Head & Neck Cancer Support Group

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Comments (130)

Like many on here, my maxillary + FFF surgeries (6 hours) was performed by the team...

https://connect.mayoclinic.org/comment/1322845/

Discussion: Diagnosed with Ameloblastoma

Support Group: Head & Neck Cancer

Posted: Jun 8, 2025

Dear Coquest23, It is *absolutely* my heartfelt desire to share Kathleen's story with head and neck...

https://connect.mayoclinic.org/comment/986740/

Discussion: What is your quality of life after a partial maxillectomy?

Support Group: Head & Neck Cancer

Posted: Dec 26, 2023

Hello, my name is Lisa, and I have salivary gland cancer-- adenoid cystic carcinoma. January 2016...

https://connect.mayoclinic.org/comment/174474/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Mar 3, 2019

In 2020 cancer in my Pyriform Sinus (a large tumor) and in the lymph nodes in...

https://connect.mayoclinic.org/comment/771169/

Discussion: Diagnosed with 5 mm tumor in pyriform sinus

Support Group: Head & Neck Cancer

Posted: Nov 9, 2022

That is correct, Tom, it was very rough. My dad went through very big spine surgery...

https://connect.mayoclinic.org/comment/945388/

Discussion: Diagnosed with Ameloblastoma

Support Group: Head & Neck Cancer

Posted: Oct 10, 2023

How are you doing? I am hoping you are well! Thank you so much for your...

https://connect.mayoclinic.org/comment/770659/

Discussion: Diagnosed with 5 mm tumor in pyriform sinus

Support Group: Head & Neck Cancer

Posted: Nov 8, 2022

@dragonfire Hello. I had the same HPV cancer and treatment that you have. Mine was a...

https://connect.mayoclinic.org/comment/1525260/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 12 10:30am

@johnfinaz, wow! What an inspiring story you have. You give good advice about getting more than...

https://connect.mayoclinic.org/comment/946231/

Discussion: Squamous cell carcinoma (SCC) P16+

Support Group: Head & Neck Cancer

Posted: Oct 12, 2023

Hi @lennyc, and welcome to you. I am sorry for your diagnosis. After beginning treatment for...

https://connect.mayoclinic.org/comment/974685/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Dec 4, 2023

Hello, @srm, I had radiation for Pyriform Sinus Cancer which is located by the vocal cords....

https://connect.mayoclinic.org/comment/632446/

Discussion: Struggling with shortness of breath and lump in throat

Support Group: Head & Neck Cancer

Posted: Sep 3, 2021

Thanks fir the positive quote I’m actually sitting here crying I just can’t wait to see...

https://connect.mayoclinic.org/comment/333643/

Discussion: Throat Radiation After-Effects, Aspiration & Suffocating Mucous

Support Group: Head & Neck Cancer

Posted: Feb 21, 2021

My journey began a bit differently. I had a regularly scheduled check-up with my PCP and...

https://connect.mayoclinic.org/comment/675552/

Discussion: Now I'm really scared, how did your journey begin?

Support Group: Head & Neck Cancer

Posted: Jan 27, 2022

I am 6 months post radiation. 35 sessions and 3 cisplatin 100mg treatments. I only did...

https://connect.mayoclinic.org/comment/827744/

Discussion: 13 weeks post radiation and throat pain continues

Support Group: Head & Neck Cancer

Posted: Mar 17, 2023

Dear denisebrown67, I am sorry to read of your suffering. Although my cancer was discovered in...

https://connect.mayoclinic.org/comment/330401/

Discussion: How I was diagnosed with Parotid Gland Cancer (High-grade NETs)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2021

Okay, it is going to be rough. The radiation treatment was hard especially hard for me....

https://connect.mayoclinic.org/comment/1357275/

Discussion: What to expect during Chemoradiation?

Support Group: Head & Neck Cancer

Posted: Jul 26, 2025

@tlhuckins, it's hard not to be worried and to leap to the worst. I agree with...

https://connect.mayoclinic.org/comment/330419/

Discussion: Left Tonsil Swollen

Support Group: Ear, Nose & Throat (ENT)

Posted: Dec 23, 2020

On a personal note, my initial appointment at MD Anderson is just under a week away...

https://connect.mayoclinic.org/comment/923934/

Discussion: Diagnosed with Ameloblastoma

Support Group: Head & Neck Cancer

Posted: Sep 4, 2023

Okay, I had this dental pushback/initial denial from insurance on my original 2007 ameloblastoma (jaw tumor,...

https://connect.mayoclinic.org/comment/858302/

Discussion: Teeth removal for HPV cancer: how to get insurance for replacement?

Support Group: Head & Neck Cancer

Posted: May 11, 2023

@lizzyj58 Here's my toolkit for how I dealt with the side effects: - Started 600mg gabapentin...

https://connect.mayoclinic.org/comment/1436866/

Discussion: Severe pain eating 7 weeks post radiation: Any tips?

Support Group: Head & Neck Cancer

Posted: Nov 12, 2025

I am new to this forum and this Story recently popped up on my news feed....

https://connect.mayoclinic.org/comment/1171746/

Discussion: Throat Radiation After-Effects, Aspiration & Suffocating Mucous

Support Group: Head & Neck Cancer

Posted: Nov 11, 2024