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High risk smoldering myeloma protocol after 24 cycles of Revlimid?
I have high risk smoldering multiple myeloma and am on lenalidomide (Revlimid) as sole agent (not clinical trial) which will continue for 24 cycles. I'm...
Last active: Nov 16, 2023
Discussion
Beta Region in SPEP Test & Beta 2-microglobulin - Same Thing?
In an SPEP or UPEP test for multiple myeloma, is what is described as the "beta region" the same as the measurement of beta 2-microglobulin?...
Last active: Apr 13, 2024
Discussion
Anyone with myeloma experience a change in their sense of smell?
Hi,I have just been diagnosed with Multiple Myeloma but have not started any treatment yet.The timing isn't great with Ucare going away, just adds to...
Last active: Jan 8 8:35pm
Discussion
New testing and treatment for MGUS, SMM, and MM
There are new studies being conducted at Dana Farber Institute for early detection and treatment of MGUS, SMM, and MM. Has anyone looked into this...
Last active: Nov 28, 2025
Discussion
Bone marrow biopsy and/or blood tests for MGUS
Somebody was talking about some new blood test that would eliminate the need for bone marrow biopsy to definitively dx MGUS. I think this is...
Last active: Nov 12, 2025
Discussion
Annual American Society of Hematology mtg this weekend!
The ASH conference is the most watched conference for those of us with blood disorders. As a multiple myeloma patient I’m thrilled to be part...
Last active: Dec 7, 2023
Discussion
Low anion gap, worried
Not sure where else to post this. I had blood work done and the anion gap came back low at 3. Everything else in the...
Last active: Dec 20, 2025
Discussion
MGUS with bone pain?
My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...
Last active: Feb 10, 2024
Discussion
Possible mm
My dad recently passed away from multiple myeloma. So, I joined a study group connected with the Dana-Farber Institute. I had blood drawn and tested...
Last active: Jul 5, 2022
Discussion
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
Last active: Sep 27, 2025