Head & Neck Cancer Support Group | Mayo Clinic Connect

I am wondering if anyone on here has tried or heard of the PENTO protocol. pentoxifylline...

https://connect.mayoclinic.org/comment/1534430/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Mar 24 1:06pm

@bgm1157 my husband is going to take it for fibrosis in his throat from 14 year...

https://connect.mayoclinic.org/comment/1530964/

Discussion: Are you experiencing baroreflex failure?

Support Group: Head & Neck Cancer

Posted: Mar 19 7:59pm

I am looking for red light treatment for my husband with 15 year old fibrosis from...

https://connect.mayoclinic.org/comment/1548026/

Discussion: Anyone have success with red light therapy for radiation effects?

Support Group: Head & Neck Cancer

Posted: 4 days ago

I believe fat grafting for post-radiation neck fibrosis is reasonably new. Besides that, for me the...

https://connect.mayoclinic.org/comment/1361056/

Discussion: Fat grafting or Botox to relief pain & tightness after treatment?

Support Group: Head & Neck Cancer

Posted: Jul 31, 2025

I'm from the Boston area and suffering from neck fibrosis. No one I consult with has...

https://connect.mayoclinic.org/comment/1359383/

Discussion: Fat grafting or Botox to relief pain & tightness after treatment?

Support Group: Head & Neck Cancer

Posted: Jul 29, 2025

@jubilta77, I had understood that you wanted to speak with a professional at Mayo Clinic, which...

https://connect.mayoclinic.org/comment/1493589/

Discussion: Intervención quirúrgica por cáncer dé lengua: Tongue cancer surgery

Support Group: Head & Neck Cancer

Posted: Jan 29 3:40pm

I have radiation fibrosis as a result of treatment for tonsil cancer in 2003. This is...

https://connect.mayoclinic.org/comment/1497249/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Feb 3 12:22pm

@colleenyoung yes, but Greg has swallowing issues not jaw issues as well as baroreflex issues. There...

https://connect.mayoclinic.org/comment/1535278/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Mar 25 4:19pm

Hi I have never thought of Salonpas patches throughout my nasopharyngeal cancer treatment (that was more...

https://connect.mayoclinic.org/comment/1058790/

Discussion: Nerve damage

Support Group: Head & Neck Cancer

Posted: Apr 28, 2024

@roblem My chest tightness is as a result of lymphedema and radiation fibrosis. Self massage helps...

https://connect.mayoclinic.org/comment/1551391/

Discussion: Tongue cancer

Support Group: Head & Neck Cancer

Posted: 15 hours ago

Hello @josk Salonpas only work to block pain pathways so pain associated with the fibrosis could...

https://connect.mayoclinic.org/comment/1059186/

Discussion: Nerve damage

Support Group: Head & Neck Cancer

Posted: Apr 29, 2024

I clear mammogram and a great massage to help with the lymphedema and fibrosis in my...

https://connect.mayoclinic.org/comment/1226534/

Discussion: Today I'm grateful for... (add yours below)

Support Group: Head & Neck Cancer

Posted: Jan 31, 2025

I'm 6+ yr survivor of extensively treated Stage 4 squamous cell esophageal carcinoma. I have extensive...

https://connect.mayoclinic.org/comment/1364848/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Aug 6, 2025

@gregdwhipple, this must be hard on your dad. You might wish to see the suggestions in...

https://connect.mayoclinic.org/comment/1151488/

Discussion: HELP! Post Cancer Throat Pain

Support Group: Head & Neck Cancer

Posted: Oct 3, 2024

@cskippy Exercises and stretching help. But my Mayo surgeon prescribed massage by an OT. That was...

https://connect.mayoclinic.org/comment/1527266/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 15 8:40am

@janetlev, I moved your post to the Head & Neck Cancer support group as per your...

https://connect.mayoclinic.org/comment/1535238/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Mar 25 3:11pm

I was treated for my SCC with radiation and chemo. Like many of us, the radiation...

https://connect.mayoclinic.org/comment/1497794/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Feb 4 8:40am

Hey ... hear you. Best is to tell yourself and feel good that you did your...

https://connect.mayoclinic.org/comment/1379897/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Aug 26, 2025

Hello @pherlocher and welcome to the Head and Neck group. I myself had a bit of...

https://connect.mayoclinic.org/comment/1113947/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Jul 29, 2024

I also have fibrosis affecting my carotid arteries and swallowing. I have regular NIVA ultrasound studies....

https://connect.mayoclinic.org/comment/1113093/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Jul 28, 2024