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I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Last active: Apr 27, 2016
Discussion
Can anyone advise about what insurance best covers immunotherapies?
I'm about to have a career transition. Into what, I don't yet know. I want to choose something that will provide the best possible coverage...
Last active: May 5, 2025
Discussion
Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?
Recently diagnosed with MZL and CLL. I don't know which of the MZL types I have. Visiting Mayo in two weeks for second opinion. Already...
Last active: Dec 3, 2025
Discussion
Hairy Cell Leukemia: What were your symptoms before treatment?
Hi, I just found this website via a webinar on the HCL Foundation website. I've learned a lot since my diagnosis via a blood test...
Last active: Mar 12, 2024
Discussion
Has anyone lost fingers/toes to B cell antibodies impacting Platelets
I had all my fingers & one toe amputated due to B cells creating antibodies that impacted my platelets & stopped my capillaries from my...
Last active: Sep 30, 2025
Discussion
Haptoglobin RBC major issues
My rbc labs getting worse. Haptoglobin is now 2.7 when low is 65!!!! I have felt I'm highly anemic. Docs don't see it. I have...
Last active: Sep 11, 2023
Discussion
Iron Tablets! And learning about fatigue and to pace myself
Hello Lori and all of you, sorry to have been gone so long, lost my password and finally gave up looking for it. I have...
Last active: Jul 27, 2023
Discussion
Chronic Lymphocitic Leukemia, myasthenia Gravis and Melanoma
My husband was diagnosed with myasthenia gravis and CLL 3 years ago and was recently diagnosed with melanoma in December. He had a mole on...
Last active: Apr 2, 2025