Neuroendocrine Tumors (NETs): Discussions | Page 33

Wow, hang in there. My situation was that i had a blockage caused by the SINET....

https://connect.mayoclinic.org/comment/919988/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2023

My husband did great with the PRRT 4 treatments. He never had any scans orMRI to...

https://connect.mayoclinic.org/comment/1048898/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11 9:41am

@arnana54, welcome. Carcinoid tumors are slow growing neuroendocrine tumors. If they spread it is most typically...

https://connect.mayoclinic.org/comment/794083/

Discussion: Carcinoid Syndrome: Can it spread to the head?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2023

Do any of you have pain with NET liver metastasis? I’ve been living with them for...

https://connect.mayoclinic.org/comment/937378/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

After 2 yrs of intermittent diarrhea, I was diagnosed with NET around Dec 1. It probably...

https://connect.mayoclinic.org/comment/1075079/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 11:51am

I had my first surgery 8 months ago. My Oncologist was busy so I spoke to...

https://connect.mayoclinic.org/comment/787564/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

My dear friend has had the 4 PRRT. She was ready to quit after 3 because...

https://connect.mayoclinic.org/comment/732819/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2022

My dad has high grade NEC primary pancreas with liver mets. Showed progression on carbo/etopo and...

https://connect.mayoclinic.org/comment/866565/

Discussion: Immunotherapy (Ipilimumab & Nivolumab) for NETs: Any experiences?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Hi! Thank you for sending the article, this is the one I had read and found...

https://connect.mayoclinic.org/comment/948561/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2023

I never got the second vaccines. I’m doing ok. Lately being getting a lot of abdominal...

https://connect.mayoclinic.org/comment/951591/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

Dear all, I was diagnosed with NET in 2017. Low grade. Non functional and asymptomatic. Until...

https://connect.mayoclinic.org/comment/755918/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

Hello @cu2 We have some other members who have discussed liver tumors related to NETs. I'm...

https://connect.mayoclinic.org/comment/739629/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 20, 2022

Hello @sophiarose, I am glad that you posted about your concerns. We have one member, @trivia,...

https://connect.mayoclinic.org/comment/795430/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Whatever the findings are, I had the same feeling when I went to Mayo in Rochester...

https://connect.mayoclinic.org/comment/837997/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2023

I was diagnosed with Neuroendocrine tumors in my liver and small intestines back in December 2022....

https://connect.mayoclinic.org/comment/870969/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2023

Thank you so much for responding! Whatever you feel you willing to share around the decision...

https://connect.mayoclinic.org/comment/949287/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2023

Hello. My thoughts are with you. My husband has had 3 of 4 lutathera treatments (PRRT)...

https://connect.mayoclinic.org/comment/1074467/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 12:59pm

My husband had an embolization on his liver and it's almost 2 weeks, he's in alot...

https://connect.mayoclinic.org/comment/787279/

Discussion: NETs what to eat? What to avoid?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2022

I went through that surgery ( and hysterectomy at the same time due to endometrial cancer)....

https://connect.mayoclinic.org/comment/846750/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Hi @millds, thank you for being so willing to share with @kim1965 by email. It's best...

https://connect.mayoclinic.org/comment/949985/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2023

Neuroendocrine Tumors (NETs) Support Group