Neuroendocrine Tumors (NETs): Discussions

Has anyone had experience with PRRT? Most of my tumors are in my liver and I...

https://connect.mayoclinic.org/comment/1525397/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12 1:21pm

@debbie4la We have many members who have had PRRT treatments. I would like to invite @sophiarose...

https://connect.mayoclinic.org/comment/1525419/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12 2:04pm

http://prrtinfo.org/prrt Peptide Receptor Radionuclide Therapy (PRRT) about PRRT one of the best known treatment for neuroendocrine...

https://connect.mayoclinic.org/comment/90147/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2016

Followers of this discussion may also be interested in these related discussions: - High or Fluctuating...

https://connect.mayoclinic.org/comment/1050522/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

@kwan Here is a link I found under the PRRT discussion group. It's very informative! If...

https://connect.mayoclinic.org/comment/861029/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Dr. Halperin is good. I see him for my PRRT treatments.

https://connect.mayoclinic.org/comment/1532070/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 11:43am

Hello @sbds and welcome to the NETs support group on Mayo Connect. It is good to...

https://connect.mayoclinic.org/comment/1095873/

Discussion: PRRT treatment how does it work?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2024

@zacharycat My progression and treatments: diagnosed with Nets stage 4 mets to liver Jan. 2021, well...

https://connect.mayoclinic.org/comment/1537920/

Discussion: Is anyone taking cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 10:59am

Hello @donbarks and welcome to the NETs support group on Mayo Connect. I'm glad to see...

https://connect.mayoclinic.org/comment/1498145/

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 3:07pm

This was my treatment calendar while going through PRRT Treatments, All the tests were compared to...

https://connect.mayoclinic.org/comment/1469072/

Discussion: What is the Imaging Protocol Following Completion of PRRT Therapy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2025

@kwan, I moved your question about PRRT to this existing discussion: - Interested in hearing people's...

https://connect.mayoclinic.org/comment/867742/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

@kjstein Thanks for the useful info. Another question is - Are the radiation protocols after Alpha...

https://connect.mayoclinic.org/comment/1538812/

Discussion: Is anyone taking cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 12:42pm

Hello Just had my second PRRT session. NETS started in my liver and despite surgery removing...

https://connect.mayoclinic.org/comment/1528670/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 1:10am

After prrt what do you do with your pillows and blankets due to the radiation??? Thanks...

https://connect.mayoclinic.org/comment/1525649/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12 10:57pm

I had no real side effects to prrt. I was glad to get off chemo for...

https://connect.mayoclinic.org/comment/1500752/

Discussion: Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 9:18am

Hi I had prrt in 2023. I did experience some hair loss but my hair recovered...

https://connect.mayoclinic.org/comment/1544539/

Discussion: PRRT for stage 4 pNET with mets to liver, small intestine & skull

Support Group: Neuroendocrine Tumors (NETs)

Posted: 22 hours ago

I started the prrt treatment in 1-04-26 had second treatment 3-07-26 did not any problems.

https://connect.mayoclinic.org/comment/1526442/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14 1:23am

Welcome @littlecrown1966. You're not alone in having a long road to diagnosis with misdiagnosis along the...

https://connect.mayoclinic.org/comment/755494/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2022

@firepowr, sorry to hear that the CT scan revealing more growth in the liver. Glad that...

https://connect.mayoclinic.org/comment/775388/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2022

Teresa: There is a newer version of the original Beta PRRT in advanced clinical trials now....

https://connect.mayoclinic.org/comment/1219077/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2025

Neuroendocrine Tumors (NETs) Support Group