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Liver Cancer Support Group

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Discussions (13)
Cholangiocarcinoma and proton and photon beam radiation
Recently diagnosed with bile duct cancer or cholangiocarcinoma. I have been reading up on alternative treatment. Is Photom Beam Therapy right for me? Has anybody...
Support Group: Liver Cancer
Last active: Dec 21, 2023
Diagnosed with cholangiocarcinoma, can this be treated?
Father in law is diagnosed with this and surgery could happen. But seems like chemo is not ending, even oral chemo is happening. Lot of...
Support Group: Liver Cancer
Last active: Apr 26, 2025
Cholangiocarcinoma: Dealing with husband's long stay in ICU
My husband diagnosed 12/22/24. Had the following surgery on 03/03/25:1) Diagnostic laparoscopy2) Exploratory laparotomy3) Cholecystectomy4) Extended R hepatectomy5) En-bloc resection of extrahepatic biliary tree6) En-bloc...
Support Group: Liver Cancer
Last active: Jun 8, 2025
Cholangiocarcinoma - Mayo Clinic Rochester. Are there other patients?
I was diagnosed in the last few days with cholangiocarcinoma of the liver and I do not fit the protocol of treatments + transplantation. I...
Support Group: Liver Cancer
Last active: May 26 3:36pm
Has anyone had surgery for intrahepatic cholangiocarcinoma?
In my case, the tumor has decreased to 2cm x 3cm. Anyone who has had surgery for this would love to hear as I’m meeting...
Support Group: Liver Cancer
Last active: May 22, 2025
Husband recently diagnosed with Cholangiocarcinoma and had no symptoms
My husband was recently diagnosed with Cholangiocarcinoma. We were referred to Mayo and have our first appointment in a week. What I don't understand is...
Support Group: Liver Cancer
Last active: May 26 3:30pm
Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?
Anyone currently battling bile duct cancer? I would love to speak to discuss your experiences. I was just recently diagnosed in June.
Support Group: Liver Cancer
Last active: Apr 30 10:47am
Ventral Incisional Hernia Repair
18 months after successful radical bile duct resection and reattachment at Mayo Rochester for distal cholangiocarcinoma, I developed a ventral incisional hernia that required robotic-assisted...
Support Group: Liver Cancer
Last active: Jun 25 10:00am
Intrahepatic Cholangio, Stage 1 but with R1 positive margin
Hello, I’m looking to connect with anyone who had Stage I intrahepatic cholangiocarcinoma and surgery that resulted in a positive (R1) margin. • What treatment...
Support Group: Liver Cancer
Last active: Sep 29, 2025
Bile Duct Cancer Scare
My husband's doctor is in the process of ruling out bile duct cancer after a fluke discovery on some unrelated imaging that was done in...
Support Group: Liver Cancer
Last active: Dec 23, 2023
Bile Duct cancer help, for my mother.
I am posting on behalf of my mother. She is 63 years old and was diagnosed with Cholangiocarcinoma (Bile Duct Cancer) 20 months back. When...
Support Group: Liver Cancer
Last active: Aug 19, 2025
Anyone taking Tibsovo (ivosidenib) for bile duct cancer?
After progression had started after 13 months of chemo I moved on to a targeted therapy for people with I dh1 mutation cholangiocarcinome. Treatment has...
Support Group: Liver Cancer
Last active: Feb 1, 2025