Head & Neck Cancer Support Group

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Comments (585)

Hello. I am "vintage" 2008. Was 48 at the time. SCC right tonsil. Sorry, I don't...

https://connect.mayoclinic.org/comment/1543726/

Discussion: HPV 16 neck cancer journey…

Support Group: Head & Neck Cancer

Posted: Apr 6 4:58am

Many or I probably could say most patients go on a feeding tube during the most...

https://connect.mayoclinic.org/comment/1055758/

Discussion: How to deal with constant stress and worry as caregiver?

Support Group: Head & Neck Cancer

Posted: Apr 23, 2024

I'm having same issues. Some foods like mayo, salad dressings, anything with vinegar stings my tongue....

https://connect.mayoclinic.org/comment/1331755/

Discussion: I am now post 8 months from my radiation treatment for throat cancer.

Support Group: Head & Neck Cancer

Posted: Jun 21, 2025

@hillx001 Thanks again, Gary. I learned something new about aspiration prevention: Swallow-Cough-Swallow Take a sip, then...

https://connect.mayoclinic.org/comment/1527408/

Discussion: What are the lifestyle changes with permanent G-Tube?

Support Group: Head & Neck Cancer

Posted: Mar 15 10:58am

@sharooni No, my husband didn't have a feeding tube, he was lucky. Probably because he had...

https://connect.mayoclinic.org/comment/1499590/

Discussion: Post treatment for SCC tongue cancer following 7 weeks radiation

Support Group: Head & Neck Cancer

Posted: Feb 6 1:41pm

Hi, I join here for my husband to learn from the group My husband at 71...

https://connect.mayoclinic.org/comment/1248211/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Mar 1, 2025

Thank you. I would say my sense of taste is about 70% returned. That’s ahead of...

https://connect.mayoclinic.org/comment/1507026/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Feb 16 8:25am

I had TORS surgery to remove base of tongue Cancer April 2023. Also had radical neck...

https://connect.mayoclinic.org/comment/996057/

Discussion: 30 gy radiation side effects

Support Group: Head & Neck Cancer

Posted: Jan 12, 2024

It will take many months and up to a year or so for the salvia glands...

https://connect.mayoclinic.org/comment/1377147/

Discussion: Head and neck cancer: Saliva production still low after treatment

Support Group: Head & Neck Cancer

Posted: Aug 23, 2025

My feeding tube came out no problem. Then after a few days I started to get...

https://connect.mayoclinic.org/comment/1487169/

Discussion: Post tonsil cancer

Support Group: Head & Neck Cancer

Posted: Jan 20 9:29am

In looking back at my notes, it took me about 10 months to get most of...

https://connect.mayoclinic.org/comment/1260422/

Discussion: When will my sense of taste and smell return?

Support Group: Head & Neck Cancer

Posted: Mar 17, 2025

May I ask what state your tongue is/was in and how long? My tongue is swollen...

https://connect.mayoclinic.org/comment/1185776/

Discussion: 20 weeks Post Treatment What to Eat?

Support Group: Head & Neck Cancer

Posted: Dec 6, 2024

I agree with Lori, hang in there. My tastes came back one at a time starting...

https://connect.mayoclinic.org/comment/925065/

Discussion: How long before my taste buds recover after H&N treatments?

Support Group: Head & Neck Cancer

Posted: Sep 6, 2023

My experience and frustration was much the same. I was not prepared to find out that...

https://connect.mayoclinic.org/comment/1458120/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Dec 10, 2025

My experiences have been similar to dennymayo. I am 18 months post-treatment and foods that are...

https://connect.mayoclinic.org/comment/1082104/

Discussion: How long before my taste buds recover after H&N treatments?

Support Group: Head & Neck Cancer

Posted: Jun 6, 2024

@SRM....how did things work out for you? It's been more than 2 years since your post....

https://connect.mayoclinic.org/comment/826756/

Discussion: 13 weeks post radiation and throat pain continues

Support Group: Head & Neck Cancer

Posted: Mar 15, 2023

Just another input here…. Finished surgery and same treatments Nov 23…. Frustratingly (is that a word?)...

https://connect.mayoclinic.org/comment/1080715/

Discussion: Post Treatment Questions: low RBC and dealing with throat pain

Support Group: Head & Neck Cancer

Posted: Jun 4, 2024

How long ago were his radiation treatments? The reason for this question is that in some...

https://connect.mayoclinic.org/comment/875133/

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Jun 8, 2023

Sounds like a familiar path! I lost almost 50lbs in treatment and have been putting on...

https://connect.mayoclinic.org/comment/890606/

Discussion: How to gain weight after H&N Cancer treatment ends?

Support Group: Head & Neck Cancer

Posted: Jul 5, 2023

@zenren14 I am 22 days out now and still have limited energy and really cold. One...

https://connect.mayoclinic.org/comment/1428107/

Discussion: Your tips for recovery after 35 radiation treatments for tonsil cancer

Support Group: Head & Neck Cancer

Posted: Nov 1, 2025

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