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Comment

Hi @ejrquast and welcome to you too! I love that you are an International Waldenstrom’s Macroglobulinemia...

https://connect.mayoclinic.org/comment/624441/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

Comment

@carrnv42, welcome. I moved your question about zanubrutinib (Brukinsa) to this already existing discussion: - Waldenström...

https://connect.mayoclinic.org/comment/1451014/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2025

Comment

I'm new to the world of Waldenström's Macroglobulinemia - having been diagnosed last month. I'm on...

https://connect.mayoclinic.org/comment/1246861/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

Comment

I was diagnosed with MGUS approximately 20 years ago and was being regularly monitored every 3...

https://connect.mayoclinic.org/comment/1232582/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2025

Comment

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

Comment

I was diagnosed originally with a blood test that looked suspicious. Then I had a bone...

https://connect.mayoclinic.org/comment/169957/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

Comment

Hi Mike, I can appreciate your thoughts on whether the vaccinations had anything to do with...

https://connect.mayoclinic.org/comment/923509/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2023

Comment

@vasu11, you may also be interested in these related discussions: - Is anyone taking Ibrutinib (Imbruvica)?...

https://connect.mayoclinic.org/comment/909770/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

Comment

Hi @nandita9009 The best way to initiate an appointment request would be to go directly to...

https://connect.mayoclinic.org/comment/891236/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

Comment

Brukinsa is also known as Zanubrutinib. There are few members in the forum who have experience...

https://connect.mayoclinic.org/comment/845063/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

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