Support Groups

Head & Neck Cancer Support Group

Public Support Group
1,851 total results
Discussions (147)
Tumor Lymph node neck still there
Hi, my husband is recovering from radiation & chemo, last treatment a week ago. I am very concerned about the tumor on his neck because...
Support Group: Head & Neck Cancer
Last active: Sep 2, 2023
Phantom Smell
Hi, has anyone who has been treated with radiation therapy for head or neck cancer experienced phantosmia, or smelling something that is not there? For...
Support Group: Head & Neck Cancer
Last active: Oct 20, 2018
Lymph node dissection
Was diagnosed with squamous tongue cancer 10/6/22. At the time no sign of cancer in the nodes on the PET scan. Had surgery 10/26/22 to...
Support Group: Head & Neck Cancer
Last active: Sep 24, 2023
HELP! Post Cancer Throat Pain
My dad (now 83 years old) had tonsil cancer 10 years ago. 35 radiation treatments plus chemo killed the tumor. This past year, radiation fibrosis/necrosis...
Support Group: Head & Neck Cancer
Last active: Oct 3 8:12pm
Diagnosed with tongue cancer (2nd cancer): Worried about treatment
In 2011, I’ve had ambeplastoma(lower jaw cancer), I now was diagnosed with tongue cancer on October 11, 2024, I did radiation treatment in 2011, but...
Support Group: Head & Neck Cancer
Last active: Nov 4 2:58pm
SCC HPV+ on right tonsil and nodes treatment plan.
Hi all. My 70 year young husband has been diagnosed with SCC HPV+ on right tonsil, only detected by lump on neck. RO says N1....
Support Group: Head & Neck Cancer
Last active: Mar 29, 2023
Radical Neck Dissection concerns
Hello, This is my first post. So let me introduce myself. I am the caregiver, and my husband is the patient. He was diagnosed with...
Support Group: Head & Neck Cancer
Last active: May 22, 2023
Kidney recovery after H&N treatments
Hello! I was diagnosed with H&N SSC cancer last August and had 35 treatments of radiation and 7 rounds of Cisplatin. My last chemo was...
Support Group: Head & Neck Cancer
Last active: Jan 12 1:05pm
Anyone on dabrafenib (Tafinlar) & trametinib (Mekinst) oral chemo?
is anyone else taking mekinist and dabrafenib for oral chemo. very nervous about the situation. onconologist agree on no target radiation. have no idea to...
Support Group: Head & Neck Cancer
Last active: Dec 13, 2023
Recently diagnosed with cancer on left tonsil with swollen lymph nodes
The only treatment options i have been offered is chemo and radiation. Radiation 5 times a week for 7 weeks and chemo once a week...
Support Group: Head & Neck Cancer
Last active: Dec 29, 2023
Sarcoma of nasal cavity - any input?
New member here -- hello friends! I've been reading the posts for a few weeks. My healthy 81 year-old husband has been diagnosed with a...
Support Group: Head & Neck Cancer
Last active: Nov 16, 2023
SCC in tonsil/throat spreading: What should be next step?
HelloI am looking help for my uncle.Squamous cell carcinoma started in tonsil/throat, P16 positive,Went through radiation, it came back and spreadWent through chemo, had rough...
Support Group: Head & Neck Cancer
Last active: Oct 29 11:11am
Preventing pneumonia
For those who cannot swalliw at all, like my husband, have you any advice on how to stop getting pneumonia? Does it improve after radiation...
Support Group: Head & Neck Cancer
Last active: Jul 13 11:15am
Adenoid cystic carcinoma - left tongue base
Primary radiation Jan 2013 and re-radiation Oct 2016. CT Angio Apr 2017. to view deep ulcer in left tongue base which may be cancerous and...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2018
Has anyone had surgery to remove scar tissue?
I have a lot of scar tissue from radiation leaving me with a challenged airway - it has also ratcheted down on my vocal cords...
Support Group: Head & Neck Cancer
Last active: Jun 24 1:34pm
Extranodal marginal zone lymphoma
Hi, I was recently diagnosed with extranodal marginal zone lymphoma to the base of tongue and palatine tonsils. I also have Sjogren's Syndrome and Lymphocytic...
Support Group: Cancer
Last active: Feb 15 8:33pm
Leaving group as husband passed away
After many months of struggling with his cancer, 35 rounds of radiation, and several hospital stays due to aspiration pneumonia because he could not swallow...
Support Group: Head & Neck Cancer
Last active: Sep 17 11:59am
Tonsil Cancer from HPV
I discovered I had a tumor on my right tonsil in April and it had moved to one lymph node - I had robotic surgery...
Support Group: Head & Neck Cancer
Last active: Mar 19 9:25am
Tongue and tonsil HPV found.
Just diagnosed hpv viral back of tongue etc. I'm not sure how quality of life will be during and after. 76 male good shape. Would...
Support Group: Head & Neck Cancer
Last active: Jan 4 1:46pm
90 year old mom to have teeth removed - 6 years post oral cancer
My mom had oral cancer and follow up radiation 6 years ago. She has dementia and it has been hard to make sure she looks...
Support Group: Head & Neck Cancer
Last active: Jul 14, 2020