Neuroendocrine Tumors (NETs): Discussions | Page 15

Hi I was diagnosed with NET in my small intestines just like you in 2011 I...

https://connect.mayoclinic.org/comment/752699/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2022

I was diagnosed with a net tumour in my colon in 2021. This metastasized to the...

https://connect.mayoclinic.org/comment/1076135/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 7:22am

I have been with Mayo in Rochester since Feb 2020. I have grade 3 NETs in...

https://connect.mayoclinic.org/comment/765344/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2022

Hello @juandixon It has been a few weeks since your last post and I was wondering...

https://connect.mayoclinic.org/comment/814192/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

@kc43 how interesting that the initials in your mayo name of @kc43, is the exact initials...

https://connect.mayoclinic.org/comment/1110663/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23 5:39pm

I had surgery (Whipple) to remove a functioning NET from the head of my Pancreas after...

https://connect.mayoclinic.org/comment/773459/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2022

Yes...mine were found in the lesser curve of My stomach. My Gastroenterologist wants to check my...

https://connect.mayoclinic.org/comment/872777/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

My husband has Net that metastasized to his liver. We started at MGH but are currently...

https://connect.mayoclinic.org/comment/884054/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

@andy2020 My wife is also taking the Cape and Temoz, in the pill version. She has...

https://connect.mayoclinic.org/comment/810994/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Hello! I was diagnosed with pNET last december (2022). Grade 2 stage 4. Had surgery on...

https://connect.mayoclinic.org/comment/896311/

Discussion: more info on gasstric NET w/liver mets and progression of symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

I have an unknown primary They think in my small intestines but it isn’t showing on...

https://connect.mayoclinic.org/comment/862966/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2023

Sorry to hear that Delores. I was diagnosed with stage four pancreatic cancer that spread to...

https://connect.mayoclinic.org/comment/842181/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

High interest in Histotripsy so I hope patients continue to report their experiences and thoughts on...

https://connect.mayoclinic.org/comment/1173100/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: 4 days ago

Your case sounds almost like mine. My lung tumor is rarely mentioned & the focus seems...

https://connect.mayoclinic.org/comment/1056351/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24 9:20am

I’m realizing that I should have changed the title of my post rather than just adding...

https://connect.mayoclinic.org/comment/1123401/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14 8:30am

Glad to join this group. My tumor on the outside of the small intestine was found...

https://connect.mayoclinic.org/comment/886230/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2023

@hopeful33250 Hi dear Many thanks for the useful links. Appreciate your reply and your caring Actually...

https://connect.mayoclinic.org/comment/163162/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2017

A 10 cm tumor was incidentally discovered on CT Scan in the fall of 2016. Was...

https://connect.mayoclinic.org/comment/790795/

Discussion: Advanced metastatic paraganglioma diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 31, 2022

I was diagnosed with NET in the Liver with multiple spots, and a mass on my...

https://connect.mayoclinic.org/comment/754995/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2022

Our case has moved from diagnosis of mass on pancreas with spread to liver. Kim finished...

https://connect.mayoclinic.org/comment/942959/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Neuroendocrine Tumors (NETs) Support Group