Neuroendocrine Tumors (NETs): Discussions | Page 49

After 2 yrs of intermittent diarrhea, I was diagnosed with NET around Dec 1. It probably...

https://connect.mayoclinic.org/comment/1075079/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2024

Do any of you have pain with NET liver metastasis? I’ve been living with them for...

https://connect.mayoclinic.org/comment/937378/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

@arnana54, welcome. Carcinoid tumors are slow growing neuroendocrine tumors. If they spread it is most typically...

https://connect.mayoclinic.org/comment/794083/

Discussion: Carcinoid Syndrome: Can it spread to the head?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2023

I had Octreotide in the hospital for almost two weeks. And it sounds like I maybe...

https://connect.mayoclinic.org/comment/1340935/

Discussion: 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4 10:40am

Thank you so much for responding! Whatever you feel you willing to share around the decision...

https://connect.mayoclinic.org/comment/949287/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2023

I was diagnosed with Neuroendocrine tumors in my liver and small intestines back in December 2022....

https://connect.mayoclinic.org/comment/870969/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2023

Whatever the findings are, I had the same feeling when I went to Mayo in Rochester...

https://connect.mayoclinic.org/comment/837997/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2023

Hello @sophiarose, I am glad that you posted about your concerns. We have one member, @trivia,...

https://connect.mayoclinic.org/comment/795430/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Dear all, I was diagnosed with NET in 2017. Low grade. Non functional and asymptomatic. Until...

https://connect.mayoclinic.org/comment/755918/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

Hello @cu2 We have some other members who have discussed liver tumors related to NETs. I'm...

https://connect.mayoclinic.org/comment/739629/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 20, 2022

I should mention that my primary (origin) started in the small bowel and metastasized into my...

https://connect.mayoclinic.org/comment/1227757/

Discussion: Histotripsy near St. Louis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 1:21pm

Hello. My thoughts are with you. My husband has had 3 of 4 lutathera treatments (PRRT)...

https://connect.mayoclinic.org/comment/1074467/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2024

@cewald62, my wife has NET in the liver still after finding the primary tumor on the...

https://connect.mayoclinic.org/comment/1146827/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2024

I had Whipple procedure in October of 2024 . I caught the cancer early stage 1...

https://connect.mayoclinic.org/comment/1226344/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31 1:54pm

@splendrous: I was in this situation last June (2024) - small intestine/stomach primary with liver mets…...

https://connect.mayoclinic.org/comment/1364348/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5 2:15pm

Hi @millds, thank you for being so willing to share with @kim1965 by email. It's best...

https://connect.mayoclinic.org/comment/949985/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2023

I went through that surgery ( and hysterectomy at the same time due to endometrial cancer)....

https://connect.mayoclinic.org/comment/846750/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

My husband had an embolization on his liver and it's almost 2 weeks, he's in alot...

https://connect.mayoclinic.org/comment/787279/

Discussion: NETs what to eat? What to avoid?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2022

@blee123: As you are aware, NET patients do not react the same to treatments; but my...

https://connect.mayoclinic.org/comment/1384449/

Discussion: Questions for surgeon-considerations choosing PRRT or surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1 3:46pm

Thank you. The IR department didn’t even leave me a phone number to call. I finally...

https://connect.mayoclinic.org/comment/1334824/

Discussion: Severe pain after stage2 y90 treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25 10:22am

Neuroendocrine Tumors (NETs) Support Group