Neuroendocrine Tumors (NETs) Support Group

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Hello @merenyc and welcome to the NET support group on Mayo Connect. There are other members...

https://connect.mayoclinic.org/comment/881988/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

I also have tumor metastases on my spine and ribs, unknown primary. Diagnosed Jan 2020, multiple...

https://connect.mayoclinic.org/comment/810800/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Well had the surgery. I can’t lie anything with the lungs is rough. I’ve been better...

https://connect.mayoclinic.org/comment/800389/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

I had a really hard time with recurrance with mets to my lungs, andfor the first...

https://connect.mayoclinic.org/comment/711752/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: May 27, 2022

Teresa, I did have a PET scan of the lungs and a biopsy of the largest...

https://connect.mayoclinic.org/comment/657598/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2021

On me, they only biopsied one. I have no idea how or when they even found...

https://connect.mayoclinic.org/comment/1449386/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2025

@tomrennie I saw the surgeon today, and he now thinks because I have a small ribcage,...

https://connect.mayoclinic.org/comment/1431012/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In...

https://connect.mayoclinic.org/comment/1351342/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2025

Thank you its all so new to me all these medical terms😀because I'm in the UK...

https://connect.mayoclinic.org/comment/1330748/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2025

Lungs, inoperable, recent chest x ray picked up something on thyroid. I will have a Pet...

https://connect.mayoclinic.org/comment/1321199/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2025

I wish I could say something really positive to help you. I am just not sure...

https://connect.mayoclinic.org/comment/1287239/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

I too have small carcinoids in my lungs. In August 2022 I had my right upper...

https://connect.mayoclinic.org/comment/1264503/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2025

Hello, thanks so much for your reply. I will research more about the scan you recommend...

https://connect.mayoclinic.org/comment/1219810/

Discussion: Liver masses found on CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2025

They are flushing versus hot flashes. Flushing just turns you red, but you do not sweat....

https://connect.mayoclinic.org/comment/1203258/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2025

Hello @rachismarie, I'm glad that you found Mayo Connect. We have a number of members who...

https://connect.mayoclinic.org/comment/1181711/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

As a GI nurse for 32 years, now retired. I can honestly say that no amount...

https://connect.mayoclinic.org/comment/1175814/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2024

Hello Mary, I'm Roger, 82 year old male, married 63 years and diagnosed with Merkel in...

https://connect.mayoclinic.org/comment/1159889/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 20, 2024

After 8 weeks of last PRRT treatment, Ga-68 DOTATATE PET/CT was done on Jan 29, 2024,...

https://connect.mayoclinic.org/comment/1007463/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2024

One thing to ask is about the coughing and breathing exercises you must do after surgery....

https://connect.mayoclinic.org/comment/990103/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2, 2024

@pamelasantacruz I'm just over 5 years now since diagnosis, chemo, radiation, and two surgeries (lumpectomy for...

https://connect.mayoclinic.org/comment/968340/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2023

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