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Comments (932)
Hello all! New to the group. Diagnosed with PNET that have metastasized to liver, bone, lung....
https://connect.mayoclinic.org/comment/890587/
I have found that shots go easier when I stand up and elevate the leg on...
https://connect.mayoclinic.org/comment/882646/
@fae As a fellow Wisconsin Badger, my wife has dealt with the past 9 months, similar...
https://connect.mayoclinic.org/comment/827529/
Hello fellow NET people. I am posting this as an update to my journey. After 9...
https://connect.mayoclinic.org/comment/1120051/
You have been dealing with it longer than my wife has and seem to have a...
https://connect.mayoclinic.org/comment/867263/
My story is long and complicated! Symptoms for a couple years was diarrhea and gerd. Dr...
https://connect.mayoclinic.org/comment/1283729/
Surgery performed last Friday. A 30 cm scar from below left chest to belly button Surgeon...
https://connect.mayoclinic.org/comment/1040863/
Just to update my ongoing process: I am continuing to lose weight, so I tried to...
https://connect.mayoclinic.org/comment/918789/
Hello carm1011! I have the same diagnosis - pNET well functioning, Grade 2, Stage 4 with...
https://connect.mayoclinic.org/comment/891762/
Definitely identify with the private moments of emotions. My wife is a natural born worrier.. She...
https://connect.mayoclinic.org/comment/1192097/
Hopefully there is someone out there still monitoring this. I have chronic NET that started in...
https://connect.mayoclinic.org/comment/1171106/
I was diagnosed 17 months ago with a metastatic stage 4, grade 2-3 small intestinal NET....
https://connect.mayoclinic.org/comment/1165976/
I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine...
https://connect.mayoclinic.org/comment/1147007/
@michellesimpson10 My wife received a diagnosis of mass of pancreas near tail of pancreas, and too...
https://connect.mayoclinic.org/comment/845638/
I mand hopes et with an oncologist yesterday. My report: Small tumors in pelvic/abdominal region and...
https://connect.mayoclinic.org/comment/812958/
@hopeful33250 I saw a surgeon who is part of the multidisciplinary NET team of specialists. Surgery...
https://connect.mayoclinic.org/comment/1554535/
@pete1962 Sorry I didn’t see your post until just recently. My wife had primary NET on...
https://connect.mayoclinic.org/comment/832543/
@lns83 Currently still on Ocreotide (2 shots every 28 days) ( I also have carcinoid syndrome...
https://connect.mayoclinic.org/comment/1414321/
@tomrennie Not only 'misreads', but 'wrong comments' are not uncommon amongst the professionals. I recently arrived...
https://connect.mayoclinic.org/comment/1408779/
Hello! I have pNET, diagnosed in December 2022 (started losing weight and had a stroke). During...
https://connect.mayoclinic.org/comment/1285736/
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