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Comments (116)

Most definitely, @suchita90. There are several treatment options available for people diagnosed with cholangiocarcinoma. You can...

https://connect.mayoclinic.org/comment/652854/

Discussion: Diagnosed with cholangiocarcinoma, can this be treated?

Support Group: Liver Cancer

Posted: Nov 10, 2021

@tomrennie The MTAP gene loss occurs in about 16% of bile duct cancer cases. Luckily there...

https://connect.mayoclinic.org/comment/1492178/

Discussion: Cholangiocarcinoma - Mayo Clinic Rochester. Are there other patients?

Support Group: Liver Cancer

Posted: Jan 27 8:15pm

@djjnurse my mother went through this issue with the stents every 10 weeks.. so annoying to...

https://connect.mayoclinic.org/comment/1490611/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Jan 25 7:12pm

Did he have bile duct reconstruction? If so, that is lots more complicated than my liver...

https://connect.mayoclinic.org/comment/1272549/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Apr 2, 2025

Hi @lilbit78, I'm glad that you were able to get clarification on your father-in-law's diagnosis of...

https://connect.mayoclinic.org/comment/1049676/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Apr 12, 2024

Hi @wanda1014, I know such potential news can be very scary and at this stage Google...

https://connect.mayoclinic.org/comment/291396/

Discussion: Bile Duct Cancer Scare

Support Group: Liver Cancer

Posted: Jan 29, 2020

Is anyone preparing for or recently completed bile duct surgery for cholangiocarcinoma? Would appreciate your insights....

https://connect.mayoclinic.org/comment/1106438/

Discussion: Did you have with chemo/radiation prior to distal bile duct surgery?

Support Group: Liver Cancer

Posted: Jul 16, 2024

Hi @sunflower88, I believe you've already connected with @demooretucson in another discussion. I'm also bringing fellow...

https://connect.mayoclinic.org/comment/1139039/

Discussion: Anyone taking Capecitabine Chemo for bile duct cancer?

Support Group: Liver Cancer

Posted: Sep 9, 2024

Yes, bile duct reconstruction too. He is still in ICU with complications. No, not at Mayo....

https://connect.mayoclinic.org/comment/1279711/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Apr 11, 2025

looking for anyone with diagnosis of extraheper Outside the organs) bile duct cancer with no tumors...

https://connect.mayoclinic.org/comment/704747/

Discussion: Diagnosed with cholangiocarcinoma, can this be treated?

Support Group: Liver Cancer

Posted: May 2, 2022

Welcome to Connect. We look forward to getting to know more about you. I'd like to...

https://connect.mayoclinic.org/comment/160063/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Jul 15, 2017

Jerry @jerrydrennan Staging can be a confusing concept. Simply put, staging is a set of tests...

https://connect.mayoclinic.org/comment/160094/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Apr 6, 2018

Denvergirl...Very sorry about the unexpected complications. I had surgery last Oct at Mayo Rochester for bile...

https://connect.mayoclinic.org/comment/1270954/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Mar 31, 2025

@Denvergirl here. I had surgery in Oct 2024 for bile duct cancer. I just completed my...

https://connect.mayoclinic.org/comment/1222579/

Discussion: Anyone taking Capecitabine Chemo for bile duct cancer?

Support Group: Liver Cancer

Posted: Jan 26, 2025

@denvergirl - I too was diagnosed with bile duct cancer. Fortunately it was found early and...

https://connect.mayoclinic.org/comment/1256418/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Mar 12, 2025

I just got my bile duct diagnosis and go in to hospital tomorrow for ERCP and...

https://connect.mayoclinic.org/comment/1188337/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Dec 11, 2024

Are you taking Capecitabine? I am taking it prophylacticly after successful bile duct CA surgery. I...

https://connect.mayoclinic.org/comment/1270959/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Mar 31, 2025

Dear @journey2025 In October 2024, I had a radical bile duct resection that included a Roux-en-Y...

https://connect.mayoclinic.org/comment/1232854/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Feb 9, 2025

Hi @jo16, welcome. Allow me to tag fellow cholangiocarcinoma members like @kieran86 @lberg @jerrydrennan @lisamb @mngardenaddict...

https://connect.mayoclinic.org/comment/698541/

Discussion: Anyone taking Tibsovo (ivosidenib) for bile duct cancer?

Support Group: Liver Cancer

Posted: Apr 12, 2022

For the love of God have faith . I have bile duct stage 4,I'm in my...

https://connect.mayoclinic.org/comment/1197891/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Dec 27, 2024

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