Neuroendocrine Tumors (NETs): Discussions | Page 22

Big hugs to you. I’m glad you are feeling better and have had some positive outcomes...

https://connect.mayoclinic.org/comment/846916/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Hey Frogsong, They hadn’t heard back from the specialist yet, so they decided not to do...

https://connect.mayoclinic.org/comment/847612/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

I was diagnosed with NET’s December, 2022. Started the same, small intestines and spread to the...

https://connect.mayoclinic.org/comment/842035/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

Allow me to be the acronym buster for this discussion: - SSA = Somatostatin analogue https://www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets/treatment/somatostatin-analogues/what-are...

https://connect.mayoclinic.org/comment/1001311/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21 3:09pm

I just had scans on Monday. Everything is stable, and they even noted some shrinkage in...

https://connect.mayoclinic.org/comment/1123512/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14 10:03am

The strange thing is after my liver resection was done in 2019 I no longer had...

https://connect.mayoclinic.org/comment/1004730/

Discussion: Affinitor - Pneumonitis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27 11:22am

Hi all, I’m new to this forum and this condition. Started with GI pain and inconsistent...

https://connect.mayoclinic.org/comment/876745/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2023

Many thanks for your response. I offer the following brief summary of Sharon's NET history. 1....

https://connect.mayoclinic.org/comment/744920/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2022

Thank you. I'm so new to this. Saw oncologist for first time this afternoon. They're sending...

https://connect.mayoclinic.org/comment/796316/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

How well are you doing on the Cap/Tem? Her oncologist said that it will make her...

https://connect.mayoclinic.org/comment/880790/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

I have multiple liver lessions too that have different characteristics, I’m not comfortable about it especially...

https://connect.mayoclinic.org/comment/829662/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

I was diagnosed in 2019 with NETS of the liver my tumors were extremely large and...

https://connect.mayoclinic.org/comment/1148532/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28 8:04am

Thank you all for your input of PRRT experiences. 10/1 I receive 3rd infusion of Lutathera...

https://connect.mayoclinic.org/comment/1143557/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 1:48pm

The oncologist feels that the Zometa will strengthen the areas in my spine and pelvis. One...

https://connect.mayoclinic.org/comment/1143611/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 3:39pm

I have pancreas to liver NET. The chemotherapy drug I was on was Flofox and a...

https://connect.mayoclinic.org/comment/825587/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2023

That is great news Diane, I won’t know anything more until I have a biopsy in...

https://connect.mayoclinic.org/comment/664858/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2021

Well I got my news early and the 2 cm spot on my liver is indeed...

https://connect.mayoclinic.org/comment/783362/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2022

I had both sides of my liver done I found eating small meals multiple times a...

https://connect.mayoclinic.org/comment/977500/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

P.S. I was given 3 to 5 years initially. A lot of what oncologists say about...

https://connect.mayoclinic.org/comment/772405/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

I go to the Mayo Clinic 2-4 times a year for followup. I also have carcinoid...

https://connect.mayoclinic.org/comment/85558/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

Neuroendocrine Tumors (NETs) Support Group