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My SUV was much higher on a recent PET scan. Surgeon thought that was due to...
https://connect.mayoclinic.org/comment/1308545/
Did you have the small intestine net removed? Was the liver Mets found when you were...
https://connect.mayoclinic.org/comment/1216806/
I have NET in my liver but was told chemo does nothing. Wondering if u also...
https://connect.mayoclinic.org/comment/1196008/
PET Scan findings today: Confirms neuroendocrine on tail of Pancreas. No other neuroendocrines found. Ancillary chest...
https://connect.mayoclinic.org/comment/774829/
I was diagnosed with a NET in my liver, the source of the tumor is in...
https://connect.mayoclinic.org/comment/749917/
@tmickelson Like at @zacharycat suggested, sometimes it just come with the diagnosis. I was diagnosed in...
https://connect.mayoclinic.org/comment/1557798/
Welcome @tufan, I'm sorry to hear that treatment thus far has not slowed the progression of...
https://connect.mayoclinic.org/comment/801569/
So optimistic about this treatment modality! I have two questions. Has this treatment been successful on...
https://connect.mayoclinic.org/comment/1192687/
Not sure..since there are lesions in the liver they think it could be..the primary tumor is...
https://connect.mayoclinic.org/comment/967686/
@kevinmonroemi Thanks for the concern! She also mostly has a healthy liver as well, just a...
https://connect.mayoclinic.org/comment/1422560/
@nannybb I on Medicare they would only approve the long term my RX insurance wouldn’t approve...
https://connect.mayoclinic.org/comment/1540439/
Might I suggest you get a 2nd opinion? It's just a thought. Also, possibly speak with...
https://connect.mayoclinic.org/comment/1072193/
My wife’s case is similar to yours, as she was diagnosed with NET in April 2022....
https://connect.mayoclinic.org/comment/971625/
My hubs was diagnosed in 2019 with an intestinal blockage. Surgery revealed he had the NET...
https://connect.mayoclinic.org/comment/899657/
My oncologist does really look at SUVs he said their are too many variables that can...
https://connect.mayoclinic.org/comment/1512625/
@sturns Are the numerous tumors in your liver and lymph glands related to the pituitary tumor?...
https://connect.mayoclinic.org/comment/780276/
STOMACH NET! Having a STOMACH NET is indeed an esoteric experience and different from the lung,...
https://connect.mayoclinic.org/comment/896811/
I also have pnets on the tail end of my pancreas and liver I'm stage 4,,...
https://connect.mayoclinic.org/comment/801955/
I was diagnosed with neuroendocrine metastic to the liver and 1 lymph node with pancreatic primary...
https://connect.mayoclinic.org/comment/881040/
You may find this recent study helpful: https://pubmed.ncbi.nlm.nih.gov/36260828/ My wife has a large grade 2 pancreatic...
https://connect.mayoclinic.org/comment/933065/
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