Head & Neck Cancer Support Group | Mayo Clinic Connect

Support Group: Head & Neck Cancer

Posted: May 18 7:25pm

I am wondering if anyone on here has tried or heard of the PENTO protocol. pentoxifylline...

https://connect.mayoclinic.org/comment/1534430/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Mar 24 1:06pm

@bgm1157 my husband is going to take it for fibrosis in his throat from 14 year...

https://connect.mayoclinic.org/comment/1530964/

Discussion: Are you experiencing baroreflex failure?

Support Group: Head & Neck Cancer

Posted: Mar 19 7:59pm

I believe fat grafting for post-radiation neck fibrosis is reasonably new. Besides that, for me the...

https://connect.mayoclinic.org/comment/1361056/

Discussion: Fat grafting or Botox to relief pain & tightness after treatment?

Support Group: Head & Neck Cancer

Posted: Jul 31, 2025

Kelli at Cancerrehabpt.com has a new YouTube out on fibrosis. Here is,the link. https://youtu.be/oVvg-9N01is?si=nZIBgFygMLeTZ8s2 She has...

https://connect.mayoclinic.org/comment/1572781/

Discussion: Treatment for long term radiation fibrosis

Support Group: Head & Neck Cancer

Posted: May 12 8:26am

I'm from the Boston area and suffering from neck fibrosis. No one I consult with has...

https://connect.mayoclinic.org/comment/1359383/

Discussion: Fat grafting or Botox to relief pain & tightness after treatment?

Support Group: Head & Neck Cancer

Posted: Jul 29, 2025

@sf2026 Welcome Here. Glad you joined us. I can relate to fibrosis on the neck. I...

https://connect.mayoclinic.org/comment/1578685/

Discussion: I just started radiation, what kind of side effects should I expect?

Support Group: Head & Neck Cancer

Posted: May 19 9:35pm

@crogers Manual Lymphatic Drainage (MLD) is a specialized, gentle massage technique used to treat head and...

https://connect.mayoclinic.org/comment/1582567/

Discussion: My treatment journey with tongue cancer: And yours?

Support Group: Head & Neck Cancer

Posted: May 25 6:45am

I am looking for red light treatment for my husband with 15 year old fibrosis from...

https://connect.mayoclinic.org/comment/1548026/

Discussion: Anyone have success with red light therapy for radiation effects?

Support Group: Head & Neck Cancer

Posted: Apr 11 1:13pm

Hi I have never thought of Salonpas patches throughout my nasopharyngeal cancer treatment (that was more...

https://connect.mayoclinic.org/comment/1058790/

Discussion: Nerve damage

Support Group: Head & Neck Cancer

Posted: Apr 28, 2024

Thank you for sharing your experiences. I have gone through speech therapy and still use some...

https://connect.mayoclinic.org/comment/1585561/

Discussion: Speaking is difficult because of radiation treatment over 20 years ago

Support Group: Head & Neck Cancer

Posted: 5 days ago

Good afternoon…. Don’t know if I am experiencing fibrosis as well but my neck is stiff...

https://connect.mayoclinic.org/comment/1573634/

Discussion: Treatment for long term radiation fibrosis

Support Group: Head & Neck Cancer

Posted: May 13 8:53am

Hello @josk Salonpas only work to block pain pathways so pain associated with the fibrosis could...

https://connect.mayoclinic.org/comment/1059186/

Discussion: Nerve damage

Support Group: Head & Neck Cancer

Posted: Apr 29, 2024

My husband was diagnosed in 2004 with SCC, stage 4 with a 20% prognosis. My two...

https://connect.mayoclinic.org/comment/1563271/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Apr 30 11:25am

I clear mammogram and a great massage to help with the lymphedema and fibrosis in my...

https://connect.mayoclinic.org/comment/1226534/

Discussion: Today I'm grateful for... (add yours below)

Support Group: Head & Neck Cancer

Posted: Jan 31, 2025

I'm 6+ yr survivor of extensively treated Stage 4 squamous cell esophageal carcinoma. I have extensive...

https://connect.mayoclinic.org/comment/1364848/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Aug 6, 2025

@gregdwhipple, this must be hard on your dad. You might wish to see the suggestions in...

https://connect.mayoclinic.org/comment/1151488/

Discussion: HELP! Post Cancer Throat Pain

Support Group: Head & Neck Cancer

Posted: Oct 3, 2024

@cskippy Exercises and stretching help. But my Mayo surgeon prescribed massage by an OT. That was...

https://connect.mayoclinic.org/comment/1527266/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 15 8:40am

Hey ... hear you. Best is to tell yourself and feel good that you did your...

https://connect.mayoclinic.org/comment/1379897/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Aug 26, 2025

Hello @pherlocher and welcome to the Head and Neck group. I myself had a bit of...

https://connect.mayoclinic.org/comment/1113947/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Jul 29, 2024