Hypertrophic Cardiomyopathy (HCM) Support Group

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Comments (1,315)

Thanks so much for your perspective. This also helps give another side to this. I think...

https://connect.mayoclinic.org/comment/1262749/

Discussion: Septal Myectomy Consideration

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 20, 2025

Wow, thanks for the extra info. My resting gradient is 50mmHg, from the echo before the...

https://connect.mayoclinic.org/comment/1251322/

Discussion: Septal Myectomy Consideration

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 5, 2025

I have an experienced HCM cardiologist. It’s his speciality. I see him once a year and...

https://connect.mayoclinic.org/comment/909584/

Discussion: Trouble eating with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 8, 2023

Hello @amyfaith Welcome to Mayo Clinic Connect. I am so glad you found this site. There...

https://connect.mayoclinic.org/comment/1383764/

Discussion: Camzyos treatment location / expertise?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 31, 2025

It's been a while since I've posted and thought I'd post an update. I ended up...

https://connect.mayoclinic.org/comment/1350919/

Discussion: Septal Myectomy Consideration

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 18, 2025

Good morning! I am still feeling great but had a very frustrating day yesterday. As you...

https://connect.mayoclinic.org/comment/870428/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 1, 2023

Hi @joycehocm . I can't speak to why a cardiologist would recommend either medication or surgery...

https://connect.mayoclinic.org/comment/1172597/

Discussion: Why Camzyos instead of surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 12, 2024

Hello @annd, and Merry Christmas too! Welcome to Mayo Connect, I am so very glad you...

https://connect.mayoclinic.org/comment/986350/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 25, 2023

https://connect.mayoclinic.org/discussion/hcm-care-tips-what-do-you-wish-you-had-known-for-after-surgery/ 71 sounds young to me! That is my significant others age and he's still a...

https://connect.mayoclinic.org/comment/900937/

Discussion: Has anyone stopped taking camzyos? I have stopped and feel very sick.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 23, 2023

Hello @johnlich, and welcome to Mayo Clinic Connect. I am glad you are here and shared...

https://connect.mayoclinic.org/comment/1209020/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 11, 2025

Hi @andyherman3, thanks for asking. 100% yes the surgery worked for me. I take only a...

https://connect.mayoclinic.org/comment/981699/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 16, 2023

I completely understand, I’ve had a murmur and issues with getting short of breath pretty much...

https://connect.mayoclinic.org/comment/909462/

Discussion: I'm scared

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 8, 2023

@deedee1958, a cough like that does not sound like HOCM, I would pursue further why you...

https://connect.mayoclinic.org/comment/1317083/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 31, 2025

Hi Joyce. I started on mavacamten (Camzyos) Oct. 17. I don't feel relief from my HOCM...

https://connect.mayoclinic.org/comment/1172820/

Discussion: Why Camzyos instead of surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 13, 2024

Hi everyone! I’m new to this group and after reading @mmicahk posts and worries about surgery...

https://connect.mayoclinic.org/comment/1297616/

Discussion: Septal Myectomy Consideration

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 5, 2025

My dad was on the YMS 302, a mine sweeper. They were the only wooden ships...

https://connect.mayoclinic.org/comment/1226337/

Discussion: Sudden dizziness

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 31, 2025

Hi there @joannoxenham, let me officially welcome you to Mayo Connect. I posted an article from...

https://connect.mayoclinic.org/comment/1087778/

Discussion: What does heart failure mean with HOCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 16, 2024

Welcome to Mayo Connect @randimarie! I am so glad you found this site, and you will...

https://connect.mayoclinic.org/comment/1096718/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 30, 2024

Try not to worry about the back pain @dbrima! It's pretty common for many people, try...

https://connect.mayoclinic.org/comment/900236/

Discussion: Has anyone stopped taking camzyos? I have stopped and feel very sick.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 22, 2023

Thanks for your detailed reply. @karukgirl I will respond and/or pose my questions in the order...

https://connect.mayoclinic.org/comment/1002230/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 23, 2024

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