Neuroendocrine Tumors (NETs): Discussions | Page 28

I'm not sure when I have my next scan. In fact, all I have had is...

https://connect.mayoclinic.org/comment/1228005/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 6:38pm

@monroeed- Good morning Monroe. What a neat name! Is it a family name? I felt the...

https://connect.mayoclinic.org/comment/284803/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 26, 2019

Hello @spaztwobe and welcome to the NETs support group. I see that @dbamos1945 and @tstern7 have...

https://connect.mayoclinic.org/comment/1315211/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 6:14pm

Hi @chana Sorry to hear about your new diagnosis. I see you are seeking treatment in...

https://connect.mayoclinic.org/comment/886357/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2023

Are you taking a treatment? So interesting, these various symptoms, like GERD! I had it for...

https://connect.mayoclinic.org/comment/1330063/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 4:06pm

Hello sorry to hear about your diagnosis but glad you found this forum. I was diagnosed...

https://connect.mayoclinic.org/comment/851412/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Hi @pammy229 I’m glad you decided to go to Mayo and will undoubtedly be hooked up...

https://connect.mayoclinic.org/comment/1198299/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Hi @mir123 Thanks for sharing your info. I understand there is little historical info to go...

https://connect.mayoclinic.org/comment/909352/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2023

I hope your issues resolve quickly and the plan goes well. This past year I've had...

https://connect.mayoclinic.org/comment/749896/

Discussion: Intestinal Blockage with NETs: Anyone else?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

My husband was diagnosed with stage 3B merkel cell on his nose .....they removed it in...

https://connect.mayoclinic.org/comment/1082712/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jun 7, 2024

Last week was diagnosed with Neuro endocrine tumor "nodules.". It is referred as! Biopsy of carcinoid,...

https://connect.mayoclinic.org/comment/1021964/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2024

HI @lupitaromero Hope all is well with peace in your life. I was diagnosed with large...

https://connect.mayoclinic.org/comment/854646/

Discussion: Alguien ha tenido metastasis en ganglios? Metastases in lymph nodes

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

@rww1979, Joe Tippens protocol appears again and again in forums and social media. It is important...

https://connect.mayoclinic.org/comment/1295985/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 6:27pm

I have lung NETs while headaches can be a symptom for me I believe my headaches...

https://connect.mayoclinic.org/comment/790348/

Discussion: Neuroendocrine tumor in small bowel with lymph nodes involved

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 30, 2022

Hello @gapsc and welcome to Mayo Connect I am Teresa, a volunteer mentor with Connect and...

https://connect.mayoclinic.org/comment/134268/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2018

Sorry to hear of all your challenges. It's difficult when they are coming from all directions....

https://connect.mayoclinic.org/comment/1228165/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 11:55pm

Hi @grec I shared my details earlier in the thread if you want to scroll back....

https://connect.mayoclinic.org/comment/1048486/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

Thank you for the kind words and advice. I can certainly set up a group chat...

https://connect.mayoclinic.org/comment/756081/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

The biopsy on it was completed 2 years ago before my hysterectomy, the Dr. who did...

https://connect.mayoclinic.org/comment/1078008/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2024

Hello, I am new to the site and I was diagnosed with a NET in the...

https://connect.mayoclinic.org/comment/916801/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2023

Neuroendocrine Tumors (NETs) Support Group