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Blood Cancers & Disorders Support Group

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Discussion
How do I make an appointment with Oncology?
My Nephrologist and Urologist both strongly suspect I have a blood cancer (possible multiple myeloma) and want me to seen ASAP by a oncologist at...
Last active: Nov 7, 2025
Discussion
Beta Region in SPEP Test & Beta 2-microglobulin - Same Thing?
In an SPEP or UPEP test for multiple myeloma, is what is described as the "beta region" the same as the measurement of beta 2-microglobulin?...
Last active: Apr 13, 2024
Discussion
High risk smoldering myeloma protocol after 24 cycles of Revlimid?
I have high risk smoldering multiple myeloma and am on lenalidomide (Revlimid) as sole agent (not clinical trial) which will continue for 24 cycles. I'm...
Last active: Nov 16, 2023
Discussion
Waiting on chemo drug approval: How long does this take?
I was diagnosed with multiple myeloma this December 9 24. I was supposed to start chemo January 6 but I am still waiting on drug...
Last active: Jan 25, 2025
Discussion
Annual American Society of Hematology mtg this weekend!
The ASH conference is the most watched conference for those of us with blood disorders. As a multiple myeloma patient I’m thrilled to be part...
Last active: Dec 7, 2023
Discussion
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
Last active: Nov 12, 2025
Discussion
New testing and treatment for MGUS, SMM, and MM
There are new studies being conducted at Dana Farber Institute for early detection and treatment of MGUS, SMM, and MM. Has anyone looked into this...
Last active: Nov 28, 2025
Discussion
MGUS with bone pain?
My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...
Last active: Feb 10, 2024
Discussion
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
Last active: Sep 27, 2025
Discussion
Diagnosed: MGUS
Hello everyone, I was diagnosed with MGUS after a routine physical, and my doctor made it sound like it wasn't that serious, but my (favorite)...
Last active: Feb 4 8:37am