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Brain Tumor Support Group

Public Support Group
378 total results
Discussions (47)
Post sugery
I had brain surgery for meningioma on my right side in 2007. I have MRI done every year after surgery until now. So far it...
Support Group: Brain Tumor
Last active: 2 days ago
Diagnosed with Meningioma in the right parasagittal frontal convexity
I was recently diagnosed with Meningioma in the right parasagittal frontal convexity measuring the size of grape and would like to connect with someone diagnosed...
Support Group: Brain Tumor
Last active: Mar 26 1:09pm
Olfactory groove meningioma
I've been having regular MRI's for almost 10 years. My last two have shown growth, and my neurologist says it's time to have it removed....
Support Group: Brain Tumor
Last active: May 27, 2022
Recently diagnosed bilateral meningiomas
A recent MRI discovered I have two small meningiomas, 9mm and 1.3 cm in size. I am scared but have no symptoms. This was an...
Support Group: Brain Tumor
Last active: Nov 5 8:54pm
What is your experience with GammaTile Therapy for Meningioma?
Needing further treatment for recurring meningioma 3. One set of physicians will reradiate and second opinion states to consider surgery for resection on new growth,...
Support Group: Brain Tumor
Last active: Apr 1, 2023
Multiple meningiomas in past, but now my new tumor is GBM4
Over the past 22 years I have been diagnosed and had surgery for multiple meningiomas. The first surgery was 22 years ago as my tumor...
Support Group: Brain Tumor
Last active: Aug 5 8:54am
Meningioma pressing against the optic nerve
My wife Marylou (59) has a tumor. Diagnostic Studies: A brain MRI from 07/23/2021, shows a very large left sphenoid wing meningioma, that encases the...
Support Group: Brain Tumor
Last active: Aug 13, 2023
Left Tentorial meningioma: What should I expect?
I just learned that my meningioma is tentorial. I know that this is a rare type and that surgery is often more risky based on...
Support Group: Brain Tumor
Last active: Feb 8, 2022
Brain surgery question for families: Waiting area at St. Mary's
Hi - my dad will be having brain surgery to remove a meningioma in a few weeks at St. Mary’s (Mayo) in Rochester, MN.Does anyone...
Support Group: Brain Tumor
Last active: Jun 29 2:05pm
Meningioma and Cavernoma: Stressed Waiting and Watching
Never ever thought I'd be in a discussion like this. But. No surgeries ever. "Healthy as a Horse." 62-year-old female. Diagnosed with "left paramedian posterior...
Support Group: Brain Tumor
Last active: Mar 11, 2018
Newly diagnosed with a meningioma. 2 opinions differ
Symptoms of headaches that wake me at night, ringing in the ears, oddly pretty auras, internal left eye pain and worsening vision lead to an...
Support Group: Brain Tumor
Last active: Mar 12, 2023
Cavernous sinus meningioma
Hello, I have recently been diagnosed with a right cavernous sinus meningioma that has wrapped around the carotid artery and is pressing on the optic...
Support Group: Brain Tumor
Last active: Dec 5, 2023
1.5 cm calcified Parafalcine meningioma
My CT scan recently showed the above. I am waiting for a MRI. I’m 63. I’m losing sleep. MD doesn’t think it will require surgery...
Support Group: Brain Tumor
Last active: Sep 14 8:36am
Diagnosed with Meningioma
Saw a neurosurgeon went over my options. My surgery date is tentatively the end of this month. Nervous.. looking for advice from someone who has...
Support Group: Brain Tumor
Last active: Apr 8, 2023
Trigeminal neuralgia worse 10 years after MVD now tentorial meningioma
I had MVD surgery for trigeminal neuralgia 10 yrs ago. The surgery was partially successful for a while although I continued to have terrible eye...
Support Group: Brain & Nervous System
Last active: May 30, 2022
Should I choose to do surgery right away or wait a while?
I was diagnosed with having meningioma measuring 2.9cm in the left posterior fossa. There is focal mass effect on left pons with suggestion of impingement...
Support Group: Brain Tumor
Last active: Feb 16 7:35am
Meningioma in my Superior left parietal lobe-4 yr DX ann. Help!?
Good evening friends! Thanks in advance, for all of your support & info for me to consider, when it comes to my diagnosis of a...
Support Group: Brain Tumor
Last active: Nov 9, 2022
Are any of you making life changes due to tumors? Hair coloring? etc?
At age 66 I am recently diagnosed with a 4.2 cm meningioma and 2 cm vestibular schwannoma. I am seeing the team at Mayo and...
Support Group: Brain Tumor
Last active: Jul 4 12:43pm
Grade 3 meningioma with double vision
My husband had craniotomy in 2022 for 5cm meningioma. Initially diagnosed as grade two. He did radiation following surgery. When it started to grow a...
Support Group: Brain Tumor
Last active: Aug 12 11:51am
Family reaction to my brain tumor (meningioma resection) was bizarre
I was reared with a large loving family. My meningioma was discovered by my blindness in my one eye. I had to rush to have...
Support Group: Brain Tumor
Last active: Aug 2 9:40am