Blood Cancers & Disorders Support Group

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Comment

Two years ago, at age 78, I noticed severe itching after bathing. A physicians assistant noticed...

https://connect.mayoclinic.org/comment/872059/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

Comment

For the itching I stopped taking showers in the winter. I wash my hair in the...

https://connect.mayoclinic.org/comment/1018657/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

Comment

I have read your above posts in an attempt to find help for my husband who...

https://connect.mayoclinic.org/comment/872173/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jun 4, 2023

Comment

If you are still itching quite a bit it's because your blood is still too high...

https://connect.mayoclinic.org/comment/895683/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

I too have had many of these exact symptoms. Dr. Said erythrocytosis. I'm to have blood...

https://connect.mayoclinic.org/comment/188874/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2018

Comment

Hi @littlebluebird I’m so sorry your mom is having the nasty itchiness associated with MDS. As...

https://connect.mayoclinic.org/comment/1202303/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 2 9:40am

Comment

My husband recieves Arnesp injections every 2 weeks until his hgb ia 10 or above. He...

https://connect.mayoclinic.org/comment/996612/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Comment

Oh, another help: ICE! I take an ice cube and slowly move it over the itchy...

https://connect.mayoclinic.org/comment/744254/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

Comment

I was frantically looking for answers for 2 years for my itching as my blood counts...

https://connect.mayoclinic.org/comment/870291/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Comment

Would your CTCL be Sezary Syndrome or MF? I have SS, have asked about phototherapy but...

https://connect.mayoclinic.org/comment/1111393/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024