Neuroendocrine Tumors (NETs): Discussions | Page 6

*Update* My treatment regimen has been changed....it was 20mg octreotide every 28days it has been changed...

https://connect.mayoclinic.org/comment/1106072/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

@ant12 One more thing, lanreotide/octreotide injections can really help with carcinoid syndrome -- the flushing, diarrhea,...

https://connect.mayoclinic.org/comment/1033639/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2024

Getting ready for my first PRRT treatment in August for stage IV primary gastric tumor with...

https://connect.mayoclinic.org/comment/1358080/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 5:34am

DIPNECH and lung NETs typically do have somatostatin receptors which is why I had the DOTATATE...

https://connect.mayoclinic.org/comment/1361481/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1 12:33pm

Very interested in your second opinion that indicated you did not need the Octreotide injections. I...

https://connect.mayoclinic.org/comment/1171874/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

@jsudjian I don't see any mention of you having NETs so it doesn't seem like it...

https://connect.mayoclinic.org/comment/1378264/

Discussion: Worried about carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

Im so sorry youre going through all this.🙏🏼 He has not. The surgeon did tell us...

https://connect.mayoclinic.org/comment/1347070/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 13 10:01am

Before I was put on Lanreotide I had no symptoms Lanreotide gave me such a horrible...

https://connect.mayoclinic.org/comment/1249217/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3 7:52am

After a year on Octreotide 2 of my 16 Tumors showed some growth, ( No New...

https://connect.mayoclinic.org/comment/1056307/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

One of the first things they did for my husband was to put him on OCTREOTIDE...

https://connect.mayoclinic.org/comment/895361/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2023

Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...

https://connect.mayoclinic.org/comment/835869/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

@ineedawhale Yes. I had the DOTATATE Cu64 scan. As it turned out it wasn’t more valuable...

https://connect.mayoclinic.org/comment/1358919/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 11:54pm

Thank you so much for sharing your journey. Wishing you good health and lots of adventures!...

https://connect.mayoclinic.org/comment/845245/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Octreotide LAR is technically designed to control to symptoms of carcinoid (diarrhea, flushing, nausea, etc) which...

https://connect.mayoclinic.org/comment/1060800/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2024

Thank you, I feel great! Recent CT FU with oncologist shows only one area of concern....

https://connect.mayoclinic.org/comment/1272555/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 11:14am

@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...

https://connect.mayoclinic.org/comment/1304347/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14 8:48pm

I take octreotide injections and get inappropriate huge blood sugar spikes anytime I eat anything other...

https://connect.mayoclinic.org/comment/1356060/

Discussion: Lanrotide & PRRT: Blood sugar and gluten

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 11:03am

@dipnech67 Robert Ramirez MD at Vanderbilt in Nashville is a NETS specialist who talks about DIPNECH...

https://connect.mayoclinic.org/comment/1054381/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

Hello again @phoebeghostwriter Here is a link that will direct you to other tests that can...

https://connect.mayoclinic.org/comment/670209/

Discussion: Do NET tumors show up in basic blood work?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2022

I need to know how long after PRRT treatment should you get a MRI with contrast...

https://connect.mayoclinic.org/comment/1169156/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2024

Neuroendocrine Tumors (NETs) Support Group