Hypertrophic Cardiomyopathy (HCM) Support Group

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Has anyone taking Camzyos gone up to an altitude of 7000 feet or higher? If so...

https://connect.mayoclinic.org/comment/1084145/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 10, 2024

I was only diagnosed 7 years ago. It is such a terrible disease that really no...

https://connect.mayoclinic.org/comment/1380132/

Discussion: Has anyone stopped taking camzyos? I have stopped and feel very sick.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 26, 2025

I have been on 2.5 mg of Camzyos for one year and also take Zoloft. I...

https://connect.mayoclinic.org/comment/1256965/

Discussion: Zoloft and Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 13, 2025

Like I mentioned I had major back surgery in January, I was under 3-4 hours I...

https://connect.mayoclinic.org/comment/1090731/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 20, 2024

Hi there @8leonard. I'm so glad you found the Camzyos support group here on Mayo Connect....

https://connect.mayoclinic.org/comment/906296/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 2, 2023

I think anyone facing the prospect of having open heart surgery would be scared, @chris7121. I...

https://connect.mayoclinic.org/comment/865810/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 24, 2023

Hi Valerie. I’m Deborah - was diagnosed two years ago with HOCM (obstructive hcm). I’ve been...

https://connect.mayoclinic.org/comment/1390249/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 9, 2025

@karukgirl , Thanks. I am currently taking metoprolol (not a candidate for Camzyos, yet) and have...

https://connect.mayoclinic.org/comment/914147/

Discussion: HOCM, Alcoholism & Making Positive Changes

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 16, 2023

May I ask if you feel better after the septal myectomy . I am 2 weeks...

https://connect.mayoclinic.org/comment/893850/

Discussion: Has anyone stopped taking camzyos? I have stopped and feel very sick.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 11, 2023

Apologies if this question has been answered but I don't recall seeing it addressed here. The...

https://connect.mayoclinic.org/comment/978843/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 11, 2023

Look for a second opinion with another Cardiologist that treats HCOM (obstructive hypertrophic cardiomiopathy) and is...

https://connect.mayoclinic.org/comment/1166139/

Discussion: Frustrated: Acing the treadmill test but chest tightness while walking

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 1, 2024

How bizarre! Do you think this is a side effect of Camzyos @kelliw? I can't wait...

https://connect.mayoclinic.org/comment/913944/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 16, 2023

I was diagnosed with HCM Because of the distance i live from Mayo 400+ miles it...

https://connect.mayoclinic.org/comment/1211233/

Discussion: Why Camzyos instead of surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 14, 2025

There is a new drug "Aficantem" is in the final stage of trials pending approval by...

https://connect.mayoclinic.org/comment/1143940/

Discussion: Why some stop taking Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 19, 2024

I missed this post by you about the gradient and septal thickness. My gradient before my...

https://connect.mayoclinic.org/comment/1271262/

Discussion: Feeling tired all the time- One month on higher dose of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 31, 2025

I'm an 81byr old who was diagnosed with HCM MAR 2023 STARTED WITH camzyos that month...

https://connect.mayoclinic.org/comment/1070954/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 19, 2024

@colleenyoung Hi my name is MelanieM & I going for my second echo for Camzyos. I...

https://connect.mayoclinic.org/comment/1404043/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 28, 2025

I understand where you are coming After alot of back on CAMZYOS my Cardiologist will not...

https://connect.mayoclinic.org/comment/1205912/

Discussion: Why Camzyos instead of surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 7, 2025

I have just joined this forum. I am Canadian with HCM and Camzyos is being recommended...

https://connect.mayoclinic.org/comment/800729/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 23, 2023

Been off camzyos now 17 days! Doing pretty good so far as far as walking around...

https://connect.mayoclinic.org/comment/1316906/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 30, 2025

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