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Hello! I have been diagnosed with pNET similarly (15×4.9×16cm) at the same time as endometrial cancer...
https://connect.mayoclinic.org/comment/1429987/
Last April he had a ct scan for stomach pain. Was then diagnosed with stage 4...
https://connect.mayoclinic.org/comment/1219890/
Hello, I just finished my third round of Lutathera treatment. Each treatment takes 5-6 hrs, no...
https://connect.mayoclinic.org/comment/942546/
Hello @tomatlanta, I appreciate you sharing about your wife's journey with a NETs diagnosis. Everyone's journey...
https://connect.mayoclinic.org/comment/877795/
I did the watch and wait for a small (1cm) PNET on the head of my...
https://connect.mayoclinic.org/comment/815227/
Hi GAP, Last May 2022 I had a lung NET removed with the right upper lobe...
https://connect.mayoclinic.org/comment/802258/
@hopeful33250 Results from my Dotatate Scan are back. It doesn't seem so good but it probably...
https://connect.mayoclinic.org/comment/1539723/
@billbo: I have Neuroendocrine cancer primary tumor small intestine (duodenum junction) that metastasized to liver. When...
https://connect.mayoclinic.org/comment/1553235/
Good morning I have NETS in my small bowels and Liver, also with carcinoid syndrome, diarrhea,...
https://connect.mayoclinic.org/comment/1507896/
@harley4650 Sorry, the links somehow combined so I'll try again: West coast hospitals with histotripsy https://blog.providence.org/blog/revolutionary-procedure-brings-new-hope-to-liver-cancer-patients-at-providence-providence-swedish...
https://connect.mayoclinic.org/comment/1047150/
Hi @lindabees , Thanks for your encouraging story. What did the second doctor do to erase...
https://connect.mayoclinic.org/comment/1003894/
This is the protocol. Do the chemo meds (captem) so it shrinks the tumor then to...
https://connect.mayoclinic.org/comment/1321086/
Hi! I live in Calgary and I have Stage 4 pNET with overwhelming liver mets. My...
https://connect.mayoclinic.org/comment/1204588/
I have metastatic insulinoma. Mets to the liver. PRRT has not been part of my treatment...
https://connect.mayoclinic.org/comment/1087158/
Hello @trivia I appreciate you describing Bland Liver Embolization. I had not heard of this procedure...
https://connect.mayoclinic.org/comment/768682/
@katydurgin Hello so sorry you’re going thru this. My MEN1 test came back negative I figure...
https://connect.mayoclinic.org/comment/1491345/
In May of 2024 I had 5 tumors worked on (in my liver) (I was told...
https://connect.mayoclinic.org/comment/1195158/
@hopeful33250 Hello, I’m still in testing phase. I have four lesions on my liver, and some...
https://connect.mayoclinic.org/comment/1415252/
@jiamgmx24: RE: Histrotripsy Update: Seattle WA Swedish Hospital has a Histrotripsy program with NET Liver patients....
https://connect.mayoclinic.org/comment/1178965/
My husband has had the insulinoma metastasized to liver since 2022. He also couldn’t do the...
https://connect.mayoclinic.org/comment/1144312/
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