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Head & Neck Cancer Support Group

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Discussions (263)
Head and Neck Cancer and the possible consequences.
I am a survivor of squamous cell carcinoma at the base of my tongue. I'm now 18 years out. Everyone seems to have the usual...
Support Group: Head & Neck Cancer
Last active: 4 days ago
Anyone have a severe earache and sore throat weeks after chemo and ra?
My chemo and radiation treatments for tonsil cancer ended on April 7, 2023. I expected to feel really bad afterwards which I did. Everything I...
Support Group: Head & Neck Cancer
Last active: Jun 11, 2023
Throat Pain Help
Hey everyone, My husband just finished week 3 of proton radiation (15x) and his 3rd round of chemo. We’ve got 4 more weeks to go—4...
Support Group: Head & Neck Cancer
Last active: Mar 21, 2025
What treatment are you receiving for Baroreceptor failure?
I've mentioned here before that a result of neck radiation and/or surgery can result in damage to the baroreceptors in your neck. These are the...
Support Group: Head & Neck Cancer
Last active: Feb 6 11:39am
The Importance of Comfort Care (Palliative Care)
For those who are patients at Mayo (or who have explored beyond this particular discussion group), this might not be news to you. For everyone...
Support Group: Head & Neck Cancer
Last active: Sep 15, 2025
Cordotomy versus Tracheotomy
I am faced with a dilemma. My vocal cords are paralyzed bilaterally from radiation treatment that ended approximately one year ago. Because of this, I...
Support Group: Head & Neck Cancer
Last active: Jul 18, 2021
Itchy skin with Keytruda
Hi, I'm going to have my last of 14 immunotherapy infusions for tongue cancer in a few weeks. I'm in a study, and had two...
Support Group: Head & Neck Cancer
Last active: Aug 10, 2025
Seeking Support: First Mayo Appointment for Husband's Cancer
Hi everyone,My husband and I are feeling a bit anxious as we prepare for his first appointment at the Mayo Clinic in Rochester, and we'd...
Support Group: Head & Neck Cancer
Last active: Feb 22, 2025
My life in remission
It’s been a very long time since I have posted an update. This will be long and boring but hopefully this will give some newly...
Support Group: Head & Neck Cancer
Last active: Jan 29, 2025
5-Aminolevulinic Acid and Pulsed Dye Laser for Oral Leukoplakia
Hello all. I have a question. After having a Novocain injection to fill a bottom middle tooth, I developed a raw patch on the floor...
Support Group: Head & Neck Cancer
Last active: Jan 29, 2025
Saying hello and a question or two or three
Hi everybody. So I’m one day out from getting the dreaded phone call from the doctor wanting to discuss my CT scan. The highlights: 1)...
Support Group: Head & Neck Cancer
Last active: Aug 5, 2024
Tonsillectomy & neck lymph node removal at the sometime surgery
I had a .09 cm cancer in left tonsil and had both tonsils removed Also was told to remove 1 infected neck 2.0 cm lymph...
Support Group: Head & Neck Cancer
Last active: Aug 13, 2025
Surgery decision: How do you decide when offered 2 options?
Hello, we were all set for surgery on Monday. Husband has scc (recurring after MOHS 2 years ago) in his parotid and lymph nodes. It’s...
Support Group: Head & Neck Cancer
Last active: Nov 17, 2025
Late effect stage 4 tonsil & tongue cancer 18 years ago
I have questions/comments I need some input about which I can’t seem to find. I am 18 years out from surgery, chemo and radiation. I...
Support Group: Head & Neck Cancer
Last active: Apr 19, 2025
Post Treatment Questions: low RBC and dealing with throat pain
Hi everyone,My husband completed 7 weeks of Cisplatin and radiation on April 5th. As expected the first several weeks after were the worst but he...
Support Group: Head & Neck Cancer
Last active: Jun 25, 2024
Caretaker: Laryngectomy alternatives?
My partner was treated in 2015 for Stage IVa left true vocal fold SCC. Treated with Chemo (Cisplatin) and Radiation. Followed by bilateral neck dissection....
Support Group: Head & Neck Cancer
Last active: Apr 7, 2025
Just diagnosed with Squamous Cell Tonsil cancer without a biopsy
My husband had a sore throat for several months. He finally saw his internist who noticed a spot on his tonsil. He was referred to...
Support Group: Head & Neck Cancer
Last active: Jan 9, 2024
What’s left after "cured" of nasopharyngeal cancer?
I was “cured” from my stage 4 non-small cell Nasopharyngeal carcinoma after 8 months of living hell treatments in 2012. After the forth dose of...
Support Group: Head & Neck Cancer
Last active: Jan 2 9:04am
Anyone living with aggressive B-cell non-Hodgkin lymphoma (NHL)?
Anyone living with Non Hodgkins Lymphoma aggressive Bcell? My husband began treatment after a tumour was found base of tongue. Mouth sores from chemo seem...
Last active: Jan 31 2:35am
Bone infection leading to trapezius flap surgery
Twice radiated salivary duct cancer. Developed infection in cheek. Deepened to expose mandible. Just had trapezius flap surgery to take tissue from back to cheek....
Support Group: Head & Neck Cancer
Last active: Nov 25, 2022