Neuroendocrine Tumors (NETs) Support Group

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@tomrennie my liver specialist thinks the radioembolization of my liver will help deal with the itch?...

https://connect.mayoclinic.org/comment/1549588/

Discussion: Severe itching from liver metastasis nets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

@seesspotz It's so hard to hear that, I'm sure. First question - are you seeing a...

https://connect.mayoclinic.org/comment/1553522/

Discussion: Liver Mets treatment options for carcinoid NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

I had great success with it! Worked for me. A cluster of tumors in liver.

https://connect.mayoclinic.org/comment/1540112/

Discussion: Has anyone had Y90 treatment for NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 7:15am

Call Atlanta Liver and Pancreas surgical specialists and ask to see Dr Sur.

https://connect.mayoclinic.org/comment/1531865/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 7:24am

@seesspotz Hi and welcome to Mayo Connect. I was diagnosed with a pancreatic NET that has...

https://connect.mayoclinic.org/comment/1552948/

Discussion: Liver Mets treatment options for carcinoid NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

Your sister is very lucky to have you The journey is very long and decisions are...

https://connect.mayoclinic.org/comment/1539059/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 6:28pm

Lanreotide every 28 days, starting with 4 month scans and moving to 6 months scans, if...

https://connect.mayoclinic.org/comment/1551290/

Discussion: Severe itching from liver metastasis nets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 4 days ago

I am also getting the same shot every 28 days. My tumor was in my pancreas...

https://connect.mayoclinic.org/comment/1538461/

Discussion: i am taking the shot "L"

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 6:44am

@timaudette I was diagnosed in Jan.2025 with a tumor on the distal end of my pancreas...

https://connect.mayoclinic.org/comment/1551095/

Discussion: Severe itching from liver metastasis nets

Support Group: Neuroendocrine Tumors (NETs)

Posted: 4 days ago

Yes. My husband had it in 2010. At the time his liver had a 50% tumor...

https://connect.mayoclinic.org/comment/1540339/

Discussion: Has anyone had Y90 treatment for NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 10:37am

@kathyfujii I have a pnet in the body and tail that has spread to my liver...

https://connect.mayoclinic.org/comment/1549422/

Discussion: Did anyone have pnet in pancreatic tail and had distal pancreactomy ae

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

I'm so sorry your sister has to go through this. My husband was diagnosed with stage...

https://connect.mayoclinic.org/comment/1538756/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 11:46am

Hi, I’m new to post and fairly new to be diagnosed. In October 2025 I went...

https://connect.mayoclinic.org/comment/1552699/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

Can the CgA be over 94 and not be a problem. I am at 97 and...

https://connect.mayoclinic.org/comment/1542756/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4 1:58pm

The fact that things are stable is excellent! Frankly since there is no evidence of disease...

https://connect.mayoclinic.org/comment/1498538/

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 8:33am

I have metastatic liver cancer I have been told MRI is the best scan for the...

https://connect.mayoclinic.org/comment/1207344/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Stay active and healthy as you can- makes a difference! Have had stage 4 NETs since...

https://connect.mayoclinic.org/comment/1490449/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 3:00pm

@aprils1957 What kind of liver surgery will you be having?

https://connect.mayoclinic.org/comment/1524225/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 7:18pm

I have been successfully getting octreotide monthly shots for my liver Neuroendocrine diagnosis for 9 months...

https://connect.mayoclinic.org/comment/1550135/

Discussion: Blood Clots, DVT and Neuroendocrine Cancer - Be aware.

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

Hi @solaviera. Welcome to Mayo Connect. Sometimes fatty liver just happens. I pulled this from Mayo's...

https://connect.mayoclinic.org/comment/1376785/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

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