Neuroendocrine Tumors (NETs): Discussions | Page 10

I understand you have had neuroendocrine tumors for many years. Were you receiving any treatment prior...

https://connect.mayoclinic.org/comment/1171846/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

@ahtaylor I was noticing that you were going to have a calcium stimulation test. Has that...

https://connect.mayoclinic.org/comment/839748/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

I had 60% of my colon removed 5 years ago. I am glad you caught it...

https://connect.mayoclinic.org/comment/1011779/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 9:16am

No I had a lumpectomy in Feb. and now it has shown up blow my right...

https://connect.mayoclinic.org/comment/1155643/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 11 10:18pm

I had surgery on Feb.1. Distal pancreatectomy, removal of part of the stomach, gallbladder and spleen.,...

https://connect.mayoclinic.org/comment/822921/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8, 2023

Start of a new journey: Pathology report of liver biopsy indicating metastatic high grade neuroendocrine cell...

https://connect.mayoclinic.org/comment/810954/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

I have not had the calcium stimulation test yet. It is coming up soon. However, I...

https://connect.mayoclinic.org/comment/839764/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a...

https://connect.mayoclinic.org/comment/934866/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Hi, Mark! I started PRRT with Lutathera in December 2022. I had three treatments. Scans in...

https://connect.mayoclinic.org/comment/881873/

Discussion: Post Lu177 PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

I appreciate you adding information about your journey with NETs to this discussion group, @quinnie2023. I'm...

https://connect.mayoclinic.org/comment/1166556/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2 8:21am

My experience is very similar to those of @firepowr. Three of the largest tumors in my...

https://connect.mayoclinic.org/comment/828121/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

@hollywood817 What prompted the biopsy, did You have imaging done before. I have plenty of liver...

https://connect.mayoclinic.org/comment/812431/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

That was 8/22 when I got diagnosed with a pancreatic NET that spread to my liver....

https://connect.mayoclinic.org/comment/935792/

Discussion: Follow up surgery for PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

I have pNET with liver metastases. I had leg swelling after my first CAPTEM treatment. It...

https://connect.mayoclinic.org/comment/883873/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

My wife was diagnosed with NET in April 2022, with mass on tail of pancreas, and...

https://connect.mayoclinic.org/comment/797689/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Sorry for the delay in responding. Where are things today? Any changes? I have a pancreatic...

https://connect.mayoclinic.org/comment/1143967/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19 10:28am

My husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid tumor March,2022. He had surgery...

https://connect.mayoclinic.org/comment/1048670/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10 9:37pm

Thanks for your post melmangen. A hemangioma is like a birthmark. I have them on my...

https://connect.mayoclinic.org/comment/794072/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 8, 2023

Hi I had an exceptional NET specialist who started me Lanreotide after 3 injections the side...

https://connect.mayoclinic.org/comment/847916/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23, 2023

Thanks very: much for sharing. Were you taking any medications prior to Lanreotide three months ago?...

https://connect.mayoclinic.org/comment/1171155/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10 10:21am

Neuroendocrine Tumors (NETs) Support Group