Neuroendocrine Tumors (NETs) Support Group

Hiya. My partner is on her fourth monthly lanreotide & just had scans. They showed significant growth in liver despite the treatment ( grade 2,...

For those of you that have already had PRRT, was it done through a PICC line? Was it inserted the day before procedure or day...

PRRT Update: Today I got the absolute best news😁 Had my PRRT follow-up appt with the Radiologists. After reviewing both of my surgery path reports...

My partner is grade 2, stage 4 PNET diagnosed Jan 28 2025 and post start of lanreotide (3 months) showed growth still. Starting PRRT shortly....

My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...

After my 2nd PRRT treatment I started having out of control erratic BP and Pulse also Heart skipping beats. I can’t touch my head or...

My wife is scheduled to begin PRRT in early March 2023. In spite of a recent consult with radiology, we are still concerned about the...

Do any participants have personal experience or know of someone who were treated with other therapies following unsuccessful Lutathera treatment ?If so, what was used?What...

I am currently preparing to begin Lutathera at Mayo in Jacksonville after showing progression while on Clinical trial CAM2029 octreotide. Fully terrorized as what to...

My 29 son has a grade 3 PNET and Liver METS. He receives monthly Lanrotide which causes wild blood sugar highs and rapid lows. He...