Neuroendocrine Tumors (NETs): Discussions | Page 49

Hi Jlu, So how was your 1st Lutathera treatment? Any side affects? My hubs had his...

https://connect.mayoclinic.org/comment/898367/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

I had surgery in 2016 (8-years ago) to remove tumor / mass at appendix and five...

https://connect.mayoclinic.org/comment/1142526/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16 3:16pm

It great your doctor reviewed the options you have, but the doctor wants you to choose?...

https://connect.mayoclinic.org/comment/899570/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2023

Hi @donnarushing55 I’m sorry you’re going through this. Even if you were comfortable with a specialists...

https://connect.mayoclinic.org/comment/1000560/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20 10:15am

My sister returned to hospital on Tuesday with severe chest pain . They were afraid of...

https://connect.mayoclinic.org/comment/1021153/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 23 11:40am

Greetings! Thanks for the post. I am happy to connect with you. I have been dealing...

https://connect.mayoclinic.org/comment/799602/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

Hi I feel every bite of your trails I traveled almost the same road , misdiagnosed...

https://connect.mayoclinic.org/comment/792778/

Discussion: Frustrated with the medical establishment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2023

Hi Colleen, I've had 2 gallium 68 PET scans, one before my right hemicolectomy surgery in...

https://connect.mayoclinic.org/comment/637399/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2021

Hello @ beaglebass! My pNET is functioning, so my story may not be too close to...

https://connect.mayoclinic.org/comment/1065411/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10 10:46am

My primary was a tumor wrapped around my small intestine, discovered in 2007. I have been...

https://connect.mayoclinic.org/comment/898391/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

Hello, mamandneuroendocrine! I was in a similar situation. My pNET was discovered accidentally during a stroke...

https://connect.mayoclinic.org/comment/953478/

Discussion: Metastatic NeuroEndocrine Grade 3 - ki 80% -

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

Hello everyone 6/28/22 I have been diagnosed with pancreatic cancer stage 4... My stomach kept burning...

https://connect.mayoclinic.org/comment/799155/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2023

I was diagnosed with Pancreatic Acinar Cell Carcinoma in June 2012 with the tumor 4cmx3cmx3cm on...

https://connect.mayoclinic.org/comment/1059508/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30 6:50am

I, experienced weight gain, depression, and muscle soreness. I was also lethargic, often lacking the energy...

https://connect.mayoclinic.org/comment/805097/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Thank you Giness for your kind words. Yes, it is scary esp when there is no...

https://connect.mayoclinic.org/comment/764699/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

Hello @christine714 I would like to join @colleenyoung and @sophiarose in welcoming you to Connect. I...

https://connect.mayoclinic.org/comment/750331/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2022

Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder,...

https://connect.mayoclinic.org/comment/137542/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

The first embolization I felt nothing and the doctor told me he was worried I’d be...

https://connect.mayoclinic.org/comment/1048341/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10 9:42am

Going for my 3rd injection of 120 mg Lanreotide next week. No facial or lip sores....

https://connect.mayoclinic.org/comment/1119417/

Discussion: Facial and lip sores from lanreotide injections for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7 10:01am

I understand that metastasis means it's spread. What bothers me is his initial oncologist told him...

https://connect.mayoclinic.org/comment/762162/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2022

Neuroendocrine Tumors (NETs) Support Group