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Brain Tumor Support Group

Public Support Group
458 total results
Discussions (51)
Diagnosed with Meningioma in the right parasagittal frontal convexity
I was recently diagnosed with Meningioma in the right parasagittal frontal convexity measuring the size of grape and would like to connect with someone diagnosed...
Support Group: Brain Tumor
Last active: 1 day ago
Meningioma invading the superior sagittal venous sinus: Next steps?
Hello,I have a meningioma that is invading the superior sagittal venous sinus, unfortunately is been there since 2019, but was able to be seen on...
Support Group: Brain Tumor
Last active: Jun 9 10:05pm
Proton or photon radiation for meningioma
Please share experience with proton or photon radiation. I had type 2 right parietal meningioma. Surgery was successful but a small bit of tumor left...
Support Group: Brain Tumor
Last active: 11 hours ago
Craniotomy for meningioma
Been diagnosed of fronto-parietal meningioma per CT scan. I’m very fine now without any symptoms. But doctors have requested for an MRI and afterwards surgery....
Support Group: Brain Tumor
Last active: Oct 25, 2022
Olfactory groove meningioma
I've been having regular MRI's for almost 10 years. My last two have shown growth, and my neurologist says it's time to have it removed....
Support Group: Brain Tumor
Last active: May 27, 2022
What is your experience with GammaTile Therapy for Meningioma?
Needing further treatment for recurring meningioma 3. One set of physicians will reradiate and second opinion states to consider surgery for resection on new growth,...
Support Group: Brain Tumor
Last active: Apr 1, 2023
Recently diagnosed bilateral meningiomas
A recent MRI discovered I have two small meningiomas, 9mm and 1.3 cm in size. I am scared but have no symptoms. This was an...
Support Group: Brain Tumor
Last active: Nov 5, 2024
Multiple meningiomas in past, but now my new tumor is GBM4
Over the past 22 years I have been diagnosed and had surgery for multiple meningiomas. The first surgery was 22 years ago as my tumor...
Support Group: Brain Tumor
Last active: Aug 5, 2024
Left Tentorial meningioma: What should I expect?
I just learned that my meningioma is tentorial. I know that this is a rare type and that surgery is often more risky based on...
Support Group: Brain Tumor
Last active: Feb 8, 2022
Meningioma and Cavernoma: Stressed Waiting and Watching
Never ever thought I'd be in a discussion like this. But. No surgeries ever. "Healthy as a Horse." 62-year-old female. Diagnosed with "left paramedian posterior...
Support Group: Brain Tumor
Last active: Mar 11, 2018
Meningioma pressing against the optic nerve
My wife Marylou (59) has a tumor. Diagnostic Studies: A brain MRI from 07/23/2021, shows a very large left sphenoid wing meningioma, that encases the...
Support Group: Brain Tumor
Last active: Aug 13, 2023
Newly diagnosed with a meningioma. 2 opinions differ
Symptoms of headaches that wake me at night, ringing in the ears, oddly pretty auras, internal left eye pain and worsening vision lead to an...
Support Group: Brain Tumor
Last active: Mar 12, 2023
What is the waiting area like for families at St. Mary's?
Hi - my dad will be having brain surgery to remove a meningioma in a few weeks at St. Mary’s (Mayo) in Rochester, MN.Does anyone...
Support Group: Brain Tumor
Last active: Jun 29, 2024
Cavernous sinus meningioma
Hello, I have recently been diagnosed with a right cavernous sinus meningioma that has wrapped around the carotid artery and is pressing on the optic...
Support Group: Brain Tumor
Last active: Dec 7, 2024
12 year old son & meningioma
My 12 year old son injured his neck on his scooter a year ago. We've been going to physical therapy, but it has not seemed...
Support Group: Brain Tumor
Last active: Dec 28, 2024
Diagnosed with Meningioma
Saw a neurosurgeon went over my options. My surgery date is tentatively the end of this month. Nervous.. looking for advice from someone who has...
Support Group: Brain Tumor
Last active: May 6 1:46pm
1.5 cm calcified Parafalcine meningioma
My CT scan recently showed the above. I am waiting for a MRI. I’m 63. I’m losing sleep. MD doesn’t think it will require surgery...
Support Group: Brain Tumor
Last active: 2 days ago
Should I choose to do surgery right away or wait a while?
I was diagnosed with having meningioma measuring 2.9cm in the left posterior fossa. There is focal mass effect on left pons with suggestion of impingement...
Support Group: Brain Tumor
Last active: Feb 13 8:26pm
Your tips: How to support someone recovering from brain surgery?
My sister-in-law is having a large meningioma removed today. For those of you that have had surgery, how was recovery, and what did you find...
Support Group: Brain Tumor
Last active: Mar 9 12:36pm
Meningioma in my Superior left parietal lobe-4 yr DX ann. Help!?
Good evening friends! Thanks in advance, for all of your support & info for me to consider, when it comes to my diagnosis of a...
Support Group: Brain Tumor
Last active: Nov 9, 2022