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Public Support Group 460 total results
Comments (421)
I’d had GI issues for years, never mentioned it to doctors. I was diagnosed Lactose intolerance...
https://connect.mayoclinic.org/comment/303673/
@colleenyoung I had microwave ablation (heat instead of cold) on a 2.6 cm lung NET and...
https://connect.mayoclinic.org/comment/1460279/
Hello @kmcbride77, and welcome to the NETs support group on Mayo Connect. It looks like you...
https://connect.mayoclinic.org/comment/1450859/
@mhcohan NETs specialists are few and far between. I'm not sure what part of the country...
https://connect.mayoclinic.org/comment/1415817/
I can’t say for sure if NET’s cause pain but from personal experience I will say...
https://connect.mayoclinic.org/comment/1357333/
My NET was primary in lung (Jan 2023) 3 cm and metastasized to liver stage 1,...
https://connect.mayoclinic.org/comment/1350571/
That’s great it improved your allergies! In my allergy testing, it looked like I was allergic...
https://connect.mayoclinic.org/comment/1330268/
Im sorry to hear you are going through that. It is actually my brother. He had...
https://connect.mayoclinic.org/comment/1325183/
I was diagnosed with nets in April of 2020. The nets were in my right lung....
https://connect.mayoclinic.org/comment/1269123/
But what does the octreotide do to you? From what I've found when web searching, it...
https://connect.mayoclinic.org/comment/1254930/
Hi @pammy229 I’m glad you decided to go to Mayo and will undoubtedly be hooked up...
https://connect.mayoclinic.org/comment/1198299/
Thank you for responding. I had no symptoms. But I had a positive colo-guard. Then I...
https://connect.mayoclinic.org/comment/1194306/
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
Hello @netnan, had left lung NET atypical carcinoid tumor. It was a little bigger - between...
https://connect.mayoclinic.org/comment/1106611/
Most people have replied about CgA. I live in Uk and have grade 1, small bowel...
https://connect.mayoclinic.org/comment/1091150/
I joined the NET support group because my father had an intestinal carcinoid tumor; my half...
https://connect.mayoclinic.org/comment/275684/
Hello Group...Just remembered I was a member here. And yes still chugging along with 2 whoppers....
https://connect.mayoclinic.org/comment/134280/
I did 5 year watch on my lung nodules. then accidentally with through CAT scan two...
https://connect.mayoclinic.org/comment/1057169/
What is the difference with Atypical Nets. And typical? This is gig666/ have they say just...
https://connect.mayoclinic.org/comment/1029596/
My chemotherapy was difficult to deal with, it wasn’t immediate but accumulative effects were challenging. Fatigue,...
https://connect.mayoclinic.org/comment/1025991/
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