Hypertrophic Cardiomyopathy (HCM) Support Group

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Comments (1,315)

As long as my RF stays within normal range, my specialty cardiologist will continue me on...

https://connect.mayoclinic.org/comment/1401917/

Discussion: Third month of Camzyos my ef dropped to 30-35. At what point do they

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 26, 2025

what was your gradient before and after CAMZYOZ?

https://connect.mayoclinic.org/comment/1145960/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 23, 2024

Hi, yes Prof Elliot is the Clinical Lead at St Barts. Prior to this, I used...

https://connect.mayoclinic.org/comment/1132019/

Discussion: Has anyone had surgery for Apical Hypertrophic Cardiomyopathy

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 28, 2024

https://connect.mayoclinic.org/comment/1088753/

Discussion: Anyone been on camzyos for approx a year?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 17, 2024

I was given a heart valve to slow blood flow. Didn’t help! Then told I had...

https://connect.mayoclinic.org/comment/978368/

Discussion: Cardiologist says not Hcm

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 11, 2023

I could say the same thing. I was misdiagnosed. Hospitalized in Feb for 8 days. New...

https://connect.mayoclinic.org/comment/889222/

Discussion: Any on here have hcm and been diagnosed with Al Amyloidisis

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 3, 2023

https://connect.mayoclinic.org/comment/1285052/

Discussion: Does Camzyos shrink/narrow your urethra?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 18, 2025

His colleague, Dr Edward Gill was in the research group in the Cleveland Clinic that developed...

https://connect.mayoclinic.org/comment/1164501/

Discussion: Every other day cannot function

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 29, 2024

I noticed small increase in hair loss after starting cameos. not taking a beta blocker.anyone notice...

https://connect.mayoclinic.org/comment/1089512/

Discussion: Meds & hair loss

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 19, 2024

I have been on those 2 drugs for over a year and my blood work is...

https://connect.mayoclinic.org/comment/1152790/

Discussion: Blood glucose

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 6, 2024

Oh ok so under Professor Perry Elliott I assume? I am under Guys and St Thomas’...

https://connect.mayoclinic.org/comment/1132006/

Discussion: Has anyone had surgery for Apical Hypertrophic Cardiomyopathy

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 28, 2024

I am new here. I am surprised no one has discussed the cost of camzayos. Medicare...

https://connect.mayoclinic.org/comment/1078113/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 30, 2024

That’s weird, as I have a heart murmur and have been told I don’t need camyzos...

https://connect.mayoclinic.org/comment/1077236/

Discussion: Camzyos and heart murmur

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 29, 2024

Thank you. Brought tears to my eyes. I'm so guilty for mistreating my body. I was...

https://connect.mayoclinic.org/comment/909467/

Discussion: I'm scared

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 8, 2023

I am Ellen05121941. Age 84. Diagnosed HOCM 2008, Born with it. live in small Arizona town...

https://connect.mayoclinic.org/comment/1398157/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 21, 2025

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