13 weeks post radiation and throat pain continues
It has now been 13 weeks since my final radiation (33 sessions) for my Squamous Cell Carcinoma throat cancer on the right side base of my tongue. Also had chemo with Cisplatin.
I had my feeding tube removed 12 weeks ago yet I am still on a liquid diet thus still losing weight. My issue is the severe pain in my throat. I still have several mouth ulcers that are not healing. The pain in my throat is constant but exasperated by any attempt to eat or drink.
As mentioned, I am still on liquids (protein shakes, boost and ensure). Most of the pain is on the left side of my throat in which it feels like there is a lump, sore, tumour??? Pain level varies daily (hourly). Either get burning pain while consuming liquids or sometimes it feels like swallowing razor blades.
Sometimes I can endure the pain while drinking my meals. Other times I need to numb my throat prior to drinking my protein shakes. Anything I have read indicates that these symptoms should last 4 to 6 weeks post radiation. My treatment team tell me that everything is normal. I truly sense they do not believe just how much pain I am in. I have a very high pain tolerance but there are many times I am literally in tears while drinking my meals.
Has anyone else experienced severe throat pain for long durations post radiation. If so, how long did it last and is there anything you have done to help heal the sores.
I am getting very frustrated and depressed. I don’t expect to be 100% pain free but feel I should not be experiencing this amount of pain and that I should be eating soft foods by now.