Blood Cancers & Disorders Support Group

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Comment

Hello sorry for delayed response. I have had PV with JAK2 for almost 5 years. I...

https://connect.mayoclinic.org/comment/788322/

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

Comment

Initially, I took antihistamines. Then I tried Xanax which seemed to work better. But, my itching...

https://connect.mayoclinic.org/comment/906174/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Comment

Good morning Colleen. The name of the lotion is Taro-monetasone Lotion. You can not buy it...

https://connect.mayoclinic.org/comment/767143/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2022

Comment

If you don't want to take a chemo drug, you could ask about Pegasys (interferon). I...

https://connect.mayoclinic.org/comment/764406/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

I understand that itching too well, when I first got diagnosed with PV I went through...

https://connect.mayoclinic.org/comment/895517/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

This what I found Many researchers believe it is caused cytokines; chemicals released into the blood...

https://connect.mayoclinic.org/comment/959412/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Comment

Does anyone else have severe itching and tingling all over really bad at night I have...

https://connect.mayoclinic.org/comment/1088584/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Comment

Hi again! If you read other comments about help with itching/burning , patients are taking JAKAFI...

https://connect.mayoclinic.org/comment/1363700/

Discussion: Severe itching with PV

Support Group: Blood Cancers & Disorders

Posted: Aug 4 3:05pm

Comment

I had horrible itching, especially after showering. We lowered the water hardness and I used a...

https://connect.mayoclinic.org/comment/1293855/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 9:05pm

Comment

I’m 78, diagnosed in 2021 with pv. On hydroxyurea 1000mg and hematocrit stays at 45. Itching...

https://connect.mayoclinic.org/comment/833829/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023