Neuroendocrine Tumors (NETs): Discussions | Page 43

Sophiarose, the radiologist and doctors want most of the Octreotide or Lanriotide out of your system...

https://connect.mayoclinic.org/comment/1169494/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Splendrous, I've been on Octrotide injections monthly since April 2018, a month after my first surgery...

https://connect.mayoclinic.org/comment/1208675/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 10:09pm

My husband has NETS stage 4 with tumors throughout his skull and body. One tumor was...

https://connect.mayoclinic.org/comment/1396598/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19 10:41am

My partner diagnosed with CRC 6 mths ago. Had surgery but METs to multiple bone lesions....

https://connect.mayoclinic.org/comment/1386977/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4 10:12pm

We've posted the story before just to reiterate: My husband has stage 4 NETS with tumors...

https://connect.mayoclinic.org/comment/1393120/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 9:41pm

Hola, han pasado 7 semanas de la última aplicación de lutecio y las crisis carcinoides si...

https://connect.mayoclinic.org/comment/616929/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2021

I have neuroendrocrine tumors in my liver.six years ago it was near my bowels. Then the...

https://connect.mayoclinic.org/comment/1109539/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2024

My husband was switched from Octreotide to Lanreoride 4 mos. ago & he said he has...

https://connect.mayoclinic.org/comment/1060449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

Yes, unfortunately our facility couldn’t get me in until July 19th. I then get my lenreotide...

https://connect.mayoclinic.org/comment/881999/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

So glad to find this! Had NET surgery small intestine and mesentery in 2015 after diagnosis...

https://connect.mayoclinic.org/comment/827137/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

My experience is that it’s hard to say if my diarrhea is from the cancer, the...

https://connect.mayoclinic.org/comment/1219013/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 12:34pm

My husband has been having Lanriotide injections every 28 days for 2 1/2 years. He is...

https://connect.mayoclinic.org/comment/1355375/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24 11:40am

I had two lantreotide shots. They controlled my hot flashes and made me feel human but...

https://connect.mayoclinic.org/comment/1347584/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 13 8:09pm

I also had a tumor on my Ilium which I chose to have removed with surgery....

https://connect.mayoclinic.org/comment/1002930/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24, 2024

Hi @Jestjohn, I have NET small intestine primary tumor near pyloric channel & duodenum that was...

https://connect.mayoclinic.org/comment/981222/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2023

I was diagnosed with Neuroendocrine tumors in my liver and small intestines back in December 2022....

https://connect.mayoclinic.org/comment/870969/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2023

This has been a wonderful discussion. I have needed this site for a while. Hard headed...

https://connect.mayoclinic.org/comment/1176960/

Discussion: Disability and Medicare: Has anyone qualified for Medicare under 65?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2024

Hi, I’m Alina from Sherman Oaks in the San Fernando Valley near LA. After two years...

https://connect.mayoclinic.org/comment/1170361/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2024

Nana120, welcome to the Mayo Connect online support group for Neuroendocrine tumor patients. I hope you’ll...

https://connect.mayoclinic.org/comment/898735/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

I have 20 to 30 Mets to the liver. Have done PRRT, lanriotide, and captem. All...

https://connect.mayoclinic.org/comment/1336778/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28 5:21am

Neuroendocrine Tumors (NETs) Support Group