Blood Cancers & Disorders Support Group

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419 total results

Comment

Bad news last time at the doc office, the doctor told me that I suffer from...

https://connect.mayoclinic.org/comment/1044397/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Comment

Hi, I hope this discussion restarts! After having high platelets on a routine physical with lab...

https://connect.mayoclinic.org/comment/1351541/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 19 9:35am

Comment

I would recommend anyone on hydroxyurea to look into Besremi. It has been shown to significantly...

https://connect.mayoclinic.org/comment/1204661/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 2:12pm

Comment

Hi @dawnmarieyoung I just wanted to follow-up with you to see if you caught my reply...

https://connect.mayoclinic.org/comment/1368963/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 12 10:15am

Comment

Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....

https://connect.mayoclinic.org/comment/1367613/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 10 10:40am

Comment

Sounds exactly like my story without the myelofibrosis. So many results from genetic and bone marrow...

https://connect.mayoclinic.org/comment/1203190/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3 12:53pm

Comment

Hi @pearly, Please note that the reply above was from @gael, who is also living with...

https://connect.mayoclinic.org/comment/50536/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017

Comment

Myelofibrosis (Diagnosed by Mayo 7 years ago) is one of those conditions which many doctors know...

https://connect.mayoclinic.org/comment/714720/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

Comment

@luvs2dance Thank you for sharing. I'm sorry to hear that it has progressed to Myelofibrosis. How...

https://connect.mayoclinic.org/comment/1278844/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 5:09pm

Comment

Had the uncontrollable itching about 5 years ago. No specialist had any idea what the cause...

https://connect.mayoclinic.org/comment/802925/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023