Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Blood Cancers & Disorders Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
367 total results
All
Discussions (30)
Comments (337)
Comment
Jakafi is not chemo medicine as such. It is treatment targeted for PV and myelofibrosis; it...
https://connect.mayoclinic.org/comment/889987/
Copy link to clipboard
Discussion:
PV and fatigue
Support Group:
Blood Cancers & Disorders
Posted: Jul 4, 2023
Comment
I read that bone marrow transplants are Only for the MPN myelofibrosis I have not heard...
https://connect.mayoclinic.org/comment/57941/
Copy link to clipboard
Discussion:
Essential thrombocythemia: Interested in connecting with others
Support Group:
Blood Cancers & Disorders
Posted: Jun 21, 2020
Comment
Hydroxyurea tends to lower blood cells, so it's unlikely to help with low platelets. JAK inhibitors...
https://connect.mayoclinic.org/comment/1249599/
Copy link to clipboard
Discussion:
How long before side effects from Hydrea start?
Support Group:
Blood Cancers & Disorders
Posted: Mar 3 2:09pm
Comment
My wife was diagnosed with MF 4 months ago due to MPL mutation. We just heard...
https://connect.mayoclinic.org/comment/132606/
Copy link to clipboard
Discussion:
Anyone want to talk about Myelofibrosis?
Support Group:
Blood Cancers & Disorders
Posted: Jan 24, 2017
Comment
I would be happy to assist in anyway that I can. I am one year into...
https://connect.mayoclinic.org/comment/719904/
Copy link to clipboard
Discussion:
Jak2 positive, biopsy next: Does it mean I have blood cancer?
Support Group:
Blood Cancers & Disorders
Posted: Jun 22, 2022
Comment
I was diagnosed by Mayo with myelofibrosis several years ago. Since then, various clinics have repeatedly...
https://connect.mayoclinic.org/comment/699543/
Copy link to clipboard
Discussion:
Anyone want to talk about Myelofibrosis?
Support Group:
Blood Cancers & Disorders
Posted: Apr 16, 2022
Comment
Hi @snakebite, If you do not mind my asking, did you have any symptoms when you...
https://connect.mayoclinic.org/comment/1345090/
Copy link to clipboard
Discussion:
What are treatments for myelofibrosis?
Support Group:
Blood Cancers & Disorders
Posted: 3 days ago
Comment
I too have Myelofibrosis I did a bone marrow biopsy prior to starting Jakafi. They did...
https://connect.mayoclinic.org/comment/1099094/
Copy link to clipboard
Discussion:
Myelofibrosis w/ JAK2 mutation
Support Group:
Blood Cancers & Disorders
Posted: Jul 4, 2024
Comment
Thank you so much for proving this link, sdduan. It's really interesting to hear high-level MPN...
https://connect.mayoclinic.org/comment/1166064/
Copy link to clipboard
Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Nov 1, 2024
Comment
:Yes I am being treated for myelofibrosis with Jakafi. I was never able to take the...
https://connect.mayoclinic.org/comment/1099091/
Copy link to clipboard
Discussion:
Myelofibrosis w/ JAK2 mutation
Support Group:
Blood Cancers & Disorders
Posted: Jul 4, 2024
First
Previous
...
6
7
8
9
10
11
12
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.