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Comments (651)
Anyone diagnosed with DIPNECH? I’ve had 3 injections of Octreotide so far. I started having GI...
https://connect.mayoclinic.org/comment/1193098/
Three weeks after 2nd surgery I started the Octreotide injections; no adverse side effects except for...
https://connect.mayoclinic.org/comment/1269922/
My Journey of what I have done Liver resection Lanreotide Octreotide Liver embolizations both sides Afinitor...
https://connect.mayoclinic.org/comment/1328140/
Hello @sophiarose I appreciate your reply to @dbmenger about your difficulties with Lanreotide and Octreotide. It...
https://connect.mayoclinic.org/comment/1249618/
My husband started with emboliztion but I have read that PRRT is being considered as a...
https://connect.mayoclinic.org/comment/1087600/
@mieczyslaw @californiazebra Good morning. Like Mieczyslaw, I have the same diagnosis and am also taking Sandostatin...
https://connect.mayoclinic.org/comment/962656/
Hi @pattirushing It's a little bit hard for me to single out all the octreotide side...
https://connect.mayoclinic.org/comment/838730/
I was diagnosed in April 2002 and have had monthly Sandostatin injections starting in 2008 and...
https://connect.mayoclinic.org/comment/90133/
Lots of variety for you. Interesting (and good) that all your nodules are in one lung....
https://connect.mayoclinic.org/comment/1229577/
@markmark007 Thank you for your prompt reply. Wonder if PRRT is the first treatment option prescribed...
https://connect.mayoclinic.org/comment/968905/
@siluka Thank you this update too. I am going to go over everything again after the...
https://connect.mayoclinic.org/comment/1433166/
Great! It sounds like you've been doing your research. Please keep us posted. I'd love to...
https://connect.mayoclinic.org/comment/838724/
@cmc188 I don't blame you for not wanting side effects without any benefit. I have had...
https://connect.mayoclinic.org/comment/1206123/
Yes; fatty liver showed up on scans/labs following cytoreductive/debulking surgery for GI mets & now on...
https://connect.mayoclinic.org/comment/1377451/
Was there an actual test for DIPNECH? My doctor wants me to start taking Octreotide. Can...
https://connect.mayoclinic.org/comment/1539471/
@ggiinnaa You'll enjoy life a lot more without the chronic cough. Ask about octreotide injections. Life...
https://connect.mayoclinic.org/comment/1264531/
I have had four rounds of Lutathera. I continue to be on an injection of Lanreotide...
https://connect.mayoclinic.org/comment/806746/
@sophiarose I’m sorry you’re having such a rough time with treatment. I have been taking the...
https://connect.mayoclinic.org/comment/1128152/
Hello @pattirushing I'm glad to hear that you have completed the initial treatment for the lung...
https://connect.mayoclinic.org/comment/847375/
Thank you @hopeful33250, it is much appreciated. She has had a CT scan and a Tektrotyd...
https://connect.mayoclinic.org/comment/749330/
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