Blood Cancers & Disorders Support Group

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Comment

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Comment

Hi @cshew, Rapamycin (Sirolimus) is a medication primarily used as an anti-rejection meditation for patients having...

https://connect.mayoclinic.org/comment/1153019/

Discussion: Reducing platelets with Rapamycin?

Support Group: Blood Cancers & Disorders

Posted: Oct 6 2:38pm

Comment

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Sep 22 2:54pm

Comment

Hi @esperanzam The other medications used in the treatment of Essential Thrombocythemia are Anagrelide and Alpha...

https://connect.mayoclinic.org/comment/792359/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Comment

Welcome to Mayo Connect @docoltun. Thank you for sharing your experience with ET and what’s been...

https://connect.mayoclinic.org/comment/898227/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

Comment

A high platelet count suggests Essential Thrombocythemia, but you need to confirm if that is the...

https://connect.mayoclinic.org/comment/252017/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2019

Comment

Hi @jola13, there are several members living with essential thrombocythemia (ET) here like @shenriq @jbgeorge @jackt00...

https://connect.mayoclinic.org/comment/876115/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Comment

I have gotten my platelets down to 388,000 but it has take a long time and...

https://connect.mayoclinic.org/comment/792897/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Comment

After a diagnosis of Essential Thrombocythemia just before the Covid outbreak, (with Hydro treatment and fluctuating...

https://connect.mayoclinic.org/comment/781995/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Comment

The standard of care by World Health Organization for essential thrombocythemia is a bone marrow biopsy...

https://connect.mayoclinic.org/comment/845709/

Discussion: Thrombocythemia - GP can’t find the cause

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023