Support Groups

Brain Tumor Support Group

Lock icon Public Support Group
Clear Search
582 total results
Discussions (65)
Anyone had radiation for recurrent meningioma?
Hi all,I had a craniotomy 12 years ago at Mayo Jax for meningioma (sphenoid wing pressing left optic nerve). Post-op ocular stroke resulting in left...
Support Group: Brain Tumor
Last active: Jul 6 9:08pm
Recent meningioms July 2nd
I had craniotomy for my 4 cm meningioma on the 2nd of July. I get my staples out in 4 more days at my post...
Support Group: Brain Tumor
Last active: 11 hours ago
Low platelets: How high do they need to be for brain surgery?
I have a meningioma on lower right side. Possible surgeryI have low plattlet count does anyone know how high your platelet count has to be...
Support Group: Brain Tumor
Last active: Jun 1 8:38pm
Low platelets (ITP possibly) and meningioma: Anyone had both?
I'm 79 years old. Told I have itp about 3 years ago . My other test are normal so they are treating as ITP.I also...
Last active: Jun 23 8:30am
Has anyone been diagnosed with Meningioma with edema?
Had MRI two days ago and found 1.8 cm meningioma Met with internist today, said this is what they call a “mass affect” which is...
Support Group: Brain Tumor
Last active: Jun 27 12:04pm
Worried about swelling after meningioma removal
I am four months post meningioma removal anterior fossa, approach was craniotomy right side behind hairline. I recently had an onset of swelling like a...
Support Group: Brain Tumor
Last active: Jul 6 8:17pm
Right Frontal Lobe Meningioma
I was diagnosed with a right frontal lobe meningioma surrounding the blood vessels in February. It was an incidental find and was benign. But my...
Support Group: Brain Tumor
Last active: May 5 6:55pm
Proton radiation for atypical meningioma close to optic nerve
I am 54 years old. I had a craniotomy last fall to remove a 3x4 cm fronto temporal meningioma that has extended behind my left...
Support Group: Brain Tumor
Last active: Aug 26, 2023
Anyone had Proton Beam Therapy for Meningioma?
Has anyone received Proton Therapy for their meningioma? If so, was it successful in reducing the size without surgery? Thank you.
Support Group: Brain Tumor
Last active: Nov 9, 2025
Craniotomy for meningioma
Been diagnosed of fronto-parietal meningioma per CT scan. I’m very fine now without any symptoms. But doctors have requested for an MRI and afterwards surgery....
Support Group: Brain Tumor
Last active: Oct 25, 2022
Diagnosed with Meningioma in the right parasagittal frontal convexity
I was recently diagnosed with Meningioma in the right parasagittal frontal convexity measuring the size of grape and would like to connect with someone diagnosed...
Support Group: Brain Tumor
Last active: Jun 24, 2025
What is your experience with GammaTile Therapy for Meningioma?
Needing further treatment for recurring meningioma 3. One set of physicians will reradiate and second opinion states to consider surgery for resection on new growth,...
Support Group: Brain Tumor
Last active: Apr 1, 2023
Recently diagnosed bilateral meningiomas
A recent MRI discovered I have two small meningiomas, 9mm and 1.3 cm in size. I am scared but have no symptoms. This was an...
Support Group: Brain Tumor
Last active: Nov 5, 2024
Multiple meningiomas in past, but now my new tumor is GBM4
Over the past 22 years I have been diagnosed and had surgery for multiple meningiomas. The first surgery was 22 years ago as my tumor...
Support Group: Brain Tumor
Last active: Aug 5, 2024
Meningioma and Cavernoma: Stressed Waiting and Watching
Never ever thought I'd be in a discussion like this. But. No surgeries ever. "Healthy as a Horse." 62-year-old female. Diagnosed with "left paramedian posterior...
Support Group: Brain Tumor
Last active: Mar 11, 2018
12 year old son & meningioma
My 12 year old son injured his neck on his scooter a year ago. We've been going to physical therapy, but it has not seemed...
Support Group: Brain Tumor
Last active: Dec 28, 2024
Newly diagnosed with a meningioma. 2 opinions differ
Symptoms of headaches that wake me at night, ringing in the ears, oddly pretty auras, internal left eye pain and worsening vision lead to an...
Support Group: Brain Tumor
Last active: Mar 12, 2023
Proton or photon radiation for meningioma
Please share experience with proton or photon radiation. I had type 2 right parietal meningioma. Surgery was successful but a small bit of tumor left...
Support Group: Brain Tumor
Last active: Feb 6 7:42am
Meningioma invading the superior sagittal venous sinus: Next steps?
Hello,I have a meningioma that is invading the superior sagittal venous sinus, unfortunately is been there since 2019, but was able to be seen on...
Support Group: Brain Tumor
Last active: Dec 26, 2025
Have you had Gamma knife surgery? What can I expect?
My partner is having Gamma Knife Surgery for a meningioma. If you’ve had it can you tell me what to expect? Pain after? How long...
Support Group: Brain Tumor
Last active: Jan 29 12:32am