Brain Tumor Support Group

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Comments (283)

I have one meningioma that was treated with Gamma Knife surgery Jan. 2019. I just went...

https://connect.mayoclinic.org/comment/269626/

Discussion: New pt appt in Minn soon for meningioma (or 2?) and Rathke Cleft Cyst

Support Group: Brain Tumor

Posted: Jul 21, 2019

"bill1980": Did you get a second opinon about the biopsy in 2017? It would seem if...

https://connect.mayoclinic.org/comment/1092786/

Discussion: Living with a meningioma: What warning signs may indicate changes?

Support Group: Brain Tumor

Posted: Jun 23, 2024

Hi, 6 tumors, two removed surgically, 2 cyber-knife radiated because one is laying up against my...

https://connect.mayoclinic.org/comment/116307/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Sep 28, 2016

I was diagnosed with left acoustic neuroma 9 years ago. I had gamma knife surgery at...

https://connect.mayoclinic.org/comment/84688/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 8, 2020

I have had radiation as a child when they didn't know how dangerous it was. I...

https://connect.mayoclinic.org/comment/116418/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Oct 5, 2019

In 2009 I learned by accident that I had a large meningioma with numerous tentacles attached....

https://connect.mayoclinic.org/comment/238539/

Discussion: Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma

Support Group: Brain Tumor

Posted: Feb 1, 2019

Hello, I am new to the group and would really appreciate some advice. My sister has...

https://connect.mayoclinic.org/comment/116337/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 4, 2017

Hi @tracyb My doctors are at UCSF San Francisco CA. I think I am the most...

https://connect.mayoclinic.org/comment/76960/

Discussion: Pachymeningitis: Anyone else?

Support Group: Brain & Nervous System

Posted: Mar 27, 2017

I was diagnosed in 2020 with a 2cm olfactory groove meningioma. I’ve seen 5 neurosurgeons and...

https://connect.mayoclinic.org/comment/804619/

Discussion: Watching a Meningioma Brain Tumor

Support Group: Brain Tumor

Posted: Feb 1, 2023

Good Evening! Thanks for all the useful information. How did your MRI go the end of...

https://connect.mayoclinic.org/comment/116359/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 25, 2017

I have had experience with this. My surgeon removed as much as he could, but I...

https://connect.mayoclinic.org/comment/185910/

Discussion: Any Optic Nerve Meningioma Patients Who've Had Surgery?

Support Group: Brain Tumor

Posted: Mar 16, 2018

I should do more homework on how to do this site, but hopefully I am on...

https://connect.mayoclinic.org/comment/84285/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 22, 2016

Hello, I was diagnosed in 2007 with a tumor in the left occipital side of my...

https://connect.mayoclinic.org/comment/985634/

Discussion: Anyone diagnosed with Hemangiopericytoma (solid fibrous tumor)?

Support Group: Cancer

Posted: Dec 23, 2023

Yes, I have a rare benign brain tumor - a trigeminal schwannoma. Though it is not...

https://connect.mayoclinic.org/comment/49913/

Discussion: Looking for Others with Brain Tumors

Support Group: Brain Tumor

Posted: Jul 16, 2011

@sturns - I’m sorry to hear about your wife’s struggle with her treatments, but the results...

https://connect.mayoclinic.org/comment/780522/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

Hi Pranas, How large is your tumor? Are you having any side effects from it. My...

https://connect.mayoclinic.org/comment/185894/

Discussion: Any Optic Nerve Meningioma Patients Who've Had Surgery?

Support Group: Brain Tumor

Posted: Feb 20, 2018

Hi. I had Gamma Knife this past March. The only thing that I didn’t like (which...

https://connect.mayoclinic.org/comment/1105467/

Discussion: I have a minimum eleven meningiomas is this normal?

Support Group: Brain Tumor

Posted: Jul 14, 2024

Hello @mrsjrocellis1 and welcome to Mayo Clinic Connect. Thinking about surgery can make a lot of...

https://connect.mayoclinic.org/comment/806658/

Discussion: Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma

Support Group: Brain Tumor

Posted: Feb 5, 2023

I was diagnosed with an Acoustic Neuroma on my left side in February 2006. It's size...

https://connect.mayoclinic.org/comment/84552/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 7, 2018

We are now leaving MN. Saw the neuro-oncologist and the neurosurgeon at Mayo. I will say,...

https://connect.mayoclinic.org/comment/677844/

Discussion: Left Tentorial meningioma: What should I expect?

Support Group: Brain Tumor

Posted: Feb 5, 2022

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