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Public Support Group 665 total results
Discussions (38)
Starting Tagrisso: What time of day do you take it? With food?
I will be starting Tagrisso soon. The pharmacy is sending it to me and I should receive it tomorrow. I am supposed to let my...
Anyone experience GI side effects with Tagrisso for lung cancer?
Hello, Has anyone out there receiving Tagrisso for their lung cancer treatment experienced GI problems? For example bloating 24/7, appetite loss, heart rate elevated when...
How long did you have side effects from Tagrisso?
I've been taking Tagrisso since mid-March after my partial lobectomy in February. Thankfully, the cancer was Stage 1B so no chemo or radiation... just the...
Chemo before Tagrisso or not? Need info but where do I start?
I am having a hard time deciding if I want to do chemo before starting Tagrisso or just starting Tagrisso without doing Chemo. My oncologist...
Does anyone have info on new treatments against EGFR exon 19 mutation?
My wife is currently on Tagrisso 80 mg but wondering if anyone knows about any next generation/treatments against EGFR exon 19 mutation cancer?
Anyone on Rybrevant (amivantamab-vmjw) for advanced NSC lung cancer?
I have stage 4 NSC lung cancer that has metastasized to my bones. I was on Tagrisso for 13 months but couldn’t tolerate it. My...
Right upper Lobectomy in April - Numbness, Fullness
Hello. Had a right upper lobectomy on April 11, 2023. Not currently on Amy drugs related to surgery. Taking 40 mg Tagrisso. How long can...
Has anyone stopped treatment with bone metastasis?
My 84 year old mother with non-small cell lung cancer has decided to stop treatment. She was taking Tagrisso for past year and it stopped...
Has anyone had leg numbness due to bone mets?
Does anyone have leg numbness due to bone mets, and if so how was it treated? Radiation to her sacrum and sternum seems to have...
Chemo Stomach Mucositis, anyone?
This lung cancer journey certainly has twists and turns. I guess more than a question I’m just updating on my situation. Adenocarcinoma, EGFR, mets stage...
EGFR Exon 19 Mutation - the Return (?)
A comment rather than a question. With zero family history, I was diagnosed with nonsmokers lung cancer in 2018. It metastasized to my brain in...
Rising CEA tumor marker
My wife has been on Tagrisso 40mg for about 9 months. Also received 12 radiation treatments. Lung tumor has shrunk from 6cm to 3cm &...
Anybody with NSCLC with EGFR exon 21 L858R mutation response to TKIs?
My wife was just diagnosed with Non Small Cell Lung Cancer (Adenocarcinoma) sensitive to EGFR tyrosine kinase inhibitors [TKI] (exon 21 L858R mutation). She never...
New nodule and the unknown
Ugh! I was diagnosed in Oct 2023 with stage 3 adenocarcinoma lung cancer after my ULL lobectomy. Currently EGFR so Taking Tagrisso. All has been...
Can radiation be used on partly solid nodules close to an airway?
Background: I have multiple nodules (EGFR positive), most of them partly solid/partly ground glass). I have been able to avoid treatment (other than two lobectomies)...
Just scared: Cancer and scared leaving my daughter behind
My name is Heather, I am 38 years old. I had surgery/diagnosed on 10/9/24 with NSCLC adenoidcarcinoma EGFR 19. Non smoker. I have had multiple...
Anyone else experience necrosis following targeted brain radiation?
As many of you know, I am a 6 ½-year lung cancer survivor, with almost 4 of those years navigating stage IV after metastasis to...
Chronic pain after radiation for Stage IV Lung Cancer
Hello, I'm hoping to hear from someone else who has had this type of experience. My wife was diagnosed with Stage IV NSCLC back in...
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