Neuroendocrine Tumors (NETs) Support Group | Page 2

@pantfan I don't have a lung neuroendocrine tumor. I have a pancreatic NET that has spread...

https://connect.mayoclinic.org/comment/1589884/

Discussion: Anyone with lung NETs experienced significant weight loss?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3 1:02pm

Hello everyone, I was recently diagnosed with a neuroendocrine tumor (NET) in the head of my...

https://connect.mayoclinic.org/comment/1583897/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 1:43pm

Hello @michaela258, and welcome to the NETs support group on Mayo Clinic Connect. I'm glad that...

https://connect.mayoclinic.org/comment/1583949/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 3:14pm

I did have a PET scan prior to surgery to confirm there were no other tumors...

https://connect.mayoclinic.org/comment/1585565/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 5:27pm

I'm so sorry your sister has to go through this. My husband was diagnosed with stage...

https://connect.mayoclinic.org/comment/1538756/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 11:46am

@matt76 I have been there. I got progressively sicker over three years and lost over 100...

https://connect.mayoclinic.org/comment/1541843/

Discussion: Neuroendocrine tumors in small bowel, omentum, on ovaries, appendix

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3 9:32am

@fim we didn't think mine was quite carcinoid (it was a non-functioning neuroendocrine tumor, measiring about...

https://connect.mayoclinic.org/comment/1554402/

Discussion: Anyone have pancreatic neuroendocrine tumors with carcinoid syndrome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 11:55am

It's so hard to hear that diagnosis. I'm sure you're feeling scared and confused which is...

https://connect.mayoclinic.org/comment/1547882/

Discussion: New to NET: Not sure what to expect from here

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11 10:44am

@lisaonthegoco I'm so sorry that you've had to deal with this for so long and told...

https://connect.mayoclinic.org/comment/1556870/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 12:45pm

Hi hopefully I'm posting correctly, have eye issues so usually just a casual observer. First I...

https://connect.mayoclinic.org/comment/1564150/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1 12:15pm

@hopeful33250 Teresa - THANK you for posting the link to the Neuroendocrine Research Foundation (NETRF)! The...

https://connect.mayoclinic.org/comment/1565366/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 8:57am

@nannybb No worries -- it never crossed my mind that there was any judging. As for...

https://connect.mayoclinic.org/comment/1572699/

Discussion: Why do I get so tired so easy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12 7:14am

@seesspotz Hi and welcome to Mayo Connect. I was diagnosed with a pancreatic NET that has...

https://connect.mayoclinic.org/comment/1552948/

Discussion: Liver Mets treatment options for carcinoid NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17 2:48pm

Hello @kathyfujii and welcome to the NETs support group on Mayo Clinic Connect. We do have...

https://connect.mayoclinic.org/comment/1548243/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11 7:54pm

@dadcue Hello Mike, Your imaging sounds a lot like mine from several months ago. If you...

https://connect.mayoclinic.org/comment/1540119/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 7:21am

@laree I have carcinoid lung cancer. Are you speaking of pancreatic cancer? It gets confusing in...

https://connect.mayoclinic.org/comment/1541353/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 3:18pm

@kathyfujii While I had consults with Mayo Rochester,(don’t recall surgeon’s name now) And Dr. Eric Liu,...

https://connect.mayoclinic.org/comment/1555470/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20 3:32pm

I've had constant pain that one GI thought I had Celiac's. My recent CT and MRis...

https://connect.mayoclinic.org/comment/1549546/

Discussion: Anyone have pNET in pancreatic tail & had distal pancreactomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13 10:10am

@nannybb The BRCA genes are primarily thought of as breast cancer genes. They also really increase...

https://connect.mayoclinic.org/comment/1569406/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7 11:59pm

@mamajeanne I have a primary pancreatic NET with liver metastasis. Other than the abdominal pain, did...

https://connect.mayoclinic.org/comment/1569614/

Discussion: New to the group and cancer journey: Liver NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8 8:51am