Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
Clear Search
1,201 total results
Discussion
79 year old male with MDS: Worried about increasng fatigue
I would like to know what treatments are available for MDS.I am a 78 year old male with MDS. I have been getting monthly injections...
Last active: Dec 4, 2025
Discussion
MDS now progressing to AML and need to decide if time to start Vidaza
My 67 yr old sister has been in the hospital since June 3rd and I have to make a decision for her. She was diagnosed...
Last active: Jul 7, 2025
Discussion
Myelodysplastic syndromes (MDS): When do you need to start treatment?
Wen do you need to start treatments for this disorder an wat best treatments are there
Last active: Aug 5, 2024
Discussion
Very worried about MDS. I am extremely anxious and feel very alone.
Hi guys, I am 41 years old and have recently have numerous low WBCs over about 6 months and I also have platelets of differing...
Last active: Mar 14 11:45am
Discussion
Just got my blood test results today. I have MDS
I have myelodysplastic syndromes MDSI got my blood tests results back and some have changed. Some went down, some went up and some stayed the...
Last active: Apr 15 7:44pm
Discussion
I have recently been diagnosed with MDS, and have so many questions.
I have just been diagnosed with MDS, and have so many questions. I will be going to Mayo Clinic for follow up opinions and understanding...
Last active: Apr 13, 2025
Discussion
MDS types: How did you find out what type you have?
Hi, I haven’t posted in a while however I follow daily. I keep seeing there are different types of MDS and it’s important to know...
Last active: May 26, 2025
Discussion
MDS: Can someone explain how or why platelets go up or down quickly?
Can someone explain how or why platelets go up or down quickly. My diagnosis was MDS after a bone marrow biopsy and I was sent...
Last active: Apr 20, 2024
Discussion
Use of Neupogen (or similar) prior to minor surgery
Has anyone with MDS used Neupogen (filgrastim) or similar prior to minor surgery to reduce the risk of infection? My concern is that even a...
Last active: Aug 3, 2021
Discussion
Is there best day for bloodwork during the Revlimid cycle?
Practice nurse recommended bloodwork for MDS during the off week in Revlimid cycle. Doctor thought it didn’t matter.
Last active: Jan 5 4:10pm