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Anyone taken Lomustine for glioblastoma after recurrence while on TMZ?
My husband is 16 months post diagnosis for GMB. Has been on TMZ but MRI on March 10 showed small recurrence. To have Gamma Knife...
Support Group: Brain Tumor
Last active: Apr 18 4:25pm
Discussion
Non Operable Glioblastoma 4: Tips for chemotherapy and radiotherapy?
Hi everyoneI have a non operable glioblastoma and wanted to see if anyone else has managed just with chemotherapy and radiotherapy? I haven’t started treatment...
Support Group: Brain Tumor
Last active: Jun 8, 2025
Discussion
Glioblastoma: Anyone else struggle with being a caretaker?
Just wondering if anyone else struggles with being a caretaker for their spouse?My husband was diagnosed with a Glioblastoma over 4 years ago. Now while...
Support Group: Brain Tumor
Last active: Aug 21, 2025
Discussion
Side effects from medication or progression of glioblastoma?
My husband, David, had surgery to remove a tumor in his frontal lobe on May 10th this year. The biopsy presented with Glioblastoma Grade 4....
Support Group: Brain Tumor
Last active: Jul 16, 2024
Discussion
Glioblastoma grade 4 thalmic tumor unresectable
Jan 12th, we thought my 62 y.o husband had a mikd stroke with left side hemiparesis. After scans showing a basal ganglia tumor, he was...
Support Group: Brain Tumor
Last active: Mar 29, 2024
Discussion
How do I handle the mood changes caused by glioblastoma?
How do I handle the mood issues. I try to not ask questions or even talk about anything that can set him off
Support Group: Brain Tumor
Last active: Dec 3, 2025
Discussion
Caregiving taking its toll: Stage 4 Glioblastoma & Lymphoma
History: Husband is 84 born 1/30/40Tested on Oct 2019 w/GlioblastomaSurgery Jan 2020 Tumor sucked outRadiation 34 treatmentsChemo pills dosed 5 days per month for 15...
Support Group: Caregivers
Last active: Sep 9, 2025
Discussion
Supporting Glioblastoma Patient: What can I expect as the caregiver?
My husband will have resection surgery next week. What should I expect when he comes home? How can I prepare? It's me, my husband and...
Support Group: Caregivers
Last active: Jan 28 12:45pm
Discussion
Spouse behavior. Husband has inoperable grade 4 glioblastoma
Our 50 year-old son who lives eight hours from us has been diagnosed with grade 4 inoperable glioblastoma. He's starting his third week of chemo/radiation....
Support Group: Brain Tumor
Last active: 1 day ago
Discussion
My guy has Glioblastoma: how to help fulfill his legacy?
My guy has a glioblastoma. We are five weeks into the beginning of this information, and we met exactly 10 months ago, and I knew...
Support Group: Brain Tumor
Last active: Sep 30, 2024