Infectious Diseases Support Group

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Comments (585)

Lyme disease is often deeply misunderstood. I contracted it in June 2020 and never fully recovered;...

https://connect.mayoclinic.org/comment/1609443/

Discussion: Post-Treatment Lyme Disease Syndrome/Chronic Lyme

Support Group: Infectious Diseases

Posted: Jun 30 6:41am

Hello Sue. Wow yeah reading Anthony Williams book is how I found I might have EBV....

https://connect.mayoclinic.org/comment/604340/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: May 24, 2021

@jbri thank you for your kind words. It saddens me that doctors are unwilling to consider...

https://connect.mayoclinic.org/comment/135147/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 2, 2019

Hello @cummings3, I'm sorry to hear about your son's diagnosis, but I'm so glad you chose...

https://connect.mayoclinic.org/comment/134832/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 24, 2017

Yes, I have chronic EBV as well. My spleen got enlarged. I also developed very large...

https://connect.mayoclinic.org/comment/1389448/

Discussion: EBV ruining my life

Support Group: Infectious Diseases

Posted: Sep 8, 2025

Both of my sons were diagnosed with CEBV and CFS/ME. It permanently changed the paths of...

https://connect.mayoclinic.org/comment/135032/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jun 16, 2018

Oh my goodness, I am so sorry @smcivor94 . That's ridiculous. You should have a right...

https://connect.mayoclinic.org/comment/135227/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 31, 2019

Thanks @JustinMcClanahan for the info. The hypoglycemia is under control now. It's usually only really bad...

https://connect.mayoclinic.org/comment/208811/

Discussion: EBV? or Adrenals?

Support Group: Infectious Diseases

Posted: Jul 18, 2018

Hi @cummings3! I too know how frustrating it is. I had an infectious disease doctor laugh...

https://connect.mayoclinic.org/comment/134836/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 25, 2017

After Moderna 1 activated hidden EBV symptoms, in the next two months, I experiened extreme debiltating...

https://connect.mayoclinic.org/comment/762940/

Discussion: Has anyone used Monolaurin for Epstein Barre Virus?

Support Group: Autoimmune Diseases

Posted: Oct 19, 2022

I went through the same thing. The Doctors can do nothing. I had blood drawn every...

https://connect.mayoclinic.org/comment/604161/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: May 23, 2021

Hi, I'm new to this group. I was dx with fibro right after having mono. I...

https://connect.mayoclinic.org/comment/135135/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 1, 2019

Here in Tucson, AZ, infectious disease specialists won't even make an appointment for people with EBV....

https://connect.mayoclinic.org/comment/184116/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Jan 27, 2021

I contracted EBV in 2015 from someone in the gym I was going to. I went...

https://connect.mayoclinic.org/comment/135275/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Aug 29, 2019

Hi @jnrbutterfly . I too have had a positive IgM. My VCA IgG, EBNA, and early...

https://connect.mayoclinic.org/comment/184011/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Dec 21, 2018

Jonathan: I've lived with Epstein Barr Syndrome for 22 years. Back then, when my doctor diagnosed...

https://connect.mayoclinic.org/comment/135110/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Nov 21, 2018

This will be long and some of it may make zero since until the end *...

https://connect.mayoclinic.org/comment/134884/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jul 15, 2017

I am a little late to the game but this came up in my recent search...

https://connect.mayoclinic.org/comment/135172/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 11, 2019

Hi @susanblan. I had recurrent EBV infections with positive IgM antibodies. However, at the root of...

https://connect.mayoclinic.org/comment/1380826/

Discussion: Has anyone used Monolaurin for Epstein Barre Virus?

Support Group: Autoimmune Diseases

Posted: Aug 27, 2025

Gjul16 I’m sorry I’m really foggy as I’m crashing tonight. I don’t understand your post. Hope...

https://connect.mayoclinic.org/comment/135184/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 15, 2019

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