Neuroendocrine Tumors (NETs): Discussions | Page 4

Hello My wife has had a good, sustained response to captem for her grade 2 stage...

https://connect.mayoclinic.org/comment/1358197/

Discussion: Unsure , questions on what to do

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 8:13am

PNET. Non functioning. Gr 1. It was blocking the pancreatic duct and 1/2 my pancreas was...

https://connect.mayoclinic.org/comment/1340053/

Discussion: 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 2 9:58pm

Correct. Thanks for your reply! My NET team is not recommending a EUS biopsy for my...

https://connect.mayoclinic.org/comment/905588/

Discussion: 1.7 cm Pnet recently found. Is a biopsy pretty standard protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2023

Dear spinhead, I hope that you are doing well. I learned a lot from your post....

https://connect.mayoclinic.org/comment/1392691/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 7:25am

I am aware. My husband died from pancreatic cancer (adenocarcinoma) the aggressive pdac . Our son...

https://connect.mayoclinic.org/comment/1381475/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28 4:02pm

I have Pnet with 23 tumors on my liver, and else where. They are looking at...

https://connect.mayoclinic.org/comment/712279/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2022

Dear Mike I was diagnosed with PNET on my pancreas on March 21, 2023. My PNET...

https://connect.mayoclinic.org/comment/880451/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2023

I have a pNET. I have never taken creon. I was on CAPTEM for 12 months...

https://connect.mayoclinic.org/comment/950937/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 20, 2023

I found out the PNET (pancreatic neuroendocrine tumor) on the head of my pancreas last year...

https://connect.mayoclinic.org/comment/1001655/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2024

I have a PNET which showed up on a GA68 DOTATATE PET. I now have a...

https://connect.mayoclinic.org/comment/911927/

Discussion: FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

The lanreotide injections did not do what the oncologist had hoped for my sister. They are...

https://connect.mayoclinic.org/comment/1098968/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2024

https://connect.mayoclinic.org/comment/951274/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

Hello @jadedprincess I appreciate you sharing your experience with PNET. I'm glad to hear that you...

https://connect.mayoclinic.org/comment/711987/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2022

Yes, I have elevated blood sugar and hair thinning as a side effect of Lanreotide treatment....

https://connect.mayoclinic.org/comment/1208239/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 9:37am

Hello, Anthony (@sturns). I would like to join Colleen (@colleenyoung) in welcoming you to Connect. It...

https://connect.mayoclinic.org/comment/718467/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Jun 17, 2022

I have been on Lanreotide ( every 4 weeks) for 2+ yrs now for pNET with...

https://connect.mayoclinic.org/comment/1279952/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 9:41am

Hello @titansmistress, I see that this is your first post on Connect. I'm glad that you...

https://connect.mayoclinic.org/comment/176686/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2018

@keisham808 - I had a large mass in the pancreas, that was discovered on a CT...

https://connect.mayoclinic.org/comment/865736/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2023

I have been diagnosed with 16 cm PNET in December 2022.. Discovered accidentally during CT of...

https://connect.mayoclinic.org/comment/798928/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2023

@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...

https://connect.mayoclinic.org/comment/1304347/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14 8:48pm

Neuroendocrine Tumors (NETs) Support Group