment/1328533/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2025

@tomrennie I am happy to hear 😊 yes healing good still achy tho I've been for...

https://connect.mayoclinic.org/comment/1500632/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 2:41am

@pammy229 Hello Pamela and welcome to the NETs support group on Mayo Connect. This is a...

https://connect.mayoclinic.org/comment/1198172/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

@ocean5: So sorry you are having this NET lung progression. I just joined a NET support...

https://connect.mayoclinic.org/comment/1242672/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2025

I have breast cancer as well as lung NETs and DIPNECH. My breast cancer is unrelated;...

https://connect.mayoclinic.org/comment/1206124/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 7, 2025

Many of you know her as @merpreb or Merry, Volunteer Mentor. To survive lung cancer (twice)...

https://connect.mayoclinic.org/comment/232951/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Apr 19, 2019

Just saw your post. Ia m two plus weeks out of surgery (lobectomy) for a cancerous...

https://connect.mayoclinic.org/comment/232876/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 17, 2019

I’m so sorry you’re going through this. Have you had a chest CT done? Afinitor can...

https://connect.mayoclinic.org/comment/1004006/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

I will be having the lower lobe of my left lung removed on Tuesday. Feels a...

https://connect.mayoclinic.org/comment/1460204/

Discussion: Anyone have a pneumonectomy? How are you doing now?

Support Group: Lung Cancer

Posted: Dec 13, 2025

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