MAC & Bronchiectasis Support Group

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Comments (419)

I used glutathione for our shared condition bronchiectasis. Theranaturals (link below) is where I purchased. I...

https://connect.mayoclinic.org/comment/1076359/

Discussion: Nebuliser suitable for saline and powdered glutathione

Support Group: MAC & Bronchiectasis

Posted: May 28 10:26am

@sallyb827 Sally, You asked "How long does it take for you to nebulize 7 ml of...

https://connect.mayoclinic.org/comment/845631/

Discussion: Confused about saline

Support Group: MAC & Bronchiectasis

Posted: Apr 19, 2023

Hi Nancy, I hesitate to recommend a single nebulizer because everyone develops their own preference based...

https://connect.mayoclinic.org/comment/1112154/

Discussion: MAC/NTM is Different for Everyone, Treatment might be different too

Support Group: MAC & Bronchiectasis

Posted: Jul 26 9:46am

As some of you know .. I was very ill starting 2/5/17 with extreme fatigue/no appetite/Brain...

https://connect.mayoclinic.org/comment/139995/

Discussion: Have Bronchiectasis, recently diagnosed with pseudomonas

Support Group: MAC & Bronchiectasis

Posted: May 12, 2017

Has anyone gotten a sinus or eye infection from using a nebulizer that wasn’t propertly cleaned?...

https://connect.mayoclinic.org/comment/751495/

Discussion: Cleaning + disinfecting nebulizer and aerobica

Support Group: MAC & Bronchiectasis

Posted: Sep 19, 2022

I joined the “7% club” 5 days ago. Here’s my experience: I was able to convince...

https://connect.mayoclinic.org/comment/288949/

Discussion: 7% Saline Solution

Support Group: MAC & Bronchiectasis

Posted: Mar 17, 2020

Hi Jennifer, Nebulizing is a form of airway clearance because doing it with the 7% hypertonic...

https://connect.mayoclinic.org/comment/1020506/

Discussion: MAC: Anyone ever felt pain from MAC? So many questions

Support Group: MAC & Bronchiectasis

Posted: Feb 22 10:54am

Sue, very clear explanation. Now I have another question. You mentioned a 1:10 ratio of Dawn...

https://connect.mayoclinic.org/comment/1129823/

Discussion: Lung Matters Protocol

Support Group: MAC & Bronchiectasis

Posted: Aug 24 10:36am

Well, I've been gone for a few weeks with family & house guests, but I wanted...

https://connect.mayoclinic.org/comment/65300/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Sep 16, 2018

@cindyrnc, Cindy, can't remember if I have given you the below resources on Bronchiectasis already .....

https://connect.mayoclinic.org/comment/62273/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jul 5, 2017

Hi! I hope I’m not too late in responding. I recently returned from a trip to...

https://connect.mayoclinic.org/comment/966462/

Discussion: Need Advice for Traveling Internationally

Support Group: MAC & Bronchiectasis

Posted: Nov 17, 2023

susanp64, I live north of Austin in Ceorgetown, which is a 4 hr commute to Tyler.You...

https://connect.mayoclinic.org/comment/902141/

Discussion: Pulmonologist in the Austin/SA Area and Airway Clearance Devices

Support Group: MAC & Bronchiectasis

Posted: Jul 25, 2023

Just completed participation in Arina-1 study in New Orleans at LSU Medical On the first 3...

https://connect.mayoclinic.org/comment/975335/

Discussion: ARINA-1 Clinical Trial UPDATE- (not an antibiotic)

Support Group: MAC & Bronchiectasis

Posted: Dec 5, 2023

So it was somewhat a watch and wait for you with not having started the antibiotics...

https://connect.mayoclinic.org/comment/1172302/

Discussion: MAC patients who have taken antibiotics

Support Group: MAC & Bronchiectasis

Posted: Nov 12 11:21am

Barbara, yes, I only started the antibiotics this year. The nodule that grew was one I...

https://connect.mayoclinic.org/comment/1171555/

Discussion: MAC patients who have taken antibiotics

Support Group: MAC & Bronchiectasis

Posted: Nov 11 7:23am

Hi prispal. You can use a Life Straw water bottle for washing and rinsing, and those...

https://connect.mayoclinic.org/comment/1085428/

Discussion: What are your recommendations for travel nebulizer?

Support Group: MAC & Bronchiectasis

Posted: Jun 12 9:02am

@windwalker....l recall the Concord....how awesome that you could go on it....l had put going on my...

https://connect.mayoclinic.org/comment/164692/

Discussion: We are so much more than our disease....

Support Group: MAC & Bronchiectasis

Posted: Jul 28, 2018

Thank you, Sue @sueinmn, for your response. The YouTube videos about breathing techniques (there are many)...

https://connect.mayoclinic.org/comment/680287/

Discussion: Newly-diagnosed with Bronchiectasis and shocked

Support Group: MAC & Bronchiectasis

Posted: Feb 13, 2022

Good find! Have you requested a quote? I did. The setup looks similar to Pari's portable....

https://connect.mayoclinic.org/comment/1084298/

Discussion: Has anyone heard of/used the AeroNeb Go mesh nebulizer?

Support Group: MAC & Bronchiectasis

Posted: Jun 10 11:31am

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