Blood Cancers & Disorders Support Group

I take 500 mg of Hydroxyurea 4 times a week for Jak2 ET and I also have severe Osteoporosis. My Oncologist is recommending "Prolia" injections...

I've been on HU since March 2025 (5 days of 500 mg/day each week) and my platelets have dropped from 1200 to 314, so I'm...

My 76-year-old mother (ET, JAK2+) has been on Hydroxyurea (500mg, 3x weekly) for 7 months without prior GI issues. Recently, after resuming this dose following...

HiMy mom (74) was diagnosed with PV (aug 2024). Hemotologist believes it may have had PV since 2022. She did the Jak2 test and she’s...

Hello, I’m 56 and was recently diagnosed with PV, Jak2 positive. I was lucky to catch it at the beginning stages from an annual lab...

‏hello everyone good morning And it’s great to talk to you.At the beginning of 2022, I began to feel terrible pain in my stomach. I...

My platelets have been at the high end of normal (394 to 399) since 2016. A few weeks ago, they were 401. The doctor retested...

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

I have PV/JAK2 and take HU. I also have neuropathy in my feet and I’m 78 and have a bad back. I have trouble walking...

I am 73, female and am taking 3 days of HU weekly (500mg). My platelets have come down from 1200 in March to 350 range...