MAC & Bronchiectasis Support Group

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Comments (561)

You'll need to check around and try disposable cups ahead of time to see what works....

https://connect.mayoclinic.org/comment/1223704/

Discussion: Looking for a decent portable nebulizer

Support Group: MAC & Bronchiectasis

Posted: Jan 28 9:06am

SaveRite medical supply doesn't require a prescription for aerobikas or nebulizers or parts. That's how I...

https://connect.mayoclinic.org/comment/1322206/

Discussion: Aerobika

Support Group: MAC & Bronchiectasis

Posted: Jun 7 10:27am

Thank you. I bought avexmed portable mesh nebuluzer just to have something in my purse. It...

https://connect.mayoclinic.org/comment/951336/

Discussion: What are your recommendations for travel nebulizer?

Support Group: MAC & Bronchiectasis

Posted: Oct 21, 2023

I have been through a couple with prescriptions. Am presently using the Hillrom Volara system which...

https://connect.mayoclinic.org/comment/846823/

Discussion: How does bronchiectasis progress?

Support Group: MAC & Bronchiectasis

Posted: Apr 21, 2023

Sue, I purchased the cups you recommended and received them yesterday. I used a new cup...

https://connect.mayoclinic.org/comment/843871/

Discussion: Anyone have any nebulizer recommendations?

Support Group: MAC & Bronchiectasis

Posted: Apr 16, 2023

Here I found a few that are currently in stock: Nebology 60 vials/$42. Discount on first...

https://connect.mayoclinic.org/comment/814470/

Discussion: Glutathione: What dosage do you use? Where do you get it?

Support Group: MAC & Bronchiectasis

Posted: Feb 20, 2023

Hi Sue, This is off topic, but recently you said you had a nebulizer that you...

https://connect.mayoclinic.org/comment/616737/

Discussion: Have you had your water tested?

Support Group: MAC & Bronchiectasis

Posted: Jul 15, 2021

Not @dee65 here, but I have settled back on my old standby, the basic, big green...

https://connect.mayoclinic.org/comment/155246/

Discussion: Lung Mucus Clearance .. Reducing The Breeding Ground For Mycobacterium

Support Group: MAC & Bronchiectasis

Posted: Mar 12, 2021

How do you know when a Pari cup is "done". On the website I bought them,...

https://connect.mayoclinic.org/comment/1083477/

Discussion: Travel Nebulizer

Support Group: MAC & Bronchiectasis

Posted: Jun 9, 2024

But the Innospire also requires weekly sterilization, and so would the APOWUS or any other device...

https://connect.mayoclinic.org/comment/819466/

Discussion: Anyone have any nebulizer recommendations?

Support Group: MAC & Bronchiectasis

Posted: Mar 1, 2023

@lindam272 Hi, I use the Pari Eflow (2.5 years) and it is fantastic, silent, quick (10...

https://connect.mayoclinic.org/comment/66641/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Dec 10, 2019

Scoop and sue. I got my pari erapid nebulizer, read a few times the instructions and...

https://connect.mayoclinic.org/comment/1366682/

Discussion: Airway clearance and how I feel throughout the day

Support Group: MAC & Bronchiectasis

Posted: Aug 8 7:48pm

Interesting, Sue. I seem to remember that while you don't produce the amount of mucus that...

https://connect.mayoclinic.org/comment/1375343/

Discussion: Pari eRapid/eFlow first impressions

Support Group: MAC & Bronchiectasis

Posted: Aug 20 5:35pm

No -- I was hoping I could find someone who actually owned and used it. What...

https://connect.mayoclinic.org/comment/1084336/

Discussion: Has anyone heard of/used the AeroNeb Go mesh nebulizer?

Support Group: MAC & Bronchiectasis

Posted: Jun 10, 2024

I’m currently using Phillips Respironics and this is my 2nd machine. I have Bronchiectasis Asthma. I...

https://connect.mayoclinic.org/comment/1277036/

Discussion: Recommendations for nebulizer machine

Support Group: MAC & Bronchiectasis

Posted: Apr 8 10:09am

Hi The pseudomonas was treated with colymycin 10,000 units via a pari nebuliser with 2% saline...

https://connect.mayoclinic.org/comment/1002204/

Discussion: 7% Saline Success Story that warmed my heart.

Support Group: MAC & Bronchiectasis

Posted: Jan 23, 2024

Has anyone obtained an Innospire Go Mesh Nebulizer recently? Where did you get it? I had...

https://connect.mayoclinic.org/comment/703864/

Discussion: Anyone have any nebulizer recommendations?

Support Group: MAC & Bronchiectasis

Posted: Apr 29, 2022

Hello Sally, there is no correct answer to this question. Lifestyle, budget and personal preference play...

https://connect.mayoclinic.org/comment/773255/

Discussion: New to MAC and considering treatments options: What did you do?

Support Group: MAC & Bronchiectasis

Posted: Nov 14, 2022

Yes, I really can relate to what you are saying. If it helps, I get my...

https://connect.mayoclinic.org/comment/1205965/

Discussion: Is your Lifestraw membrane microfilter floppy or stable in the cap?

Support Group: MAC & Bronchiectasis

Posted: Jan 7 10:27am

I haven't used this Pep device but have eyed it. More common in Europe than US....

https://connect.mayoclinic.org/comment/1150807/

Discussion: Aerobika green valve blows out; common?

Support Group: MAC & Bronchiectasis

Posted: Oct 2, 2024

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