Brain Tumor Support Group

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Comments (181)

Hello: I has an Acoustic Neuroma removed from my Brain Stem 3 years ago March 10,2014,...

https://connect.mayoclinic.org/comment/84304/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 21, 2017

If they are thinking it could possibly be Acoustic Neuroma, then your PCP can do a...

https://connect.mayoclinic.org/comment/1476215/

Discussion: What can I do to relieve symptoms before acoustic neuroma diagnosis?

Support Group: Brain Tumor

Posted: Jan 6 9:42pm

Hi Rose I am 3 weeks post surgery. I had a retrosigmoid craniotomy for a 3.3...

https://connect.mayoclinic.org/comment/84497/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 3, 2018

I was diagnosed with an acoustic neuroma last year and was on a wait and see,...

https://connect.mayoclinic.org/comment/84686/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Feb 27, 2020

I’m a 23 year old female who was diagnosed with multiple tumors in the spine. In...

https://connect.mayoclinic.org/comment/892814/

Discussion: Acoustic neuroma- hearing and facial nerve tumor

Support Group: Brain Tumor

Posted: Jul 9, 2023

I have an acoustic neuroma in my right ear and I am 61 years old. I...

https://connect.mayoclinic.org/comment/1072528/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: May 22, 2024

I had an acoustic neuroma removed surgically 2 years ago, now I have imbalance issues, ears...

https://connect.mayoclinic.org/comment/84274/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 7, 2016

Yes I was diagnosed with acoustic Neuroma 2 weeks ago. Getting 2nd MRI on Aug 8....

https://connect.mayoclinic.org/comment/154080/

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: Jul 31, 2018

I have been recently diagnosed with this condition as well as normal pressure hydrocephalus. On Dec...

https://connect.mayoclinic.org/comment/1196839/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Dec 25, 2024

I have 25 or more tumors that I've found so far but brain mri was negative...

https://connect.mayoclinic.org/comment/858548/

Discussion: Anyone have Schwannomatosis? (Neurofibromatosis type 1 (NF1)

Support Group: Spine Health

Posted: May 12, 2023

Welcome to Connect @katfred. I'm glad you found us so early in your journey. I'm sure...

https://connect.mayoclinic.org/comment/84246/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Sep 12, 2016

I told my primary doctor who referred me to neuro to inform MRI tech of my...

https://connect.mayoclinic.org/comment/84434/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 7, 2018

Good morning! My mom was diagnosed with a large acoustic neuroma .. they did nuclear radiation...

https://connect.mayoclinic.org/comment/1272488/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 2, 2025

I have just been diagnosed with a small acoustic neuroma and it explains the symptoms I've...

https://connect.mayoclinic.org/comment/84391/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jun 3, 2018

Hello @rose4622 and welcome to Mayo Connect, As you read through the posts under this discussion...

https://connect.mayoclinic.org/comment/84423/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jul 28, 2018

Was diagnosed with acoustic neuroma a month ago by ENT after mri. I have all the...

https://connect.mayoclinic.org/comment/84321/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 23, 2017

I also had hydrocephalus, but mine was caused by my acoustic neuroma. My tumor was so...

https://connect.mayoclinic.org/comment/84311/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 21, 2017

@jameslj, welcome. That is a good question. You're right that hearing loss related to an acoustic...

https://connect.mayoclinic.org/comment/977362/

Discussion: Vestibular Schwannoma Hearing Loss Treatment?

Support Group: Brain Tumor

Posted: Dec 8, 2023

Acoustic neuroma..also known as vestibular schwannoma....my tumor was a schwannoma tumor but was located on my...

https://connect.mayoclinic.org/comment/84624/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 26, 2019

Tracy, just wondering if anyone on this board has had yearly MRI'S after having an acoustic...

https://connect.mayoclinic.org/comment/84696/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 23, 2020

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