Neuroendocrine Tumors (NETs): Discussions | Page 33

I just had scans on Monday. Everything is stable, and they even noted some shrinkage in...

https://connect.mayoclinic.org/comment/1123512/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14, 2024

Allow me to be the acronym buster for this discussion: - SSA = Somatostatin analogue https://www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets/treatment/somatostatin-analogues/what-are...

https://connect.mayoclinic.org/comment/1001311/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2024

I was diagnosed with NET’s December, 2022. Started the same, small intestines and spread to the...

https://connect.mayoclinic.org/comment/842035/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

I am in Australia and waiting to see what the next step for me (lesion liver)...

https://connect.mayoclinic.org/comment/1089295/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2024

I totally agree with what you are saying! My liver enzymes (ALT, AST) are almost double...

https://connect.mayoclinic.org/comment/1009304/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2024

I had surgery in 2018 for t-10 lesion but since have had cyberknife on additional spine...

https://connect.mayoclinic.org/comment/952169/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

I go to the Mayo Clinic 2-4 times a year for followup. I also have carcinoid...

https://connect.mayoclinic.org/comment/85558/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

When my cancer was found, and they removed the tumor in my ileum, this is what...

https://connect.mayoclinic.org/comment/1285797/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20 6:05am

I think foods high in "amines" can trigger carcinoid syndrome or similar effects. I have a...

https://connect.mayoclinic.org/comment/1231773/

Discussion: How does Alcohol use affect Liver NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 4:59pm

Hi all, I’m new to this forum and this condition. Started with GI pain and inconsistent...

https://connect.mayoclinic.org/comment/876745/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2023

You're very welcome. Like liver transplantation nets, especially high grade NEC really requires a specialist. If...

https://connect.mayoclinic.org/comment/1328792/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 11:20pm

How well are you doing on the Cap/Tem? Her oncologist said that it will make her...

https://connect.mayoclinic.org/comment/880790/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

Thank you. I'm so new to this. Saw oncologist for first time this afternoon. They're sending...

https://connect.mayoclinic.org/comment/796316/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

tks for yr reply my husband is treated since 2020 with Octeotride injection, once a month...

https://connect.mayoclinic.org/comment/1317332/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31 1:18pm

I have multiple liver lessions too that have different characteristics, I’m not comfortable about it especially...

https://connect.mayoclinic.org/comment/829662/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Well I got my news early and the 2 cm spot on my liver is indeed...

https://connect.mayoclinic.org/comment/783362/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2022

Hi, I have Landrotide injection every month from August /2022, only skip it when I have...

https://connect.mayoclinic.org/comment/1302197/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12 2:23am

Hi. I have a loved one who is dealing stage IV liver tumor. They're in so...

https://connect.mayoclinic.org/comment/1198390/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Dec 27, 2024

Well differentiated, grade 2, neuroendocrine tumors in tail of pancreas and spread to some lobes of...

https://connect.mayoclinic.org/comment/1265518/

Discussion: Well differentiated Neuroendocrine Grade 2 in rectum

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24 8:49am

I am curious as to your symptoms. I have stage 4?carcinoid metastasis in the liver and...

https://connect.mayoclinic.org/comment/1266749/

Discussion: Grade 3, poorly differentiated duodenal NET metastasized to liver-

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 4:45pm

Neuroendocrine Tumors (NETs) Support Group