Neuroendocrine Tumors (NETs) Support Group

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Comments (898)

Welcome @marieritzman. To help me connect you with others like you, can you confirm, do you...

https://connect.mayoclinic.org/comment/931534/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2023

@nannybb oxygen levels are 98 99 my gp listened to my chest last week she said...

https://connect.mayoclinic.org/comment/1447711/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2025

@californiazebra yes my lung specialist said they are very slow growing I'm just hoping surgery is...

https://connect.mayoclinic.org/comment/1428043/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2025

Neuroendocrine or NETs its called is rare. There are some good discussions about lung nets here....

https://connect.mayoclinic.org/comment/1262843/

Discussion: Neuroendocrine cell tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2025

I also had sbrt radiation for lung carcinoids a year ago and have been on monthly...

https://connect.mayoclinic.org/comment/1003928/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

I'm 75 and diagnosed with neuroendocrine tumors (3) that have been there as much as 50...

https://connect.mayoclinic.org/comment/979104/

Discussion: Anyone with carcinoid tumors in lung and stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 12, 2023

@ladylake- There's a wonderful magazine called CURE magazine. https://www.curetoday.com/ It is absolutely the best in up...

https://connect.mayoclinic.org/comment/232905/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 22, 2019

@jhhaas I am not sure if I am posting in the correct place. When was your...

https://connect.mayoclinic.org/comment/1433160/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2025

@rogo @triveraderubio @bcraft @bluedane @amd12 @tatteesmom3 @pattirushing @hopeful33250 @larenn @colleenyoung @kristen3 This is an exciting study...

https://connect.mayoclinic.org/comment/871424/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2023

@jessie1990 I hear you. I'm fed up too. For my surgeon to mention P.T. yesterday as...

https://connect.mayoclinic.org/comment/1447670/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2025

@nannybb I always had asthma when I was sick or exposed to many animals. Then in...

https://connect.mayoclinic.org/comment/1432474/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

Thank you for your reply I'm here in UK an there are not many support groups...

https://connect.mayoclinic.org/comment/1328821/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

I was diagnosed with DIPNECH in June of last year. I have surgery to remove the...

https://connect.mayoclinic.org/comment/1244389/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2025

yes was found in routine blood work with liver values off further testing revealed tumors in...

https://connect.mayoclinic.org/comment/671990/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2022

I have lung nets.... along with 1 Adenocarcinoma. The top right lobe and parts of the...

https://connect.mayoclinic.org/comment/1323823/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2025

@pete1962, I'd like to add to the helpful post from @lu7. (I wish you both successful...

https://connect.mayoclinic.org/comment/817128/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Sorry the removal was incomplete. My suggestion is ask (insist) to see a NET specialist for...

https://connect.mayoclinic.org/comment/1426993/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

@nannybb Good question. Because there are 3x as many people with GI NETs as lung NETs,...

https://connect.mayoclinic.org/comment/1431581/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 5, 2025

Hello @dolly123 and welcome to Mayo Connect. As you posted in the NETs (Neuroendocrine Tumors) support...

https://connect.mayoclinic.org/comment/1062285/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

Yes mine came from my lung ten months after they said they had gotten it all....

https://connect.mayoclinic.org/comment/812238/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

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