Neuroendocrine Tumors (NETs) Support Group

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Yes. After my second embolization too. Just hang in there. Your liver is fighting all the...

https://connect.mayoclinic.org/comment/888145/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1, 2023

I am seeing Dr Daniel Halperin, a NETS specialist, who was at MD Anderson and is...

https://connect.mayoclinic.org/comment/1184890/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

@meandmysis I was diagnosed with pancreatic cancer NETs, three 8cm tumors, that also have spread to...

https://connect.mayoclinic.org/comment/880674/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

MRI with contrast is the only way to go. I’m not sure the name of the...

https://connect.mayoclinic.org/comment/806725/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

PET Scan findings today: Confirms neuroendocrine on tail of Pancreas. No other neuroendocrines found. Ancillary chest...

https://connect.mayoclinic.org/comment/774829/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2022

I was diagnosed with a NET in my liver, the source of the tumor is in...

https://connect.mayoclinic.org/comment/749917/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

@pete1962 Thanks for responding. I don’t remember your first post, if your diagnosis includes NET in...

https://connect.mayoclinic.org/comment/837367/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Hello @riffieli Your concerns are understandable. I have had three surgeries for NETs in the upper...

https://connect.mayoclinic.org/comment/787667/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

I am curious as to your symptoms. I have stage 4?carcinoid metastasis in the liver and...

https://connect.mayoclinic.org/comment/1266749/

Discussion: Grade 3, poorly differentiated duodenal NET metastasized to liver-

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 4:45pm

Well differentiated, grade 2, neuroendocrine tumors in tail of pancreas and spread to some lobes of...

https://connect.mayoclinic.org/comment/1265518/

Discussion: Well differentiated Neuroendocrine Grade 2 in rectum

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24 8:49am

Welcome @tufan, I'm sorry to hear that treatment thus far has not slowed the progression of...

https://connect.mayoclinic.org/comment/801569/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Yes, it had already metastasized & was only determined to have been the point of origin...

https://connect.mayoclinic.org/comment/939544/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Thank you. No, I’ve not had a PET scan. I had symptoms and a CT showed...

https://connect.mayoclinic.org/comment/1229014/

Discussion: Lanreotide Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 4:41am

So optimistic about this treatment modality! I have two questions. Has this treatment been successful on...

https://connect.mayoclinic.org/comment/1192687/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Dec 18, 2024

Not sure..since there are lesions in the liver they think it could be..the primary tumor is...

https://connect.mayoclinic.org/comment/967686/

Discussion: Anyone have stretching of the liver capsule?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

My hubs was diagnosed in 2019 with an intestinal blockage. Surgery revealed he had the NET...

https://connect.mayoclinic.org/comment/899657/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2023

I have NET in my liver but was told chemo does nothing. Wondering if u also...

https://connect.mayoclinic.org/comment/1196008/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2024

I too have pNET grade 2, stage 4 due to liver metastases, but have not heard...

https://connect.mayoclinic.org/comment/1062830/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

I was diagnosed with neuroendocrine metastic to the liver and 1 lymph node with pancreatic primary...

https://connect.mayoclinic.org/comment/881040/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Might I suggest you get a 2nd opinion? It's just a thought. Also, possibly speak with...

https://connect.mayoclinic.org/comment/1072193/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2024

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