Infectious Diseases Support Group

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Comments (585)

Hello @joyisjah, I see that you are wondering how @shellr13 son is doing since last year....

https://connect.mayoclinic.org/comment/134957/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Feb 8, 2018

Hello @suzyp, Welcome, and thank you for joining this discussion, and sharing your story. I can...

https://connect.mayoclinic.org/comment/134852/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jul 2, 2017

I can take a pic of the probiotics when I get home. Acidophilus is the good...

https://connect.mayoclinic.org/comment/135365/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 21, 2021

Systemic exertion intolerance disease is the new name for ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome). It is...

https://connect.mayoclinic.org/comment/135066/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Aug 10, 2018

Having EBV is very frustrating. I have been battling this for more than six months. I...

https://connect.mayoclinic.org/comment/134963/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Feb 23, 2018

Sue, while this discussion was started in 2018, members have posted more recently than a year...

https://connect.mayoclinic.org/comment/184088/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Apr 16, 2020

Hello again, I meant to share this in my last post. EBV can be treated by...

https://connect.mayoclinic.org/comment/1092759/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Jun 23, 2024

First of December I woke up with my right hand stiff, swollen, painful and unable to...

https://connect.mayoclinic.org/comment/134958/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Feb 10, 2018

Hi Lisa, Your thread here has generated some very interesting discussion. I love DrBeen Medical Lectures,...

https://connect.mayoclinic.org/comment/837565/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Apr 4, 2023

Hi I was diagnosed in Jan of 2018 with this virus that is awful and basically...

https://connect.mayoclinic.org/comment/135267/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Aug 18, 2019

Im looking for treatment solutions! I’m 52 years old and have been knowingly battling chronic Epstein...

https://connect.mayoclinic.org/comment/1575869/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: May 16 10:32am

Hi @mommacmc, I’m so sorry to read that your mom isn’t well. It can be very...

https://connect.mayoclinic.org/comment/1092109/

Discussion: Chronic fever spikes daily

Support Group: Infectious Diseases

Posted: Jun 22, 2024

Hi @luannkelly. I'm sorry you are going through this. I pushed myself for a year continuing...

https://connect.mayoclinic.org/comment/184057/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 26, 2019

I so understand, have been diagnosed with reactivated EBV, one thing I do that has helped...

https://connect.mayoclinic.org/comment/911491/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Aug 11, 2023

People will disagree but the only thing that helped me was long term high dose valacyclovir....

https://connect.mayoclinic.org/comment/1469093/

Discussion: Chronic EBV

Support Group: Infectious Diseases

Posted: Dec 28, 2025

I had extreme exhaustion for years with no results. I did have the EBV and had...

https://connect.mayoclinic.org/comment/1196514/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Dec 24, 2024

@ddnj I apologize for taking so long to respond! I'm sorry you are going through this....

https://connect.mayoclinic.org/comment/184037/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 6, 2019

Cummings3, Yes please keep us posted if this helps. One thing I have learned is it's...

https://connect.mayoclinic.org/comment/134915/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Nov 19, 2017

There are no doctors in Arizona, including infectious disease doctors, who treat EBV or CAEBV. There...

https://connect.mayoclinic.org/comment/1001161/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Jan 21, 2024

Hi, thank you for responding.My husband went to the hospital over a year ago for chest...

https://connect.mayoclinic.org/comment/135343/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Sep 3, 2020

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