Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

316 total results

Comment

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Comment

Hi @shenriq According to the NIH there are several patients with essential thrombocythemia that complain of...

https://connect.mayoclinic.org/comment/337924/

Discussion: ET symptom of neuropathy

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2021

Comment

I have essential thrombocythemia, a liver mutation resulting in overproduction of platelets. My B is off...

https://connect.mayoclinic.org/comment/198919/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2020

Comment

@lydaneedsadvice, You mentioned you have your next CBC on June 28th. Hopefully, your hematologist can shed...

https://connect.mayoclinic.org/comment/265149/

Discussion: Persistent immature grans/left shift on CBCs

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2019

Comment

I have low iron but not anemic. Iron supplements are helping my low RBC. I take...

https://connect.mayoclinic.org/comment/1000612/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

Comment

The MPN Foundation is the one researching ET extensively. It's free to belong and they have...

https://connect.mayoclinic.org/comment/1014997/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

Comment

Welcome @ksyren! We’re all about hope here in Connect. It is so comforting to know others...

https://connect.mayoclinic.org/comment/1202501/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

Comment

I was on hydroxyurea (Hydrea) for 7 years for Essential Thrombocythemia (aka way too many platelets)...

https://connect.mayoclinic.org/comment/1119537/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

Comment

Since there is no cure for Essential Thrombocythemia, and it is a progressive disease, why are...

https://connect.mayoclinic.org/comment/57937/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2012

Comment

Recently diagnosed with essential thrombocythemia and primary myelofibrosis with MPL mutation. Blood transfusions and iron infusions...

https://connect.mayoclinic.org/comment/764111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022