Head & Neck Cancer Support Group

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Comments (162)

@gregfrost had 35 rounds of radiation - and guess my radiation was pretty intense - to...

https://connect.mayoclinic.org/comment/1537563/

Discussion: Dentures plus implants after radiation

Support Group: Head & Neck Cancer

Posted: Mar 28 8:07pm

After oral cancer surgery, I underwent radiation therapy. That caused radiation fibrosis that has progressed in...

https://connect.mayoclinic.org/comment/1054739/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Apr 21, 2024

@sepdvm hear you - had diagnosed and treated - nasopharyngeal carcinoma IV almost 20 yrs ago....

https://connect.mayoclinic.org/comment/1524003/

Discussion: Anyone dealing with dysphagia? What helps?

Support Group: Head & Neck Cancer

Posted: Mar 10 12:57pm

Thank you so much for sharing the information. I was surprised to hear that the doctor...

https://connect.mayoclinic.org/comment/1364991/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Aug 6, 2025

Im in Jacksonville so if anyone knows of someone who gives Botox in neck please let...

https://connect.mayoclinic.org/comment/1288658/

Discussion: Ten years after throat radiation and ongoing damage

Support Group: Head & Neck Cancer

Posted: Apr 24, 2025

I have fibrosis really bad also . I'm currently doing physical therapy,speech therapy and have manual...

https://connect.mayoclinic.org/comment/1327066/

Discussion: Relief from Radiation Fibrosis Syndrome

Support Group: Head & Neck Cancer

Posted: Jun 14, 2025

I'm just a year and a half out from my radiation following tongue cancer surgery. I'm...

https://connect.mayoclinic.org/comment/1278874/

Discussion: Ten years after throat radiation and ongoing damage

Support Group: Head & Neck Cancer

Posted: Apr 10, 2025

Hello @josk . It is discouraging to keep adding new problems so many years post treatment....

https://connect.mayoclinic.org/comment/1524511/

Discussion: Anyone dealing with dysphagia? What helps?

Support Group: Head & Neck Cancer

Posted: Mar 11 9:31am

Hello @omaest. I also suffer from fibrosis 14 years after radiation but it is my neck...

https://connect.mayoclinic.org/comment/1588200/

Discussion: Speaking is difficult because of radiation treatment over 20 years ago

Support Group: Head & Neck Cancer

Posted: 1 day ago

@sepdvm There is so much in your post that is helpful to others. I had to...

https://connect.mayoclinic.org/comment/1523619/

Discussion: Do late effects of sinus radiation contribute to TBI/concussion?

Support Group: Head & Neck Cancer

Posted: Mar 10 12:55am

Thank you for this suggestion! I’ll try anything if it will help him not have to...

https://connect.mayoclinic.org/comment/784870/

Discussion: Severe Radiation burns from adverse reaction to mask from treatment

Support Group: Head & Neck Cancer

Posted: Dec 14, 2022

Hi Josk, I have a lead that Brigham & Womens Pain Management in Boston might have...

https://connect.mayoclinic.org/comment/1360994/

Discussion: Fat grafting or Botox to relief pain & tightness after treatment?

Support Group: Head & Neck Cancer

Posted: Jul 31, 2025

Hi Steve .. my swallowing and speech (dysphagia and dysarthria) & also with severe neck fibrosis...

https://connect.mayoclinic.org/comment/1180296/

Discussion: Difficulty swallowing liquids

Support Group: Head & Neck Cancer

Posted: Nov 26, 2024

Hi Steve ... just like you I have never heard of or aware that botox or...

https://connect.mayoclinic.org/comment/1360897/

Discussion: Fat grafting or Botox to relief pain & tightness after treatment?

Support Group: Head & Neck Cancer

Posted: Jul 31, 2025

I finished radiation & chemo treatment (35 rad & 7 wks chemo) Nov. 5, 2021, for...

https://connect.mayoclinic.org/comment/817564/

Discussion: HPV P16 positive cancer

Support Group: Head & Neck Cancer

Posted: Feb 26, 2023

@harleytiger It definitely sounds like Fibrosis. Unfortunately neck issues are a big part of post radiation...

https://connect.mayoclinic.org/comment/1435447/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Nov 10, 2025

kudos ... hear you! I totally believe in quality of life to quantity - since my...

https://connect.mayoclinic.org/comment/1312662/

Discussion: 15 years after parotid cancer

Support Group: Head & Neck Cancer

Posted: May 25, 2025

Excess mucus in the throat was a huge issue for me following a maxillectomy and radiation....

https://connect.mayoclinic.org/comment/862352/

Discussion: Excess phlegm after oral cancer surgery: What helps?

Support Group: Head & Neck Cancer

Posted: May 19, 2023

Just FYI. I had cobalt radiation to my neck at age 4 for recurrent tonsillitis. At...

https://connect.mayoclinic.org/comment/817736/

Discussion: Late side effects from Cobalt Radiation for Nasopharyngeal Cancer

Support Group: Head & Neck Cancer

Posted: Feb 26, 2023

I'm 6 months out (Rt tonsil HPV cancer surgery and 25 rounds radiation) and I'm not...

https://connect.mayoclinic.org/comment/1510949/

Discussion: Getting frustrated with throat pain post radiation

Support Group: Head & Neck Cancer

Posted: Feb 21 7:27am

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