Brain Tumor Support Group

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Comments (151)

I told my primary doctor who referred me to neuro to inform MRI tech of my...

https://connect.mayoclinic.org/comment/84434/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 7, 2018

@jameslj, welcome. That is a good question. You're right that hearing loss related to an acoustic...

https://connect.mayoclinic.org/comment/977362/

Discussion: Vestibular Schwannoma Hearing Loss Treatment?

Support Group: Brain Tumor

Posted: Dec 8, 2023

I have just been diagnosed with a small acoustic neuroma and it explains the symptoms I've...

https://connect.mayoclinic.org/comment/84391/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jun 3, 2018

Hello @rose4622 and welcome to Mayo Connect, As you read through the posts under this discussion...

https://connect.mayoclinic.org/comment/84423/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jul 28, 2018

I also had hydrocephalus, but mine was caused by my acoustic neuroma. My tumor was so...

https://connect.mayoclinic.org/comment/84311/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 21, 2017

Acoustic neuroma..also known as vestibular schwannoma....my tumor was a schwannoma tumor but was located on my...

https://connect.mayoclinic.org/comment/84624/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 26, 2019

Welcome to Connect @katfred. I'm glad you found us so early in your journey. I'm sure...

https://connect.mayoclinic.org/comment/84246/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Sep 12, 2016

I have 25 or more tumors that I've found so far but brain mri was negative...

https://connect.mayoclinic.org/comment/858548/

Discussion: Anyone have Schwannomatosis? (Neurofibromatosis type 1 (NF1)

Support Group: Spine Health

Posted: May 12, 2023

I was diagnosed 7 days ago with a low grade glioma in my temporal lobe. Prior...

https://connect.mayoclinic.org/comment/1144077/

Discussion: Share Your Brain Tumor type & Years since Diagnosis

Support Group: Brain Tumor

Posted: Sep 19 1:17pm

Tracy, just wondering if anyone on this board has had yearly MRI'S after having an acoustic...

https://connect.mayoclinic.org/comment/84696/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 23, 2020

Was diagnosed with acoustic neuroma a month ago by ENT after mri. I have all the...

https://connect.mayoclinic.org/comment/84321/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 23, 2017

@kkkk your thyroid nodules are caused from your acoustic neuroma. I know because mine caused hypothyroidism....

https://connect.mayoclinic.org/comment/84644/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Mar 2, 2019

Tracy, I had a acoustic neuroma removed at Mayo in 1992. I lost the hearing in...

https://connect.mayoclinic.org/comment/84299/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Dec 17, 2016

Hi @hopemay I had a large 3 cm acoustic neuroma about 22 years ago. I had...

https://connect.mayoclinic.org/comment/1089793/

Discussion: Acoustic Neuroma: What treatment options and specialists?

Support Group: Brain Tumor

Posted: Jun 19 10:59am

Hey Tracey: I was diagnosed with an acoustic neuroma 2 years ago. I went into my...

https://connect.mayoclinic.org/comment/84254/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Sep 16, 2016

An acoustic neuroma on the right side of my brain destroyed hearing in my right ear....

https://connect.mayoclinic.org/comment/84330/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 2, 2017

Donna, Thank you for your message. I am sorry to hear about your the problems you...

https://connect.mayoclinic.org/comment/84233/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: May 6, 2016

Hi @jjanes3, I'm glad you found us here at Connect. Welcome. Here is some basic information...

https://connect.mayoclinic.org/comment/84223/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Feb 19, 2016

@saucy yes my daughter has one. They are just watching it right now and aren't worried...

https://connect.mayoclinic.org/comment/170564/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 1, 2017

Hi @deb8. I added your post to the Brain Tumor group and the Hearing Loss group...

https://connect.mayoclinic.org/comment/655880/

Discussion: Hearing issues after radiation for Acoustic neuroma

Support Group: Brain Tumor

Posted: Nov 19, 2021

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