Blood Cancers & Disorders Support Group

A year and a half ago, I presented a hemoglobin of 7g with no evidence of bleeding in upper or lower GI as per scans....

Hi, I continue to research and learn from others with ET. I am 57, and diagnosed this past year. Jak2 positive, ET. I may have...

Hello, I am wondering what the symptoms are of beginning spleen involvement in ET. I was dx'd with ET in 2013 . My Internal Medicine...

I am a PV patient, currently age 50, JAK2 verified, producing a tremendous amount of red blood cells (started treatments at a 72% Htc). Besides...

I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...

I’m actually waiting to see if Mayo Clinic will accept my case, but I wonder if anyone else out there is dealing with or has...

Hello, I have just been diagnosed with MPN with JAK2 mutation and negative for the other BCR/ABL 1 mutations. Platelets are 639 on 4/22/24. Everything...

Polycythemia with all negative results???????? I am a 29 year old female and have been feeling not myself for almost 2 years now. Below I...

I am A soon to be 70 year old woman with ET, JAK 2. Since I am on HU (500 mg/day), sensitive to sun and...

Hello, am I crazy? I'm a 23-year-old biological female with a complex medical history. I'm going to list my pre-existing conditions, before I started hematological...